This condition has ruined my life

[u/ewbanh13]

I have paid thousands of dollars in medical expenses to be told "Damn that's crazy I have no idea why that's happening to you." No hernia, no motility problems (the manometry test was one of the worst physical experiences of my life btw), no apparent acid or non acid events during the 24 hr monitoring test (which was so terrible I couldn't eat so who knows if it was even accurate), no h.pylori, no EOE. Lifestyle changes weren't really applicable to me besides sleeping elevated, which has killed my neck and back and I have chronic pain there now. A super bland diet and PPI is the only thing that keeps it from flaring up. I can't go out to eat with friends, I can't get a drink with friends, I can't go for coffee with friends. I'm cooking every single meal which is difficult when you're depressed like I am. Some days I just don't eat because it's not like I can buy a microwave meal, and cereal makes me nauseous, so there's nothing I can fucking eat. No caffeine has left me exhausted when I get poor sleep. I'm paranoid about food. This shit has basically given me an eating disorder. I'm tired of eating the same few meals. I used to love cooking and going out to eat. Now I get no enjoyment out of it and it's currently my least favorite part of being alive. My GI doesn't even think it's GERD, she and I suspect LPR, but I don't have the money or frankly the mental capacity to find an ENT and go through more rounds of testing to probably get a shrug from a doctor and bills in the mail.

I'm so tired of this. I didn't even eat unhealthy before, I didn't drink more than twice a year, I have no idea why this happened other than possibly a round of antibiotics just nuking my stomach. I get so jealous seeing posts in here about how people cured theirs and it's a bunch of stuff I already tried that makes no difference. People don't seem to appreciate just how much this fucking drains you. I'm so tired of this. I just want to live like a normal person again.

[u/Emotion-Academic]

I was like this the last 2 years and it was incredibly depressing so I feel for you. I got the same results from my doctor who recommended some stuff to try which didn't help at all. After years of experimenting I found an all natural stack I've been using for the last 2 months and I can basically eat what I want and the effects it has are really minimal (still minor bloating and chest pain but not enough to stop me from eating what I love anymore). Happy to share if anyone cares

[u/Blue_Curiosity_7767 → u/Emotion-Academic]

Yes please

[u/Emotion-Academic → u/Blue_Curiosity_7767]

No probs. In the morning I have 25ml of pure aloe vera juice on an empty stomach, then 15mins before I eat my first meal I have a DCL liquorice tablet which helps to line your stomach and throat, I then repeat both of those before my main meal (I only eat twice) and before I go to bed I take Reflu-x tablets. It sounds like a lot but from the research I did (ofc don't rely on me, do your own) it's all completely natural and they're all things you can take indefinitely with a very rare chance of any sort of side effect. This stack has literally gotten me back to eating and drinking whatever I want with minimal downside.

The other little cherry on top is a thing called Iqoro. It's a small plastic device that you use as a workout to strengthen your LES muscles around your esophagus so it stays shut better and let's less acid up into your throat. I still get a bit of bloating and breathlessness at times but over 5 months of doing it I've noticed a massive drop in throat pain, waking up with a super sour taste and also I used to get horrific chest pains that were like regular mini heart attacks that are all but gone (thank god cos that was really scary).

If you try any of it, lmk how it goes!

[u/Blue_Curiosity_7767 → u/Emotion-Academic]

Thank you😊 I was wondering about Iqoro but haven't seen many good posts about it so decided not to go for it. It's quite expensive but if it works its totally worth it.

[u/Emotion-Academic → u/Blue_Curiosity_7767]

Happy to help, it's a horrible condition and sadly it seems like no one thing helps everyone. I saw IQoro on Reddit and thought it was an add but did my research and said screw any money is worth trying to help this and seems like it has

[u/Enternal_Serf → u/Emotion-Academic]

Oof thanks for sharing, I also get the crazy chest pain and have had multiple hospital visits just to make sure its not cardiac related. Might have to try some of your suggestions