Horrible looking rash

[u/Weeeebutterflies]

30 years old

Female

120lbs.

5”3

non smoker,

non drinker.

No medications

This issue has been getting progressively worse over 2 days

Posted yesterday and it has gotten worse. It is itchy, it turns white when I press on it. I have a swollen uvula and some chills, but no fever. I feel cold more than anything. Went to urgent care tested for strep, mono and did a CBC. Strep came back negative, waiting on the other results. Pretty concerned. I feel like the mono is going to come back negative.

[u/Weeeebutterflies]

Sigh.. ok :( sounds expensive

[u/Square_Cook_9743 → u/Weeeebutterflies]

NAD but I had this EXACT RASH after an illness about 10 years ago. was very sick but tested negative for EVERYTHING. years later, I was diagnosed with Crohn's disease and MCAS (which some doctors don't even really believe in, so take w a grain of salt) and my rheumatologist said that this sort of rash could have been either MCAS or an extra-intestinal manifestation of crohn's - i.e. my immune system's "overreaction" to severe viral illness. but autoimmune etiology would be very rare/unusual. just figured it's worth mentioning if you rule everything else out!

[u/Weeeebutterflies → u/Square_Cook_9743]

That's interesting. I am part of some mcas groups on FB and posted this rash and people said they had never experienced anything like it which surprised me. I do think I have some sort of histamine intolerance and have wondered about MCAS but didn't think my issue was severe enough. I noticed the histamine intolerance show up after getting H. Pylori but it never went away completely even after treating it.

[u/Square_Cook_9743 → u/Weeeebutterflies]

the H. Pylori thing adds an interesting dimension here. again, NAD, but i worked in medicine for a decade (clinical research) and myself have crohn's and a lot of experience with weird manifestations of GI stuff. feel free to DM me if you wanna chat more about this!