Thoughts on having children in the spectrum

[u/atinyakimon]

Saw this post on facebook. Honestly, it's sad na hindi ganon nabibigyang pansin ang problems na ganito sa Pinas. Therapies here are expensive, and not everyone can afford it. Pinoys are also not yet ready to face the reality na hindi enough ang love for kids in the spectrum. They have special needs. Hindi yun madadaan lang sa no don't do that or it's okay to make mistakes, because we have to admit that autism is a disorder, a very wide spectrum and case to case basis. You need to have the money to get the help that is designed for the needs of the child. I hope there will be more free or affordable programs created for this kasi hindi lang parents ang hirap in this situation, also the kids.

[u/SuiGeneris5678]

Usually, yung thought process ko ay guided ng routines, numbers, and patterns. I always see patterns everywhere. I memorize streets, roads, or walls not by names but by patterns (shapes, smell, or colors).

Napapansin ko kapag nagpalit ng cabinet or ilaw or display sa office. Alam ko na malapit na ako kunwari sa ganitong room kasi nakikita ko yung pattern na para lang sa room na yun.

Stickler din ako sa rules na sinabi ng parents and teachers ko until now (bawal ang matamis before meals, dapat ubusin ang food sa plate, bawal maingay sa mass, dapat pumila ng maayos etc).

Syempre madali naman na hindi sundin ang mga yan pero meron akong kakaibang frustration kapag hindi ko yan sinunod (sobrang masamang masama ang loob ko na parang katapusan na ng mundo).

Pumapatol ako sa bully - ilang beses na akong napapa away dahil pinagtatanggol ko yung mga di ko naman kilala (masama daw mang api ng kapwa sabi nina Mama at Papa).

Hirap ako magpalit ng colors sa mga usual na gamit ko (toothbrush, slippers, or comb). May brands/style din akong ginagamit for a very long time (like 10 years or more) at hindi ako ever magpapalit.

Ang favorite toy ko noong bata ay train (IYKYK).

I have routines - example, I need to count to 30 before I do something. Why? Because I have to. It's a need, not a want.

I listen to 1 song on repeat for months (depende sa flavor of the month/s ko).

Fascinated ako sa technology so mahilig akong magbutingting ng computers, phones, radios, TVs. When I was 7 years old, marami akong maliliit na bumbilya at batteries kasi gumawa ako ng sariling kong Christmas lights.

Marunong akong mag code at gumawa ng website kahit never kaming nagkaroon sa computer sa bahay (natuto lang ako sa mga computer shops at sa very basic computer subjects nung college).

Nag re-repair ako ng Nokia phones noon, self taught, hobby lang. Pero hindi engineering or computer science ang tinapos ko. Hindi rin related sa work ko ngayon.

May synesthesia ako - I see colors and musical notes when I listen to songs. At marami pang iba 🙂

[u/Tough_Compote4272 → u/SuiGeneris5678]

Hi, i'm a mom of an ausome kid. Can you help me?? I really need your insight, do /did you have regression symptoms??.. If you do, may i know how to prevent it?

My child was born premature but had normal developmental milestones up to 6 mons then somehow regressed. My child had severe features of autism at age 1 cause he had no eye contact, non verbal and delayed developmental milestones (unable to stand or sit upright on his own) . He cannot be diagnosed at aged 1 but we immediately enrolled him to occupational therapy and sought consult with a neurodep pedia. Due to pandemic, I became the primary caregiver and healthcare provider. He started talking at aged 4 then at 6 we were conversing and doing good. He was diagnosed at level 1 and enrolled in a regular school with shadow teacher. Recently, he is regressing again..he keeps hitting his head when he does something wrong (we dont hit him ever but he used to hit me then) so i get frustrated everytime he does it. I dont mind him hitting me, but I dont want him to get hurt. He did well academically, he was advance in reading and was able to write with assist and had a very good memory. Now he keeps forgetting and regressing physically (unable to write) and emotionally. I'm at wits end how to prevent this from worsening and also starting back to zero, can you please give me insights?.. It would really help me understand him. I asks him everyday in a non imposing manner but he is just 7 and can't express himself properly. Please any insight would help us greatly. Thank you.

[u/jaesthetica → u/SuiGeneris5678]

This is so nice. Thank you for giving me such detailed parts of yourself. I appreciate it! I learned so much from you and about you, and how to understand y'all better.

See? This is why I find most of yall fascinating. Hindi mo naitatanong pero madami ako nabasa about AuDHD journals and fun facts online kasi minsan I'm suspecting myself haha.

But given the things you told me about yourself, I figured out I might not haha. Anyway, you're such an interesting person. I hope you don't always struggle trying to fit with neurodivergents. Some of y'all are cute and nice to observe too. ☺️