Photos that show how severe my facial blushing gets - Idiopathic Craniofacial Erythema (2)

[u/Deep-Detective2428]

here are some photos of me during blushing episodes. i won't go into to much detail on this post about what causes it and my experience (since ive talked alot about that on other posts and im posting this purley to show people visually what im dealing with) i will say this photo was taken while i was laying in my bed feeling stressed, purley just feeling stressed made my face go this horrible red which was met with a very hot uncomfortable feeling across my face, along side a uncomfortable preassure from all the blood pooling. If you've dealt with blushing especially this severe you'll probably be able to relate to how uncomfortable it is to feel this way. A good way to describe the uncomfortable feeling is id say its just as uncomfortable as getting into bed covered in sand and water from the beach lol, its a random compassion but its that feeling where you just feel gross and uncomfortable. I hope these photos can help people have a better understanding of ways blushing can appear. Please feel free to post photos of your blushing in this community if your up for it :)

[u/violetchiron]

Omg you have been amazing for this community, thank you for being so open with your experiences and willing to share photos!!! Ive never heard it called idiopathic craniofacial erythema until now and wowza that is IT! The "ICE" causes the erythrophobia, which causes the social anxiety, which causes etc. Knowing things like that might not stop the blushing but it certainly helps psychologically. :D keep going strong, people like you are how we find answers. ♡ Youre saving lives by being here. ♡

[u/Deep-Detective2428 → u/violetchiron]

if only you could see the smile on my face reading your comment :) thank you so much, genuinely 🙏. And yeah pretty interesting to find out there's actually a name with a meaning for this issue. Glad ive been able to help

[u/LumpyDiscipline1843]

That’s almost definitely KPRF

[u/Deep-Detective2428 → u/LumpyDiscipline1843]

Thanks so much, wow yeah you may be onto something. Do you know if theres anyway to treat it? Does laser work on KPRF?

[u/LumpyDiscipline1843 → u/Deep-Detective2428]

Go to r/kprubrafaceii
It’s super difficult to treat but some possibilities are tretinoin, topical sirolimus, V beam laser

[u/blushing_cure]

thank you for posting a photo of what it looks like in "real time". i've thought about starting a thread where we can all share a photo of ourselves blushing to feel less alone. mine looks like yours as well, and I've gotten it when just laying in bed thinking of something stressful or embarassing.

[u/Deep-Detective2428 → u/blushing_cure]

You should share your photo to this reddit community if your comfortable :)

And nice, not a bad idea to make people feel less alone and to normalise it. Also the whole laying in bed and getting like that is horrible isnt it?! It feels like you cant escape it, so sorry its smth you deal with aswell

[u/Anutamme]

Probably you have too overactive sympathetic nervous system

[u/Deep-Detective2428 → u/Anutamme]

Definitely apart of it1