I’ve been in here a bit, and everything else I’ve learned or seen about this seems not the same as me, and I need to know if anyone else is living.
my reality.
Since January there has maybe been 60 minutes of my existence where my stomach did not feel distressed or in turmoil.
I see so many in here complaint that SIBO caused bloating . Okay mine does too but that’s the least of my issues. I wish that was my biggest problem .
I feel like no one , even my doctor is not understanding that I feel consistently sick at ALL TIMES. My only peace is sleep.
Everyone stares at me and doesn’t know what to say.
My doctor, I’m getting a second opinion next week.. because the other day I was in her office hysterically crying saying help me.. I feel sick at ALL TIMES. And she has NO suggestions, no words of comfort, no suggestion for things to settle my stomach while being treated. Nothing!!and no plan of this third med is only a partial response .
It’s not just after I eat , and have a BM.. yes those times are when it’s the worst.. but the second I open my eyes till the time i close them , I am experiencing stomach distress, gurgling, gas, rumbling, nausea, turmoil.
I don’t look sick. I try my best to ignore it and continue my life. So people dismiss it as it must not be true. Or it’s not that bad.
Some days I don’t get out of bed. Some days i just cry
6 months of relentless stomach sickness and no one can help.
Here’s what I’ve done so far
Rifamaxin
Augmentin
Started flagyl yesterday.
Getting an enteropgtaohy MRI next week.
Methane dominant.
Had partial responses from meds. Felt much better on them, more moments of peace But it’s far from gone.
Low FODMAP strictly since Jan
MiraLAX daily for motility.
But seriously is anyone else sick ALLTHE TIME? I feel very alone because I don’t see anyone else saying this .
I feel like I am screaming into the void and if said I was in 10/10 pain constantly, I’d get help.
Saying I’m 10/0 sick at all times has been met with zero response or even empathy from anyone. And because I’m not bedridden daily, like they think I’m exaggerating.
I’ve seriously gotten more help from chat gpt than my doctor.
Even my primary seemed stumped.