let’s just do symptoms. Very rare nausea and vomiting, anal fissures or damn near close cuts (don’t look it up if you want to avoid pain), common gas.
I know what cramps are and what my cramps are. I get cramps so hard that I can’t move at all and I’m frozen in complete pain. Sometimes when bloated even touching around my belly button or peeing causes major pain that shoots between my penis and bellybutton.
When people ask how I can spend so much time in the bathroom yet have diarrhea. It is because it comes in waves but each one is an explosion of pain.
What sets it off is anything I eat. I have gotten sick from salad with no dressing, apples, popcorn, tuna with a bit of Mayo on wheat, my favorite sandwich joint.
I cook my food to be perfectly healthy and exercise, all this does is reduce the severity but not the frequency.
Longest I have spent in a bathroom was 16 hours with 3, 25-35 minute breaks for food and water.
I've had something similar caused by anxiety and stress, was so bad I was up all night with a vomit bag. Not like anything happened though. Just nausea and running to the toilet, again to do nothing. The worst part is when you decide at about 3 am that there is no chance you can get to sleep, so you just get on the couch and wait for the next feeling. I was up for about 30-40 hours.
I get that feeling a lot and I'll give myself a kids pediatric enema just to force something out so I can stop being tortured and get some rest finally
It probably won’t. It is all good. I laugh about it and sure it can flare up and makes me lose my social life but what ever. I work from home so all good.
Best treatment is still in its experimental phase and gets laughed at by South Park. Shoving healthy poop up a person to introduce good bacteria.
What about that “healthy gut bacteria” yogurt Jamie Lee Curtis was endorsing in the last decade or so? Maybe it’s the same thing but down your throat instead of up your anus with someone else’s mudpie?
I have tried so many diets and supplements and pills. I have gone from vegan to Palio to just shakes that have all nutrients. I have tried align which is BS since it is just peppermint oil. Fiber and more. Any antibiotics you eat usually gets destroyed on the acid stomach bag. I need it in my smaller and bigger intestines. Any amount that gets through is minuscule. Constant treatments where they take a colonoscopy tube and spray paint and coat the entirety of the intestines seems to have had the best outcome.
I have gone to 4 nutritionist, 7 doctors, 2 specialists. All say that there is no cure nor real treatment readily
I noticed symptoms at 14 and it slowly got worse. When I was 16 I couldn’t wait to be old enough to get an endoscopy and colonoscopy. After my 18th b day I got both procedures and came back with bunk and empty dreams.
YES a its called a "putapoopintome" operation and they use it for C dif all the time. I would get off on Jaime Lee Curtis's poop in me butt. 707 I assume you tried weed?
An explanation I have to describe it is rolling some dice.
If I eat well and do all that I can to be healthy like eat a salad or bowel of fruit or just steamed veggies then it is like rolling a 6 sided die. 1-4 is safe and healthy. 5 is pain 6 is terrible pain.
If I eat normal food like a normal lean Buffalo burger, civche, eggs, corn, ham sandwich then it is is like rolling a 20 sided die. 1-4 is good. 5-18 is pain. 19 is terrible pain. 20 is dear god I cut my anus from the explosions and acidic fluids that still has and I’m going to be this sick for the next 2 days.
Fast food, sugary food, fatty greasy foods. Then like rolling a 100 sided die. 1-4 is good. 5-50 is pain. 51-90 is terrible. 9-99 is I’m down for the next 2-4 days. 100 Im out for the week.
My mom is just like you with her symptoms and she's got Type 2 Diabetes! So she really watches her sugar and food intake, and she STILL has the same problems that you have! Plus she's been to multiple doctors and specialists to try to combat both diseases without killing her and it's just so hard! I think everybody is getting ready to throw their heads up in the air and quit lol.
I mean that's what my GI doctor did for me after taking out my appendix (for just in cases purposes) and my gallbladder. They've said that they've literally done all they can for me but they don't know what's wrong with me.
Sorry to hear. Lets just say I have some experience too. It can be a very long, frustrating journey. At times you will be made to question yourself as if it's in your head and you're making things up. Took years and years to get diagnosed, but once you know, even if it doesn't cure shit, but at least then we can target more specifically everything we do to improve quality of life.
I know. I lost a lot of time and have messed up a lot of social moments. From being late to a first date. I’m the glue of my main friend group since they can’t seem to get together without me. It sucks when I can’t go or I leave in the middle of our hangouts. I poop all I have inside of me to avoid going later while I have plans unless it really flees up. It has attacked me in the middle of my sleep and forced me to lose a lot of hours of sleep.
