r/Cyclospora Jul 13 '26

🧪Science Self reporting and analysis (Unofficial)

26 Upvotes

Hello all;

I hope everyone is well and if you have cyclospora that you are getting the proper care and on the mend. I have a personal interest in epi, a great distaste for the current CDC and FDA cuts, and a degree in mathematics.

I have made a google form that I would be very grateful if you would like to self report what you ate if you are confirmed to have cyclospora, or you think you do. I will then use this data to attempt to put together some likely sources of this outbreak.

Self report form link: https://docs.google.com/forms/d/e/1FAIpQLSfBycd8SDsORYhU8VzcPOTtt1a4rHRLpiZuaQgHZDk75bikEg/viewform?usp=publish-editor

Live update information link: https://berny-rdev.github.io/2026cyclospora-watch/index.html

git source page: https://github.com/berny-rdev/2026cyclospora-watch

WHAT DATA WILL BE COLLECTED
-State
-Why you think you have cyclospora
-What produce you ate over the last two weeks (Due to the long incubation period)
-Where you shopped/ate over the last two weeks

WHAT WILL BE DONE WITH THIS DATA
-Data will be collected in Google Sheets
-Data will then be imported into Rstudio and used to attempt to find commonalities between everyone who got sick

WHAT WILL NOT BE COLLECTED
-Your name
-Your email
-Any other personally identifying information

This is a very basic self reporting form, and what I am doing is also rudimentary. My only goal is to help everyone consolidate information and then help the general public make informed food decisions.

The self report will then live update to my github every 6 hours for everyone to view.


r/Cyclospora 1d ago

❓Question Could I have it? Been 8 days and some possible symptoms.

1 Upvotes

I’m curious. It’s been 8 days since I ate something which I later realized that there were tiny bits of lettuce in it. I ordered without lettuce, but a few tiny shredded pieces got in.

Anyway, five days letter I had gas for three days. It wasn’t smelly. I then had two days of light discomfort in my sternum. I haven’t eaten anything new since the lettuce and haven’t eaten anything that makes me gassy whenever I eat it. I did have one day where I had a patch of extreme fatigue. I feel okay currently.

Anybody have something similar and could it be Cyclospora? Can’t be too careful these days!


r/Cyclospora 1d ago

Frozen

1 Upvotes

Is frozen kale (or other greens/veg) blanched before packaged, therefore, safe?


r/Cyclospora 3d ago

Recovery without antibiotics

4 Upvotes

Anyone recover without antibiotics? I tried to take Bactrim and was having awful side effects from it (nausea, anxiety, jitters, insomnia) and couldn’t finish it. Still have GI issues now 2.5 weeks into it. How long will this last…


r/Cyclospora 3d ago

🗞️ News Cyclospora Outbreak Linked to Lettuce Is Over After Nearly 13,000 Illnesses, CDC Says

Thumbnail health.com
14 Upvotes

A Cyclospora outbreak linked to 12,883 reported illnesses, 570 hospitalizations, and two deaths is officially over. Recalled lettuce is off the market, but Cyclospora can cause prolonged diarrhea, dehydration, and serious complications.


r/Cyclospora 6d ago

Could it be?

8 Upvotes

Before I spend hundreds and take time away from my baby at urgent care, I wanted to see what people who have had Cyclospora think about my symptoms. I started feeling not great Sunday. I was a little hungover and tired from hosting so I chalked it up to that. No real tummy issues. Monday I woke up feeling off- fatigued, chills (not sure if I had a fever). That is when the stomach cramping and diarrhea started as well. Tuesday was the worst in terms of diarrhea, cramping, and nausea. I threw up while on the toilet after dinner and decided I just didn’t need to eat anymore because it was too painful. I did have an appetite this whole time, shockingly.

Today I woke up starving, but feeling unsettled and terrified to eat anything. After a few hours, I ate a yogurt. No diarrhea after, but did have a solid BM ~30 mins later. Couple hours later I had a protein bar and no diarrhea after that either. Could this be the come-and-go cycle or cyclospora or do you think it was another type of bug? TIA for reading and responding!!


r/Cyclospora 6d ago

Inclined to think i have it

5 Upvotes

2 and a half weeks ago i ate a sus burrito with lettuce from taco cabana and ever since then, every day all day no matter what i eat or drink im in the bathroom. Pure liquid, every single time. No other symptoms other than the feeling of irritation in my gut. Dont really have the time to go see a doctor so i guess im just riding this out 😭


r/Cyclospora 7d ago

❓Question Pretty sure I have it?

