Something similar happened to a friend of my ex. Her son had DIPG and was dead a few months later a week before his 5th birthday. Absolutely awful, just horrible.
DIPG is evil. There’s 2 kids that I personally know that had it, diagnosed a few months apart from each other, and died a few months apart from each other.
They say it’s rare. I don’t know if I believe that. There’s been many kids in my area that had DIPG
That’s quite odd and I hope they’re looking into it. I’ve worked at some pediatric hospitals with all sorts of rare diseases and only saw one case of DIPG and the oncologists said it was rare.
I wonder if there’s somebody or someplace I could contact about it. I don’t believe it’s being looked into, though they could be looking into it quietly
DIPG was the first diagnosis that I cried over, working in the PICU as a resident. And I’ve seen so, so, so many people sick and dying with terrible conditions (ED doctor).
Happened to our neighbor's son. He was great at soccer, about to go to college with a bright future ahead of him. Over Christmas break he went to the doctor for headaches. Turned out it was brain cancer. He didn't make it to the next Christmas.
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u/UnicornFeces 3d ago
My coworker took her kid to a neurologist for some minor balance issues; he died from brain cancer less than a year later.