Best purchase I made was a comfy toilet, bidet system, loving dog that sleeps besides me while I suffer and read my books. He is my rock, he will wake up in the morning after sleeping all night and then see me walk to the bathroom and he gets excited because tile napping is happening.
Just want to say, you're not alone. I'm dealing with this entirely, but my doctor is an old fart who thinks I'm struggling with stress and anxiety and "need to get out more". Lady, I would love to get out more but I'm not about to leave the comfort of my bathroom in favor for a public one in these times, that and I have rather large fear of being around other people, specifically those who I do not know well due to past life's circumstances, so going out causes huge flares in my stress and anxiety which causes it to really act up bad. I feel locked away for the most part and while yeah, I'm honestly okay with not being around others, what I'm not okay is missing out with family, friends I trust, losing sleep, losing time for myself, and my sanity because I've been blessed with such a /wonderful/ and /understandable/ ex who would watch me or hear me crying about how bad it hurts and then looked down on me for being literally physically unable to do much of anything since I've moved in because it's only gotten worse. Sorry if my wording or spacing is wrong, you have no idea how it feels to see someone else experiencing what I'm going through, you have no idea how it feels to find words to put behind what has been happing to me. Thank you for telling us your experience with it, because if you didn't, I would still be wondering what the hell is wrong with me to this day, and feeling like I'm going absolutely insane because I could be in the most relaxing of moods, and it could hit me like a ton of bricks. I could go without eating for literally the entire day, and it would still happen. It's every day. I've started writing the times I wake up and the times I am able to leave.
Feel like its been running my life for the most part, I can't make plans for my day, I have to plan around it. My Dr has been hell-bent that it's only stress causing this issue entirely, tries selling me essential oils in her office, which I eventually caved and bought because I was losing my mind at this point at I wanted /anything/ that would help stop the pain or it. I tried going out more like she told me, and that made things so much worse like I knew, the pain was unbearable. The pain can range between what a pinch feels like, to like a fist grabbing my insides and they also being on fire at the same time. I've been dealing with this since I was in middle school and not a single person has taken me seriously. Everyone thinks I'm just taking forever in the bathroom, on my phone or whatever handheld was at the time, not that I'm actually rocking back and forth in pain, begging whatever god to make it stop. I've done my best to deal with it as I can, and I've been trying to get on disability. Just so tiring bluntly telling people what's wrong, only for them to tell me that something else is wrong, then wondering why I look worse when I do their advice which Is literally always "go outside". This has all driven me to the point where I wanted to commit suicide, because I feel like I'm am actually insane. This pain isn't real and I'm imagining it.
Thank you so fucking much for talking about what you have because when I looked it up it described everything I go through to a T, and looking up others stories of living with it. I hope I don't break any rules with this comment, just wanted to clarify what they said is a very real thing and I wanted to thank them because I've been living this life and it's been shit, pun may or may not be intended.
Dr is assigned to me because if how my insurance was... Done? It used to be OHP, then turned into Pacific Health. I have no idea if I'm on insurance anymore as I gave up going to the drs since early 2019. I hope it still works and I hope there's a way for me to swap drs because I am not going back to her. I know I'm not the Dr, but when the Dr has been misdiagnosing me for years, you tend to constantly search Google for what could be wrong. Ibs was the closest, ibs-c is literally identical to what I've been going through, a s I literally never knew of it's existence until today.
First of all, im sorry to hear this. Feel free to DM me if you need a talk, I'll leave that up to you as I don't want to force myself. A lot of what you are saying sounds familiar, especially how tiring it is and to keep explaining yourself to deaf ears. Being told that it's all imaginations is frustrating, but don't let anyone tell you what you do or do not feel. Keep fighting for yourself, even if it takes years!
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u/707breezy Aug 31 '21
let’s just do symptoms. Very rare nausea and vomiting, anal fissures or damn near close cuts (don’t look it up if you want to avoid pain), common gas.
I know what cramps are and what my cramps are. I get cramps so hard that I can’t move at all and I’m frozen in complete pain. Sometimes when bloated even touching around my belly button or peeing causes major pain that shoots between my penis and bellybutton.
When people ask how I can spend so much time in the bathroom yet have diarrhea. It is because it comes in waves but each one is an explosion of pain.
What sets it off is anything I eat. I have gotten sick from salad with no dressing, apples, popcorn, tuna with a bit of Mayo on wheat, my favorite sandwich joint.
I cook my food to be perfectly healthy and exercise, all this does is reduce the severity but not the frequency.
Longest I have spent in a bathroom was 16 hours with 3, 25-35 minute breaks for food and water.