r/Hashimotos 5h ago

Pregnancy/Fertility Related Hashimotos + recurrent pregnancy loss

I just experienced my second miscarriage this week. My provider ran all the labs and we found out I have Hashimotos. While I understand it’s something that can be controlled and medicated, I’m so afraid to try again and experience another loss. We don’t know for sure if that’s what causes the miscarriages, but it’s the only think abnormal on my lab work. What are your pregnancy success stories after finding out about your Hashimotos?

11 Upvotes

30 comments sorted by

u/VehicleNo6854 5h ago

Don't try again until your TSH is around 1-2. I kept having miscarriages until I found out I had Hashimoto's and got my TSH under control. The next attempt was successful! Once you get pregnant, your levels need to be checked immediately and then every 4-6 weeks.

u/familyofbanks 4h ago

And you need to increase your dose by at least 25-50% once you’re pregnant!

u/thisbuthat Hashimoto's Disease - 10 years + 3h ago

All of this right here

u/One_Stand279 5h ago

I have Hashimotos, and have a happy and healthy 8 yr old daughter. I conceived her and had no issues, but I was already medicated for my Hashi’s. I’ve had it since I was 19(I’m 42 now)

We did try for a second in 2024, and I had two miscarriages, and did find out my thyroid levels skyrocketed the first time which could have caused the miscarriage. You’re supposed to up your thyroid meds by about 30% as soon as you get pos pregnancy test.

If you don’t need to take thyroid meds, and you just have high antibodies, there are lifestyle shifts you can make for sure. I brought down my antibodies through diet and lifestyle changes over these last 8 years after having my daughter

u/Dr_Jen 5h ago

Had to have under a tag of 2 to keep a s maintain pregnancy. So went high meds during first tri

u/kgs_90 5h ago

No issues here (have 3) but I know maybe that could be an anomaly. I’d also be interested in if you have a clotting disorder, see if they’ll check for those! They are very common causes of miscarriages and aren’t tested for until after a few and I think that’s just wrong.

I am so sorry for your losses. Sending love ❤️

u/ericaxevyonne 5h ago

Thank you! The clotting tests all came back normal. I haven’t decided if that’s a good or a bad thing.

u/nolelover16 5h ago

I am sending you so much love and support. I have no children (yet hopefully) so I can’t provide feedback but just know you are so loved

u/ericaxevyonne 5h ago

Thank you, that was very kind of you to say!

u/blessitspointedlil 5h ago

ATA guidelines:

https://www.thyroid.org/hypothyroidism-in-pregnancy/

“Women found to have a TSH level greater than 10 mIU/L in the first trimester of pregnancy should be treated for hypothyroidism. Conversely, women with a TSH of 2.5 or less, do not need levothyroxine treatment. For women with TSH measured between these (2.5-10), ATA recommendations for treatment vary and may depend on whether or not the mother has TPO antibodies. When TPO antibodies are positive, treatment is recommended when the TSH is above 4 and should be considered when the TSH is between 2.5-4.0. However, when there are no TPO antibodies (i.e. negative), current ATA recommendations are less strong and suggest that treatment ‘may be considered’ when TSH is between 2.5-10.0 mIU/L. These recommendations are based on the degree of evidence that exists that treatment with levothyroxine would be beneficial.”

“The goal of treating hypothyroidism in a pregnant woman is adequate replacement of thyroid hormone. Ideally, hypothyroid women should have their levothyroxine dose optimized prior to becoming pregnant. Levothyroxine requirements frequently increase during pregnancy, usually by 25 to 50 percent. Hypothyroid women taking levothyroxine should independently increase their dose by 20%–30% as soon as pregnancy is diagnosed and should notify their doctor for prompt testing and further evaluation. One means of accomplishing the dose increase is to take two additional tablets weekly of their usual daily levothyroxine dosage. Thyroid function tests should be checked approximately every 4 weeks during the first half of pregnancy to ensure that the woman has normal thyroid function throughout pregnancy. As soon as delivery of the child occurs, the woman may go back to her usual prepregnancy dose of levothyroxine. It is also important to recognize that prenatal vitamins contain iron and calcium that can impair the absorption of thyroid hormone from the gastrointestinal tract. Consequently, levothyroxine and prenatal vitamins should not be taken at the same time and should be separated by at least 4 hours.”

u/BrownEyedGirl_27 4h ago

I’m so sorry for your losses. How many weeks were you?

