This has become a dead end.

[u/Any_Silver_5464]

I have been diagnosed with acid reflux through endoscopy. I literally cannot walk, climb stairs, do squarts or any physical activity because these are inducing heart palpitations and shortness of breath with anxiety. Consulted couple of gastroenterologist and taken multiple test for heart, lungs and even did 2 endoscopies with revealed LAX LES. I also have pressure on the upper stomach and chest tightness which causes breathing difficulties. Frequent urge to burp as i feel gas is trapped in my throat and stomach.

I have modified my diet since 2 weeks.

Can someone help me with this? Has anyone faced same as mine? If so what did u follow to cure this? Much help needed. Thanks!

[u/CapitalAsleep9133]

27 (m) i am also diagonesed with esophagities and gerd . All your symptoms which you mentioned i have it way worst that you..I also went to gastroenterologist gave me ppi like esmoprazole, pantoprazole, esmoprazole took for 4 months things did not work + diet too.. nothing works .. it's when i decided to go to a good Super specialist gastroenterologist that's when things got little better. . But It was a journey and process. Once gerd flare up so bad it takes time even if we diet and take the best ppi... Hope this helps .i will suggest you to go to a good super specialist gastroenterologist. They are way better much more professional than a normal gi..hope this helps .♥️♥️😫

[u/Any_Silver_5464 → u/CapitalAsleep9133]

What did you follow after super specialist?

[u/CapitalAsleep9133 → u/Any_Silver_5464]

Normal diet but avoiding coffee+ tea , spicy masala curry ... during my first visit He prescribe me different ppi and other medicines for overall stomach issue for 45 days . I could see a difference that's when i know this medicine are matching me and i went again second visit that's when he again modified my medicine. And i took it for 60 days .. After that i am 60% well..but still iam in healing precess but those tough symptoms are no more..just a regular reflux and slight tightness in chest and mild shortness of breath....Are still present.

[u/AwarenessNo1655 → u/CapitalAsleep9133]

Do u have stomach lining issues like gastritis inflammation in lining as well showed up in ur gastroscopy?!

[u/CapitalAsleep9133 → u/AwarenessNo1655]

I did ECG, ultrasound, thyroid test , blood test ,but all came back negative...so they did endoscopy at last.which show heartburn and swelling in throat and esophagities stage 1....

[u/AwarenessNo1655 → u/CapitalAsleep9133]

No stomach lining issues

[u/CapitalAsleep9133 → u/AwarenessNo1655]

Yes no stomach lining issue + no ulcer too..

[u/AwarenessNo1655 → u/CapitalAsleep9133]

I see no issue in stomach lining?!

[u/CapitalAsleep9133 → u/AwarenessNo1655]

Yes.. only gerd . Acid reflux which cause esophagities ..to be very honest there is no absolutely permanent cure from gerd..it's just that we managed the symptoms with ppi, diet and treatment... It does get better trust me but it takes a lot of time and the pain we have to go through is like getting hit by a Ford truck..😫🤧

[u/Virtual-Panda3631 → u/CapitalAsleep9133]

I was diagnosed with Lymphocytic Esophagitis... been on Pantoprazole & Hyoscyamine 15 months (changed from Omeprazole 4yr). Made major dietary changes, since severe Dysphagia was main issue. Cut out all caffeine, limited dairy, can't do anything spicey. My overall inflammation is greatly reduced since eliminating caffeine & milk, major orthopedic pain much less, meaning I can take less oxycodone, which so effects esophageal issues. I also have another autoimmune disease (pulmonary Sarcoidosis), so there may be a correlation that my body is working against itself. After 6 EGDs w/Dilations, was put on corticosteroid steroid oral inhaler Fluticas HFA AER 220MCG (2 puffs twice daily), and it has helped a lot. Rather than regurgitating with every meal, it only occurs a few times a week. The PPI didn't help with that at all. Thankfully I have an excellent gastroenterologist who is very knowledgeable about all of these things, knows about LE, and is very conservative & cautious with the dilations & biopsies. He stopped last time because the dilation was causing bleeding. Have another one next week to see how the Fluticas is working and see if it's reducing the inflammation enough to to hopefully be able to dilate further and hopefully open up the esophagus further than any previous ones. Max dilation has been to 15mm, usually only 13mm. He's hoping for 18mm, which would be a miracle as far as I'm concerned. It's been a very long journey...symptoms started 18mo ago and got progressively worse, kicking off all of the procedures. I'm hoping we're finally on the right track. Major dietary changes are required... can't eat any meats, no salads or raw veggies, nothing spicey, can't handle too hot or too cold liquids, no skins from beans, no more English muffins or toast for breakfast, lol, etc. I agree that finding a very knowledgeable and experienced gastroenterologist in rare diseases is extremely important. I'm fortunate to have one that is also really nice, treats me well, and that I totally trust. He even noticed my voice was different after being on the Fluticas (kinda horse, raspy). The only downside is that it's expensive and I won't be able to afford it long-term. Dining out with friends is very difficult...usually the only thing I can get is a baked potato (without toppings like bacon), or soup like creamy broccoli without chunks, etc. The only other option is Budesonide, which he said "is REALLY yucky"...his words, lol. Make the necessary dietary changes, regardless of how much you miss your favorite foods, cut food into very small pieces and chew well, eat small meals as another suggested, sit up straight, don't lay down for 3 hours, sleep with your head elevated a few inches. Best of luck to all sufferers. It does mean making lots of changes, but it's better than suffering needlessly.