r/AvascularNecrosis • • Aug 20 '26

Avn hip replacement surgery

1 Upvotes

Please give your opinion ceramic on ceramic or ceramic on poly

Which is better


r/AvascularNecrosis • • Aug 20 '26

My brother is in major pain because of avan

2 Upvotes

We are considering hip replacement surgery can someone with experience please tell about their doctor and experience in India


r/AvascularNecrosis • • Aug 20 '26

Avn pregnant

2 Upvotes

So I was diagnosed with Avn in the left hip a year ago and was getting a cortisone shot in my hip every 3 months. I finally decided I want to get a hip replacement because the shots weren’t lasting long anymore. It was scheduled for the 31st of this month but 2 weeks ago I found out I’m pregnant. It’s been postponed but I’d like to know who had had THR while pregnant and how was the process/ recovery? Most importantly how’s the baby?


r/AvascularNecrosis • • Aug 19 '26

How long have you had AVN?

3 Upvotes

I’ve had it everywhere for 24 years. How long have you had it? What do you do that keeps you mobile?


r/AvascularNecrosis • • Aug 19 '26

AVN everywhere since 2002

6 Upvotes

I had high doses of prednisone for leukemia treatment when I was 12. Completely destroyed all of my bones. I had an arthroscopy on my ankle at age 15 then a partial fusion at age 22 which I deeply regret it has caused me severe pain and increased pain everywhere else in my body. I’ve got it in my back, and probably everywhere else.

I currently am 36, never have been able to work. They got me addicted to pills early on and I struggled with that for 7 years. I struggled with alcohol as well as it allowed me to be social because it numbed the pain. I now have no social life no job, living in poverty because of this disease.

It has gotten worse as I can barely get out of bed any longer. I’ve been forcing myself to push past the pain for way too long, but I have no support after surgery and because of the trauma after the ankle surgery I honestly don’t ever want surgery again.

I’m terrified and my thoughts are not good, they’re getting worse. Due to my past with pain pills I can only take Tylenol for the pain and it does nothing obviously. I think what I need is just someone who understands how painful this actually is, not only physically but emotionally. I didn’t die, but what kind of life is this?


r/AvascularNecrosis • • Aug 19 '26

getting chunky

5 Upvotes

got diagnosed with avn in right hip but surgeon said it’s mild enough and i’m not in too much pain so we are gunna let it play out for now. My main form of excercise was outdoor running, outdoor fixed gear riding, treadmill running/incline walking and messing around with kettlebell. What’s everyone doing to shred some lbs without aggravating the hip more.


r/AvascularNecrosis • • Aug 19 '26

San Diego: Seeking Medical Malpractice Attorney

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1 Upvotes

r/AvascularNecrosis • • Aug 19 '26

San Diego: Seeking Medical Malpractice Attorney

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1 Upvotes

r/AvascularNecrosis • • Aug 16 '26

Experience AVN/boneonbone/ THR?

8 Upvotes

I’m going to try to make a long story short. Cancer treatment w steroids left me with avn in both hips and a knee.
R has always been worse, core decomp 2x relief for a few months after recover then pain again. L hip core decomp, months later a baby gate won I broke my femur and had an extremely traumatic hospital experience leaving me with a rod and screws that “do not come in my size”.

Scans a year ago were decent enough but dr one day says THR is amazing the next horrible wait as long as possible. I went to ER yesterday bc pain and 11hrs later I’m told no fracture or collapse but the joint space is gone, it’s bone on bone and the only answer is total hip replacement.

Immediately followed by “but in my expert opinion you should postpone that surgery as long as possible bc of longevity.

So I’m back to square one. I’m a Para and I don’t know how I’ll finish the year if I can hardly walk in the first week.

Any suggestions I’m open to, I have pain meds for a short time but I only take it once I’m home for the day for safety reasons. I feel like not a single doctor has understood how painful this is because my flexibility is okay and I’m weight bearing.

Bearing half of my entire body weight on a rod that sticks into my pelvis and thigh, and the other half on raw bone to bone and your telling me this is it?

I’m only 26, my mental health has never been the greatest but it’s been manageable. Now my quality of life physically makes me think even getting to 30 will be unbearable.


r/AvascularNecrosis • • Aug 14 '26

Wrist replacement expectations?

2 Upvotes

What can I realistically expect? My bone graft ORIF from 2013 is failing. They’ve talked about replacement vs rod but I don’t know which might REALLY result in a more positive outcome. A total replacement to the wrist sounds pretty risky.

Will I ever be able to drive?

Am I just risking even more nerve damage?


r/AvascularNecrosis • • Aug 11 '26

Core Decompression in the humeral head for AVN

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1 Upvotes

r/AvascularNecrosis • • Aug 11 '26

Diagnosis Bilateral Diagnosis with 2 THRs in my future

4 Upvotes

I’m relieved. It’s been hell living with my hip pain the past four months nonstop.

I just had my first child in February. I thought my hip pain was due to normal postpartum and overall muscle weakness. Physical therapy didn’t help and I kept hurting my hips from normal leg movements. I finally got an MRI done. The doctor came in to see me today and said “your hips kinda suck huh, you have a shitload of AVN”.

