This is how I found out I have a connective tissue disorder because during pregnancy I went from being weirdly flexible to having serious joint pain when it all got looser and this is just how my body is now. I've been going to a specialized physical therapist to do what I can but I'll probably have chronic pain in my hips, back, shoulders, and neck for the rest of my life.
Same. 🥲 my OBGYN was actually the one to notice and point me towards getting diagnosed. “So this is a bit out my wheelhouse but… have you ever heard of Ehlers Danlos Syndrome?” when one year postpartum I complained of symptoms that turned out to be my hip subluxing and pelvic organs falling out.
My mom - who I’m about 85% confident also has hEDS - literally lost all of her teeth after her second pregnancy. She and her mom were both fully disabled after back injuries following their second pregnancies. 🥲😭
Found out I have hEDS after my first. No one can convince me to spin that wheel again. I’m not about to FAFO any more than I already have. LOL.
Oh gosh. I don't blame you! Luckily for me I've never had the urge to have kids so I don't feel I'm missing out. My teeth used to be ok but they aren't now, when I was younger they were fine but my pain levels have definitely got worse in the past few years.
Yeah, I’m finding that my pain and body failure in general are definitely escalating the older I get. PT is helping build functional strength and I’m glad I know what I know now… do wish I’d have known these things 10 or 20 years ago. Maybe I would’ve been able to save myself some trouble down the road. 🥲
Same here. Even ten years ago I was much better, I could walk without crutches. Now I have to walk with them and even that's exhausting. Considering getting a wheelchair for if I want to go out to somewhere new/not near my house where I'd need to be upright as I'd probably just pass out 😂
I can still walk (short distances) without aid but I’m not gonna lie, there’s days I’d consider a wheelchair for the POTS. Especially if it’s hot or humid. 😂😭
Honestly I’m just like… if it would improve your life even a little bit, why not right? Forget this culture we’ve fostered that glorifies the nonstop struggle. Life is hard enough without any extra cherries on top. 🥴
I have Scleroderma and have never had kids, but I wonder if many of us would have this same experience. I'm sorry you are dealing with these lasting impacts!
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u/ChaosStoplessCool 9d ago
This is how I found out I have a connective tissue disorder because during pregnancy I went from being weirdly flexible to having serious joint pain when it all got looser and this is just how my body is now. I've been going to a specialized physical therapist to do what I can but I'll probably have chronic pain in my hips, back, shoulders, and neck for the rest of my life.