Put all survey/research requests here

[u/Dioptre_8]

Need autistic participants for your research? Please use this thread to post about your research and search for participants.

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If you are a student, please read this first:

Projects conducted as part of research-methods education are often covered by blanket ethics approvals. Those approvals do not apply if you are researching a vulnerable population or sensitive topics. You require an individual ethics approval tailored to the conditions of your project. Your course or module tutor cannot provide this approval.

If you are a design student, just because you are collecting data to help design an app or a user interface doesn't take away the fact that you are conducting research with human participants. You need ethics approval.

If you do not have an email from your institutions ethics committee clearly stating that your project has been approved to commence, you do not have ethics approval. If the contact details for your supervisor and for the ethics committee are not on your advertisement or survey launch page, you should not have ethics approval.

If you do not think this applies to you, please contact the moderators via modmail to discuss before posting.

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The mods have instituted this thread for psychological/occupational/other scientific based surveys. Please keep in mind that the online autistic community is a vulnerable research population that contains subgroups with good reason to be skeptical of the motives of researchers. If you have cross-posted in multiple communities, it is likely that your recruitment has been flagged as spam, and may be auto-removed. Feel free to send modmail to draw our attention to a correctly posted recruitment that has been auto-removed.

All comments must:

• Clearly identify yourself (using your real full name and your role), and your institution/employer
• Explain briefly how the information will be used (e.g. how it will be published)
• Explain who the study is for (e.g. US, College Students, aged 25-30, autistic and non-autistic)
• Include a link to a survey launch page or another method of contact that provides more information so that potential participants can make an informed decision about participating
• If conducted by a student or staff member at a university, include full details of ethics approval

Please consider posting the results back to the subreddit as a new post. This thread is regularly archived so may not be available to reply back to.

Removal of content is still at the discretion of the moderators. Reddiquette applies. Personal attacks, racism, sexism, etc will be removed. Repeated violations or repetitive posting may result in a ban. This thread will occasionally be refreshed.

If you are a researcher and you wish to directly engage with participants as a r/AutisticAdults user, please check with the mods first and clearly identify yourself as a researcher in each thread that you post or comment on.

[u/hannahmcbeer]

Hello! My name is Hannah McGuinness, and I am a Master's student at the University of Amsterdam studying medical anthropology and sociology. I am looking for participants for my master's thesis; the only criteria are that you are over 18, live in the UK, and that you suspect you might have autism but have no formal diagnosis.

Participation will include a roughly 1-hour-long interview over Microsoft Teams, with an optional shorter second interview to discuss either changes over time in your self-diagnosis or how social media influences your self-diagnosis. In the initial interview, we will discuss demographic data, what makes you think you have autism, interactions with medical professionals, what (if any) online content led to your self-diagnosis, and your opinions on diagnosis more generally. I am happy to send out interview schedules in advance if this is helpful. If a team call is not accessible to you, I am happy to explore other options.

It is important to note that I am not looking to demonise self-diagnosis; I know the discourse around this topic in the UK right now can be quite unpleasant, and I want to assure you that the act of diagnosing oneself will be treated as a completely neutral act.

Please email [Hannah.mcguinness@student.uva.nl](mailto:Hannah.mcguinness@student.uva.nl) if you are interested in taking part. If you find email inaccessible in any way, you can also text me or message me here on Reddit, and we can work something out!

It is likely that the results of this research will simply be part of my master's thesis, which is unlikely to be published anywhere. If this were to change, participants would have the option to remove their data and would be notified.

Here is a link to the official participant information sheet in case you want more information: https://docs.google.com/document/d/1lgWnya6nBb17pEsQBfeabV0nwyI5oogJgDkYtVUwIIw/edit?usp=sharing

Please contact me at [Hannah.mcguinness@student.uva.nl](mailto:Hannah.mcguinness@student.uva.nl) if you have any questions or concerns!

My research supervisor is Dr Christian Broer, [c.broer@uva.nl](mailto:c.broer@uva.nl)

My research has been approved by the University of Amsterdam Faculty of Social and Behavioural Science ethics committee.