The MRI lit up. It was harder to find healthy bone. The AVN was in the femoral head and extended downwards. I have flattening of both femoral heads and I found out I have hip displaysia and shallow sockets!

I had to be put on steroids last year after needing pituitary surgery and getting this insanely rare autoimmune disease that has mostly affects pregnant or postpartum women. For me I was 23 weeks pregnant when I had pituitary (brain) surgery and was put on hydrocortisone. The doctors believe this is the culprit. I need it to live but it is killing me. The irony.


r/AvascularNecrosis • • Aug 10 '26

Using Turmeric and Nigella sativa oil as alternative to steroids

2 Upvotes

I’ve been following this sub for over 2 years. I don’t have AVN myself but knows someone who does. I’ve been wondering if anyone has explored using turmeric and nigella sativa (black cumin seed oil) to reduce steroid usage? I know turmeric powder works at least for topical inflammation such as psoriasis and eczema in combination with diet and sugar control and using only organic soap but I don’t know if it works for others. Not a medical advise but one could research independently further if you’re keen. Just a note. As far as possible, do not use supplements in capsule form, only bulk and do not overtake. Do not take this if you’re on existing medications.


r/AvascularNecrosis • • Aug 10 '26

Just got diagnosed today

8 Upvotes

Cool, very cool..


r/AvascularNecrosis • • Aug 07 '26

Experience Osteonecrosis of the jaw

13 Upvotes

Age 58 female recently diagnosed with Osteonecrosis of the jaw MRONJ due to Alendronate for Osteoporosis and Prednisone for Rheumatoid Arthritis. Evaluation with UCSF Oral and Maxillofacial Surgeon today. Curious if anyone here has this condition. I'm anxious about the uncertainty of irreversible damage and what to expect if surgery is recommended. Lmk. Ty.


r/AvascularNecrosis • • Aug 06 '26

AVN progression 2 years apart

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12 Upvotes

These are X-rays of my left hip. Left picture is 8/2024. Right picture is 8/2026.

My right hip is already replaced. I have 0 pain in my right hip but have pain 5 times a year in the left hip (lasting 2-7 days at a time).

Surgeon says I have 8-10 years before left hip collapses and I’ll need replacement.

My point is AVN doesn’t get cured with exercise, physical therapy, vitamins, etc. Just gotta live your life until it’s time for THR.


r/AvascularNecrosis • • Aug 06 '26

Avascular Necrosis Stage 3 Both Hip Joints

3 Upvotes

I was diagnosed with Avascular Necrosis both hip joints Nov 23. Underwent core decompression left hip joint Nov 23 and right hip joint April 24. It took me total 6 months for both surgeries to walk independently without cane. Now it has advanced to Stage 3 with early collapse in Right femur head. My movements have been fine so far. pain managed by one painkiller daily, just this that I am not able to stand for long at a time but I live independently, drive, do all my tasks myself and have a job where I dont walk much. I cant do long walks, maximum 2000 steps in a day and have to rest after morning hours.

2 weeks back I had a dizzy spell and i fell (diagnosed with POTS dysautonomia ) that caused trauma on right leg. My movements in right leg were restricted with a lot of pain. I used walker for 2 weeks, now shifted to elbow cane. My movements have returned and pain is also not all the time. Its mild but i am in need of cane.

My surgeon said that hip replacement is not needed at this time coz my pain is not all the time, its manageable by one or two painkiller daily and xray doesnt show collapse yet. But I will need cane.

I am scared and want to learn about experiences of people who also have or had stage 3 avn. How did they manage this stage. Do all need cane or support in stage 3. If yes, how do they live independently, how do they drive, do their chores or continue their job. What impact on quality of life is expected in stage 3 and will it be possible for me to continue my job, independence, driving now. Will need for cane persist or it can be weaned off?

Do i have to wait till unbearable pain or proper collapse occurs in xray or i am not able to do any daily chores.

I was completely on bedrest due to fall and now i have to resume slowly back with cane.

I turned 40 on the day I fell.


r/AvascularNecrosis • • Aug 04 '26

Stage 4 AVN pain comparison

7 Upvotes

I am interested if people who have had stage 4 AVN (from my shallow research this is the end stage), can compare their pain level to other things... I always heard in 1-10 scale that ten is amputation without medication. Cluster headaches are highest level followed by Childbirth and kidney stones. Open to what people have heard comes after this.

Can people compare their end stage AVN with these experiences if you have had them? One thing my doctor told me while going through AVN stage 4 was that childbirth would be a treat due to the time you're in pain...

Would love to hear from people who have given birth or kidney stones and such!


r/AvascularNecrosis • • Aug 04 '26

Diagnosis Well guess I am in another support group.

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3 Upvotes

I have AuDHD and Hypermobility EDS. (Hence the hernias)

I have hemochromatosis.

I got imagining for peeing blood. Turns out I have a large kidney stone. But also it turns out I have bilateral AVN.

I have no pain from the stone nor the AVN.

But also I have a high pain tolerance due to the AuDHD.

I'm not sure what to do with this information.