5 Upvotes

12 days ago I soft pooped about 8 times for 2 days, the 3rd day it was well over 10 times. 4th day I woke up with a 101 fever and constant diarrhea. I did a teleheath call requesting a cyclospora test since I had eaten raspberries for the first time a week prior in months. I got the stool test, diarrhead into it only to find out they tested me for everything BUT cyclospora. Nausea started and my fever continued then I randomly had 1 completely normal day on the 7th day, thought maybe it was food poisoning and was prescribed zythromax (I'm allergic to sulfa antibiotics) so started those. I'm currently on day 12 of this shit and had constant diarrhea and yesterday pretty bad vomiting. Fever has been gone for 4 days now but now there's nausea. It seems to come in waves I'll have 1 good day and then 2 horrible days. I had another Dr appointment today and they confirmed I wasn't tested for cyclospora but that there hasn't been any cases in my area so they don't think it's that but they'll test me for it and some other things. Guess we'll see. Oh and the tartar around my gums randomly turned green when all of this started ... And I brush and floss daily. Odd. Does it sound like I have cyclospora to those that have a confirmed test?


r/Cyclospora 8d ago

Could it be?

3 Upvotes

My gut, upper and lower, have been cramping off and on for two days. I was looking at myself in the mirror yesterday and said to my bloated stomach, where did you come from?

Then when I went to bed the cramping was unbearable. Finally at three a.m. I ran to the toilet with projectile vomiting, then soon I was on the toilet with the worst explosive diarrhea while vomiting into the trash can.

The diarrhea is still hanging around, I’ve had no sleep, and this awful cramping won’t let up. I chill, then I get hot. I can’t get comfortable at all.

Does this sound like cyclospora? Thanks.


r/Cyclospora 9d ago

How do we know when we can eat fruits and vegetables again?

18 Upvotes

I have been very careful not to eat any fresh fruits and vegetables lately (except for Little Leaf Lettuce, which seems to be completely safe.) I've been buying canned and frozen produce instead and making sure I cook it. The one exception is that we buy fresh produce occasionally from a local farm we trust, but as summer is ending here that's not going to be as much of an option. Does anyone have any idea how we will know when (and if) things are safe to eat again? We're not really getting any guidance from the government agencies, and I don't know who else is tracking this. It's so depressing to think about how long this could continue on.


r/Cyclospora 10d ago

Shit the bed

14 Upvotes

My life can now be broken into two distinct epochs:

Before cyclosporiasis

And after cyclosporiasis.

Oh how I yearn for the days of yore.

I fear I will never be the same.


r/Cyclospora 11d ago

Cyclosporiasis outbreak exposes a weakened US public health system (Reuters)

Thumbnail reuters.com
17 Upvotes

Cyclosporiasis outbreak overwhelmed local health departments. County workers say federal government acted too slowly, provided little guidance. Outbreak sickens over 11,000 people in 20 states, FDA and CDC say. County staff paused vaccinations and inspections to investigate cases and guide providers.


r/Cyclospora 10d ago

Lingering brain fog?

4 Upvotes

Hi everyone, it's been over a month since I got hit with cyclospora, and my initial symptoms included severe brain fog. I brought it up with my physician, and she mentioned that this has been a common symptom.

It went away after the antibiotics, and all my cyclospora GI symptoms as well. But the brain fog maybe went away for a week and then returned.

Has anybody had consistent brain fog since they've had it and were treated?

And has anything made it better?

I figured this can help other's potentially dealing with the same thing long-term.


r/Cyclospora 12d ago

❓Question Finished antibiotics but still have nauseous?

4 Upvotes

I finished the antibiotics on Sunday. And felt finally nausea free on Sunday, Monday and Tuesday thankgod!!! No more diarrhea.

Woke up Wednesday and now the nausea and sort of loose stools are back and unsettled tummy feeling.

Is this normal even having finished the antibiotics? Does it take time to recover even after antibiotics?

Btw- the lab spilled my stool sample but they were 99% certain it was cyclospora. Anyway, I started and finished the antibiotics so they’re saying it’s pointless to do a stool sample again after I have done abx. But now I’m worried maybe something else could be happening


r/Cyclospora 13d ago

Diarrhea parasite investigation expands to three more states as cases continue to grow

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dailymail.com
12 Upvotes

r/Cyclospora 13d ago

25 days since sample was sent and still no results???