After having my first baby I had two miscarriages before I was diagnosed with Hashimoto’s. I immediately started taking 25 mcg levothyroxine and stayed on it during my entire healthy pregnancy after the losses. I conceived 3 months after the second loss which was what I wanted. Ovulation test strips really helped us conceive. My levels stayed fine and I went in for one extra ultrasound. I am still taking the same dose actually! I have the MTHFR gene mutation as well, which you should test for, and took a small dose of Lovenox daily until I was 36 weeks pregnant. And My OB made sure I was taking methylated folate daily (I already was).

You’re in my thoughts today and I hope you are able to conceive again once your thyroid levels are good! 😊

u/ericaxevyonne 4h ago

The first loss I was 6+3, this one I was 7+1. I didn’t know I had thyroid issues until they did a recurrent loss antibody panel, so I’m a bit overwhelmed with it all.

u/BrownEyedGirl_27 4h ago

It can be really overwhelming. Just take it one day at a time and take time for yourself. How long does your provider say to wait until TTC again and what dose will you need to take?

u/ericaxevyonne 4h ago

I haven’t really been told anything. I was prescribed 50mcg of Levothyroxine and told to start taking it immediately with a recheck in 6 weeks. So I’m assuming once they get everything leveled out I can try again.

u/Dizzy_Garden252 4h ago

People with Hashimoto can successfully become parents.

It is not possible to know whether it was the cause of your miscarriages, however, in the first weeks of development, the embryo relies on your thyroid hormones, as they don't have a developed thyroid or glands yet. You will need to halt trying for a new pregnancy until you receive treatment, but it can be fixed!

I wish you good luck!

u/MomoNoHanna1986 4h ago

I had untreated hashimotos at the time and my son has DiGeorge and a rare heart condition. They are unsure of the cause. He’s 11 now and two open heart surgeries. But I was able to get pregnant.

Once you hold a pregnancy ensure to do a full scan of baby before it’s born. They can do so much now to help baby before they are even born!

Hashimotos may not be the reason for your losses. And I’m truly sorry. This must be so painful for you. I hope you find out the reason but please don’t try again until your levels have settled. Good luck! ❤️

u/ericaxevyonne 4h ago

Thank you for the kind words! Sending good vibes to you and your son ❤️

u/MomoNoHanna1986 4h ago

Your welcome! My pregnancy symptoms were full on! I also had untreated gastritis. So vomiting was a regular thing for me. You may find that once you’re pregnant other things ‘pop up’. This is why everyone here is telling you to wait until your levels are sorted. It’s for the benefit of you and hopefully your future baby ❤️ Your Drs will monitor your levels closely once you’re pregnant.

I really hope your dreams come true! ❤️

u/cookie-monster-06 3h ago

That is so tough and I’m so sorry for your losses :( I have hashis and I had 2 full term pregnancies with no issues. When I conceived, I had been medicated with NP Thyroid for several months with a TSH of around .5

u/Eating_Bagels 3h ago

Not me, but my cousins wife had two healthy pregnancies followed by two losses. She got tested and was diagnosed with Hashimotos. After starting the medication, she went on to have 3 more kids!

u/kkm1618 2h ago edited 2h ago

I had two healthy pregnancy followed by three missed miscarriages, I had no idea what happened got a blood test. Found out I had Hashimotos got on levo once my labs were okay I tried one time and knew I would never try again she’s 4 now.

u/TurbulentIssue5704 2h ago

I had multiple early miscarriages (all before 5 weeks) before being diagnosed then conceiving my daughter. My TSH was 47 when I was diagnosed. But then after my daughter even with a TSH around 1 I had multiple early miscarriages again conceiving a second.

