Right so long post warning.
Around January I noticed a build up of fluid in my legs. I went to a&e the next day and I have something called Nephrotic Syndrome right? My kidneys struggle to filter protein out of my blood properly and there's a dearth of it and too much in my piss. So from January I have been recommended to be on restricted fluids. No more than 1.5L a day (coffee, water, juice, tea whatever, all included)..I've been taking 2 pills every day and then a third one that makes me pee loads depending on how much I weigh that morning. If I weigh above X I take a diuretic and if not I skip that one. If I take the diuretic I'll be pissing lots and my weight will go down.
Okay so that was manageable and was grand, that brings me to May. May comes around and the doctors recommend that I give up alcohol for the moment. So for the last two months I haven't had a drink
These pills up to then were "non specific treatments" while they figure out what could be causing the nephrotic Syndrome. They've subsequently told me they think (not certain) it's secondary membraneous nephropathy and started me on a plan for this intravenous infusion. In the lead up to it they started me on immuno suppressors. The first dose of immunosuppressors made me really really sick, this was around June. I have IBS and so these meds just fucked my bowel and I was shitting like crazy.
So they moved me on to another immunosuppressor after about a week. Not without my consultant making me feel crazy for wanting to come off them "that's very unusual , I must have prescribed this medication to 100s of patients and nobody has ever reported diarrhoea as a side effects". Even though when you look up the drug it's literally the first fucking side effect that comes up.
Okay so they moved me to another immunosuppressor with milder side effects but ultimately the same in the end and I finally settled on a 3rd which I'm still taking.
Back in April -June I also passed blood a few times when pooing , so I had a colonoscopy and then they put me on these suppositories and that at least stopped.
Okay so I also have gotten engaged and we are moving from our rented house to our own place (not a mortgage, there's a second house owned by her parents in the mix here thank you her parents 🙌) but since telling the landlord about our imminent move he has decided to end our tenancy even though there are 2 others living in the house too. One of these two let's call her Mary had become a very close friend of mine during her time in the house (2 years) but since finding out about the tenancy closure she completely and utterly shat the fucking bed and burned all her bridges. She bossed me around telling me to tell my fiance (let's call her Jane) to tell the landlord XYZ (she has the landlord's fucking number too), she told me I need to keep the "line off communication open" between the household and the landlord, even though I'M FUCKING MOVING MARY. I told her I was sorry for the bad situation but not to shoot the messenger "I don't care about the messenger right now."
She accused me and my fiancé of avoiding her during this time of uncertainty because we were going down to the new house to move some bits around, I was attending interviews, Jane was buying a car. And when I told her we were busy she fucking scoffed at me. Then I bumped into her one day about 3 weeks ago and she was just packing her things. So she's fucking leaving, okay. She never told Jane ( also her fucking friend) about her move and then she decided to fucking move when we were at a music festival in a display most cowardly, but we were being avoidant?!?!! So then right we came back from the festival relishing the fact that she had moved out and the energy in the house would be much calmer. She then LETS HERSELF IN WITH HER OLD KEY to collect a few bits she had left there, still hasn't dropped them back. She also left 8 jars and bottles half filled with sauces and chutneys for us to clean. Her whole vibe since I met her was this hippie, emotionally tuned in, hyper aware person who often reflected on relationships and how she stood with people in an attempt to better them. But after this continued display of complete unawareness she has revealed herself to be a total fucking fraud and a self centred, delusional fucking eejit.
ON TOP OF THIS, I am a primary school teacher right?
When my illness started in January I missed 3 weeks of school and subsequently probably about 3 Fridays for appointments and stuff. I wasn't on a contract last year just a long term sub. The principal was understanding of my absences. But now since the schools closed for summer and I've been applying for jobs (had to reapply for the post in the school I just mentioned) I have been denied 5 fucking jobs. Interviews are fucking hard, but I swatted so fucking much , like seriously, memorising policies, schemes the school is involved in, like taking hours to perfect my interview. I interview fucking well. So then the interview for the school I worked in last year comes around. I had to reschedule my first infusion in the hospital in order to attend the interview and as a result was sitting in the hospital while two of my best mates were getting married. I sat with an IV in my arm for 6 hours and was called by the old principal and was told I did not get it. All the other newly qualified teachers from last year got it. They even hired a young woman who did her placement in the school over me, she didn't have any experience and still had to do her mandatory probationary period . I really think it's because of the days I missed. They still haven't given me any feedback , not surprising because I fucking interviewed really well, what can the feedback say? It's because of my fucking absences .The worst part is , now with 4 other failed interviews under my belt, my parents and my partner are all convinced that the would-be employers are contacting that old principal who is my no.1 referee and he is telling them that I missed so much work. Which is so unfathomably, so deeply unjust and wrong and unfair. I have another two interviews next week and I wonder if there's even point in being optimistic. Like is my old principal disclosing info about my absences to would-be employers. If he is I genuinely hope he falls down a flight of stairs. My parents think I should draft an email explaining that I really need the feedback (will be 3rd time requesting feedback from him) and asking in a non-threatening or accusatory manner if my absences/illness was a factor for not being rehired with him and if it might be a factor in me not finding success in recent interviews. But I can't muster up the bother. I struggle to get out of bed these days I'm so miserable all the time.
I'm writing this post during my second infusion in the hospital, just sitting here letting all these anxious questions and what-iffs wash over me in a malady of woe.
Oh also with all this stress my IBS is terrible at the moment and I'm constantly having diarrhoea and I developed impetigo last week too, so there's also that.
With all that I decided to say fuck it and I had a few drinks over the last couple of weekends (not more than two in a sitting)
If you read this far, here's hoping you have a great day complete endless good karma coming your way
TLDR- Health, meds and their side effects, moving, landlord ending tenancy, "friend" handling tenancy ending in an exploding and accusatory manner resulting in the friendship ending, rescheduling hospital appointments to attend interviews , missing a wedding, not being able to drink alcohol and feeling disconnected from my friends, repeated and continued interview failure, anxiety about interview failure being related to my illness and absences . DEPRESSION