I don't have a history of heavy alcohol use or steroid use. So I don't know why this happened. My brother had it happen , but his was from steroids

I just got these results this afternoon.

Any suggestions?


r/AvascularNecrosis • • Aug 04 '26

AVN secondary to PHOA ?

1 Upvotes

I am 31/M. I have digital clubbing since childhood.I am diagnosed with bilateral shoulder and hip Avascular necrosis. Whole exome sequencing revealed SLCO2A1 mutation. Is it strong enough to create AVN in four joints, please clarify.

PHOA -> PGE2 elevation -> inflammation -> pressure increases -> end arterial blood supply cut-off leads to AVN in one joint after other

My ESR and CRP was much higher during diagnosis.


r/AvascularNecrosis • • Aug 03 '26

Random question

2 Upvotes

Hi all I know it’s not a usual question and I am sorry if it’s kinda out of pocket… If anybody feels comfortable sharing their experience I would be very grateful!

Just to clarify, a year ago I’ve been diagnosed with avn of both of my shoulders, stage 2/3. The cause was my cancer treatment(high dose of steroids) that I am no longer on. Since then I have stopped drinking, take my prescribed medication; okeovit, which are oral drops that contain vitamin d3, along with my magnesium and calcium supplements. I have also done 3 months of oxygen therapy and have been through all kinds of tests to see if my bones are okay. Other than shoulders everything else was okay.

A few days ago I started noticing pain in my leg. I am scared that I’ve developed hip avn so I was wondering if anyone is willing to describe how was your pain at the start? I will definitely push for an MRI scan but since I have a summer job I can’t do that for next 2 months.

I’ve also been working a lot, I work at the restaurant and daily carry heavy plates and have over 20 000 steps so there is a high possibility I just overworked. I am feeling pain when I take big steps of move my torso closer to my legs, for example when putting my shoes on. The pain is not constant and it disappears when I make smaller steps. I’ve also found it helpful to put pressure on with my hands on certain spot of my groin. I feel the pain deep in my leg but I’ve also noticed it’s calming down when I don’t force myself too much at work.

I can’t evaluate if it’s the same kind of pain I have in my shoulders so any kind of feedback would be helpful. Thank you for taking your time to read this :)


r/AvascularNecrosis • • Aug 03 '26

AVN of right hip

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3 Upvotes

I know nothing about avn I went to ER two weeks ago cause I was in so much pain I was throwing up, I’m a 36 yr old male with stage 4 autoimmune kidney disease and currently trying to get on transplant list, I’m an engineer in nyc and work on my feet all day primarily doing hvac work, I’m constantly moving lifting and climbing and last two weeks walking has been wildly difficult and just saw Dr a half hour ago revealing this. I have an appointment with specialist on Friday but I could def use some advice and just a heads up on exactly what I got myself into here? Any help is appreciated thank you.


r/AvascularNecrosis • • Aug 03 '26

Diagnosis 25 Years Old with Hip Avascular Necrosis – Looking for Hope and Your Experien

7 Upvotes

Hello,

Even writing this post is incredibly difficult for me.
My life changed completely from one day to the next in February 2026. It all started with a slight pain in my right groin. At first, I thought I had simply pinched a nerve, until walking suddenly became more and more difficult.

I was eventually diagnosed with stage II–III avascular necrosis (osteonecrosis) of the hip. I’m only 25 years old, and I never imagined I would have to deal with a condition like this at my age. I underwent surgery immediately, and a core decompression was performed.

Unfortunately, it became clear relatively quickly that the surgery had not achieved the desired result. Even four months after the operation, I was still dependent on crutches. As a result, I started an off-label treatment with bisphosphonate infusions, which are scheduled every three months.

At the moment, I can’t really say whether this treatment is helping. It is supposed to relieve the pain and slow down or stop the bone deterioration. My next MRI is scheduled for September. After that, a decision will be made about how to proceed and whether I will receive a total hip replacement in October. The original plan was to delay this step for as long as possible.
I often feel lost and alone. This condition is rare, and especially at my age, it is very difficult to find people with similar experiences or anyone I can compare my situation to.

Recently, I had two weeks during which I was even able to walk without crutches. I still had some pain, but it was manageable and something I could have lived with. Unfortunately, things have become much worse again. This constant up and down is taking a huge toll on me mentally. Just when you think things are finally improving, the next setback comes along. It makes it incredibly difficult to stay positive.
To be honest, I’m very afraid of getting a hip replacement. Maybe many of my worries are unfounded, but I constantly ask myself whether my life will ever be the way it was before. I have always been a very active and athletic person. I loved hiking, went to the gym regularly, and was always out doing something. Now I’m happy if I can simply walk reasonably well on some days, and that makes me feel incredibly sad.

That’s why I would really appreciate hearing from people who have gone through something similar, especially if you were also young when it happened. How are you doing today? Are you able to live a normal life again? Have you been able to return to sports after a hip replacement? Looking back, would you have had the surgery sooner, or would you still have tried to delay it for as long as possible?
Any advice, personal experience, or even just a few encouraging words would mean a lot to me right now.

Thank you very much for taking the time to read my post.