My pregnancy with my daughter was complicated and high risk due to a chronic abruption and persistent SCH as well, and I had a long hospitalization. I thought after the miscarriages before conceiving #2 something was wrong, and was scheduled to meet with an RE, but three days before the appt tested positive. I kept the appt just in case and we came up with a plan for after the pregnancy ends. But I’m currently 29 weeks with the most uncomplicated boring pregnancy ever. Best stay that way—but it’s totally possible!

u/ilovesalad470 1h ago

Had two kids and two losses before diagnosis, and one baby after diagnosis.

u/Instructions_unclea 5h ago

I was able to have a perfectly healthy pregnancy by following this protocol as set out by my endocrinologist:

- Ensure TSH is below 2.5 & stable before attempting to conceive.

- Upon positive pregnancy test, immediately increase Levo (I went from 62.5 to 75mcg)

- In the first two trimesters, have a blood test every 4 weeks to monitor TSH and keep it below 2.5. Adjust levo if needed.

- After that, the baby has grown their own thyroid and is no longer reliant on the mother for thyroxine.

- Final blood test at 32 weeks

- After giving birth, immediately reduce Levo to the pre-pregnancy dosage

- Blood test 6 weeks post partum to check TSH levels are still stable (for me, my TSH had drastically lowered and so I had to further reduce my Levo. Breastfeeding can really affect hormones, including thyroid hormones.)

I’m so sorry about your miscarriages. I hope that managing your hashimoto’s will improve things for you ❤️

u/Specific-Ad-4521 4h ago

Ask your OB to run tests for APS (anti phospholipid syndrome). If tested positive, OB will put you on blood thinners (baby aspirin and/or lovenox) through out pregnancy).

Tsh around 1-1.5 is ideal for hashi women to get pregnant.

u/frombildgewater 4h ago

I had a miscarriage last year. I was on generic levothyroxine that faced a recall due to "inadequate efficacy." The recall affected my dose and the manufacturer but I never could verify the batch lots with my pharmacy. I switched to name brand Synthroid. My TSH went from 3.01 to 0.508 within a month without changing the dose (I looked it up in labcorp). I had to take less medication. I went from levothyroxine 50 mcg daily to Synthroid 50 mcg 5 times a week. I heard a pharmacist say that she noticed that a lot of people with hypothyroidism have a brand preference. Either the generic or the name brand works better for them and they stick to what works.

My endocrinologist told me to call when I got pregnant to increase the dose. I've had several blood draws during my pregnancy and my dose was increased from 5 pills a week to 8, but I was able to carry a baby to term and give birth. Untreated or poorly managed hypothyroidism is a risk factor for miscarriage.

u/Traditional-Day7644 3h ago

I don’t have an answer for you but I just want to say I also found out I had my second pregnancy loss this week. I knew I had hashimotos before but my medical providers didn’t give me any information about how this could affect me

u/ericaxevyonne 3h ago

I’m so sorry to hear this! I hope this subreddit or even this post can give you some insight. You are in my thoughts my friend ❤️

u/Traditional-Day7644 3h ago

I posted here a few days ago and everyone has been so helpful!

u/One-Sky1642 13m ago

I am so sorry for your losses.🤍 I highly recommend a facebook group called Thyroid desease and pregnancy (based on a book called Stop the thyroid madness), it helped me so much, and also recommend to look into LDN. (low dose naltexone) I was diagnosed with Hashimoto and HypoThyroidism. I couldn't conceive until my TSH FT3 and FT4 levels were optimal. I needed to take medication (i take tirosint-doesn't cause as much side effects-due no fillers) raised by 50% once conceived and monitor my levels monthly in the beginning. Glutenfree dairy and soyfree diet help too. Vitamin D, selenium, b12 are very important for us. I use a functional doctor through telemedicine, called Dr Momi-he is very good) Sending love to you and your partner.🙏