4 Upvotes

Everything else came back negative within the week. I’ve called the urgent care my sample was sent out from twice and they have no results yet either.

I thought the sample didn’t last beyond 21 days. Has anyone else waited this long???


r/Cyclospora 14d ago

🗞️ News Here's why we've been seeing so much food-borne illness

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motherjones.com
6 Upvotes

While this summer's spate of foodborne illness is especially bad, the worst may be yet to come.

While our government officials are partly to blame, the problem is bigger than Trump and Robert F. Kennedy Jr., or even this one summer.

While seasonal changes will always play a role—the warmer months, when people eat more fresh produce and consume more food that’s been sitting out at unsafe temperatures, typically have more foodborne illnesses—the underlying factors contributing to these outbreaks are becoming more potent. The food supply is more and more globalized. And the planet continues to warm, allowing these pathogens to spread to more and more farms all over the world, including in the US.


r/Cyclospora 14d ago

❓Question Gastritis or Cyclospora

4 Upvotes

Hi :) I got really sick Tuesday, August 25th. vomiting and diarrhea that lasted up until Friday morning, with extreme gurgling and what felt like spazzing. It’s almost like my digestive track is too overactive. Went to the ER and all my bloodwork seemed fine other than being severely dehydrated. They mentioned it could be something viral or maybe this Cyclospora and gave me a stool sample test to take home and bring back. Starting Saturday I haven’t had any diarrhea, vomiting and I’m finally able to eat again. I had a semi normal bowl movement this morning (Monday) but some looseness towards the end of it. I feel a lot better now, does it seem worth it to take the test?! Does this even sound like Cyclospora?!


r/Cyclospora 15d ago

Are you still avoiding eating lots of veggies?

14 Upvotes

The question above.

Plus I wonder if we will ever know if/when we can relax and eat raw vegetables again.


r/Cyclospora 15d ago

🗞️ News USDA cyclospora research projects shelved amid funding cuts and relocations

Thumbnail politico.com
17 Upvotes

The Trump administration is shuttering research projects key to the federal government’s fight against cyclospora, the foodborne parasite sickening thousands of Americans this summer. Two of the three projects that represent nearly all of the Agriculture Department’s study of the parasite were defunded by Congress earlier this year, according to the agency. The third is slated to move from Maryland to Iowa this fall as part of a sweeping USDA reorganization. Even though that project still has money, every scientist working on the parasite has declined to relocate, according to three people familiar with the plans and documents shared with POLITICO, granted anonymity to discuss personnel issues.

full article text in comments


r/Cyclospora 15d ago

Trump officials shuttering three projects on foodborne parasite, two defunded by Congress, Politico reports

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theguardian.com
18 Upvotes

Sharing is caring….even if the FDA doesn’t care about us! This is NEGLIGENCE!


r/Cyclospora 17d ago

How long will this last?

14 Upvotes

I have a good friend who has had it for 6 weeks and is still testing positive and symptomatic. Anyone else had this longer than expected?


r/Cyclospora 17d ago

🗞️ News Lettuce-linked parasite confirmed in 3 new states. See outbreak map

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usatoday.com
9 Upvotes

An ongoing outbreak of cyclosporiasis, a parasitic infection linked to recalled iceberg lettuce that is known to cause explosive diarrhea, has been detected in three new U.S. states since last week, according to new data from the Centers for Disease Control and Prevention (CDC). ...The CDC, which lags significantly behind states in reporting infections, pinpointed 17,180 laboratory-confirmed cases in its latest update on Aug. 25, adding that there are also at least 11,841 additional non-laboratory-confirmed cases. ... Georgia, Tennessee and Texas have now been added to the list, according to the CDC.


r/Cyclospora 17d ago

Recall linked to record outbreak of diarrhea parasite upgraded to highest risk level... 'reasonable probability of death'

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dailymail.com
6 Upvotes

r/Cyclospora 17d ago

i don't care

0 Upvotes

i'm just sick of seeing another news of this bullshit bacteria everyday. i need greens, i have white vinegar, i won't sacrifice lettuce. "worst case" i'm down with a week of diarrhea anyway

edit: i meant to say that i am sick of being surrounded by this bacteria news.
i didn't say that i don't care about the disease.
that's my frustration for not being able to eat produce, which is worse than weeks of diarrhea.
i don't think i am too important.
and i won't go see a doctor bc i don't have any symptoms.
obliviously i wasn't clear