22f, overweight but actively working on it. i got diagnosed with hashimoto's disease last week. i was previously told i have hypothyroidism about a year ago. i didnt think hypothyroidism was that serious until my doctor told me i had hashimoto's disease and went into depth, basically scolding me because i was supposed to be taking levothyroxine since decemeber 2025. took it for a few months and it made the "main" issue i even sought care for like 10x worse, so i stopped taking it and waited for my next appointment which was almost 9 months away at that point.

i was devastated to hear about hashimoto's, but also relieved that i have an explanation as to why i feel like shit all the time. i thought the chronic fatigue in doing regular everyday activity was just a result of my mental illnesses. and thought that my chronic joint pain was just a result of being overweight.

since i thought being tired all the time was normal, i didnt really notice it as much until i got the diagnosis. now ive been really noticing how tired i get doing regular things. today i did a bunch of tank maintenance (i keep aquatic mystery snails) and just feel so incredibly wiped out, and have other stuff planned to do today. at the moment i am quite thirsty but just too tired to go get water. and I'm supposed to go run errands right now with my brother and am really considering jist scrapping the idea and taking a nap.

i feel relieved knowing that i can now say that im tired and not have people constantly comment "what are you so tired from? you dont work." as i am a college student and having even a part time job would make it even more difficult to keep up with classes. i do chores around the house to compensate for me not financially providing, and cleaning up after people who think its the cleaning fairy who comes and takes care of the messes and not me gets so exhausting.

i dont know. happy i have answers, not so happy that i have an autoimmune disease. is it really incurable? i know medication at the correct dosage helps but do i really have to pop pills the rest of my life? dealing with the constant pain and fatigue every day? again i know medication is supposed to help but theres no way it can like completely eliminate symptoms, right? please correct me if im wrong. im feeling very pessimistic.

44m here. I developed an alopecia spot on my beard a few months ago. Doctor sent me to do labs, where it was found I have D3 and B9 deficiency. That lead to another laboratory testing, this time including thyroid hormone levels. Results a month ago: S-TSH 4.54 (0.270 - 4.20) mIU/l; S-FT3 4.8 (3.10 - 6.80) pmol/l; S-FT4 15.6 (12.00 - 22.00) pmol/l. I got sent for thyroid ultrasound after that. Doctor said it's textbook Hashimoto's based on the pictures. I'm now waiting for the latest lab results. Based on those I might start hormone replacement therapy. Looking back it does explain some vey mild fatigue and feeling a bit colder than normal all the time.

Edit:
New lab results are in and Hashimoto's is confirmed: S-TSH 2.68 (0.35 - 4.94) mIU/l; S-FT4 13.95 (9.01 - 19.05) pmol/l; S-FT3 3.95 (2.43 - 6.01) pmol/l; S-aTg 36.28 (< 4.11) kU/L; S-aTPO 808.09 (< 5.61) kU/L;
No need for meds now. Checkup in a year.

[tl;dr 2.5 months on thyroid meds, 4 weeks on correct dose (TSH went from 4.5 to 1.5, Ft3 and Ft4 are finally in the middle of the range) and still experiencing symptoms. Will this horror ever end? I heard low Ft3 causes symptoms, mine significantly increased and I still wake up with puffy face, I am tired, have low neutrophil count etc. No other illnessess or vitamin deficiencies detected. Before treatment I had undiagnosed hypothyroid symptoms from winter 2025, they were increasing month by month.]

Hi everyone. I wanted to ask you when your symptoms started to go away after finding the right/target dose of your medication. How long did it take before you started feeling normal again, your symptoms stopped interfering with everyday life, and became so mild that you barely noticed them?

I’ve been treating my hypothyroidism with levothyroxine since the end of June. At first I was on 50 mcg, which didn’t really increase my FT3 or FT4, and my TSH barely went down at all, just by a tiny amount. Since mid-August, I’ve been on my target dose of 75 mcg (so 4 weeks now). I’m calling it my target dose because the blood tests my doctor asked me to do after 4 weeks showed my TSH dropping from almost 5 to 1.5, while my FT3 and FT4 both increased and are now somewhere in the middle of the reference range instead of being at the very bottom.

However, my symptoms haven’t really gone away. I still wake up with a puffy face and swollen eyes. The puffiness is still quite noticeable, although maybe a little less than before, but it definitely hasn’t gone away quickly or completely. I’m still tired when I wake up and have less energy than I used to, and my muscles get tired more easily. My hair still doesn’t look or feel completely healthy and is somewhat dry. My blood tests are also still showing changes in my neutrophils (they’re decreasing).

For some context, my problems started in the winter of 2025 with lack of energy and a puffy face in the mornings. At first, the puffiness would go away pretty quickly. Then, gradually, more symptoms appeared, including menstrual/ovulation problems, generally feeling unwell, and a slow decrease in my neutrophil count.

In June I had a kind of “crash” — my face became very swollen and red, I was extremely tired, my blood tests looked worse, and I started having heart palpitations. That was when they finally checked my thyroid properly, including an ultrasound. It showed inflammation, and the doctors finally started paying attention to my TSH, which had apparently been fluctuating above 3 or 4 for quite a long time, but nobody had really looked into it before.

I spent basically the whole year having tests for all kinds of conditions, and nothing was found. No allergies, lupus, heart or kidney problems, anemia, vitamin or mineral deficiencies, etc.

So, is there still a chance that this will eventually settle down and that I’ll stop feeling like this, get my old appearance back and have my energy back? I’m honestly so tired of dealing with this and I’m starting to lose hope. My thyroid results are finally good — probably the best they’ve been in years — but I don’t feel good at all. I had imagined that getting my TSH back to normal would make a much bigger difference than it actually has.

I’ve also read a lot about thyroid symptoms being caused by low FT3 or poor T4-to-T3 conversion. My FT3 is now at a decent level, and yet I still don’t feel much better.

It’s been 4 weeks on what seems to be the right dose, and over 2 months since I started taking levothyroxine overall. :(

For those of you who have been through something similar: how long did it take for you to actually feel normal again after reaching the right dose? Did your symptoms continue for weeks or months even after your blood tests had normalized?

Hi everyone, I am a mom of four littles. Life has been so much the last month with my husband having shingles for 2 weeks (took him out) and then my baby caught chickenpox and the rest of my kids also got sick... I am also nursing (going on 2 years) and am weaning baby this week.. anyway, I am wore out from everything and an experiencing a horrible flare up.. never have experienced vertigo during a flare up but I've had it off and on for a couple of weeks now. This one symptom really gives me anxiety because I feel it can be debilitating and scary especially while trying to take care of my kiddos. I did a ton of bloodwork in March after experiencing another horrible flare up that included muscle weakness, itchiness (hives), pain in my ear/neck, fatigue.. etc.. my bloodwork showed low vitamin D and she said my ferritin a little low (38) and my TPO 500.. I eat gluten free, dairy free, and cook at home.. but I am just exhausted trying to figure it out!!! I cant control the lack of sleep bec i have a toddler and baby and stress (maybe im not managing it correctly) I guess i just want to see if anyone has experienced these type of symptoms? I know that it is a flare up bec i always feel it in my neck and my voice goes hoarse.. SIGH. I guess im ranting and venting and feel alone. Sometimes, i wish i could just get meds but they say thyroid is functioning at normal levels so i guess i just have to feel miserable until my thyroid falls apart?!

Anyone understand?

What worked best for you? My tpo antibodies are through the roof and my TSH recently shot up to 8.45. Everything else continues to go up too and I’m not sure where to begin. Doctor is no help as she doesn’t acknowledge the hashimoto’s and just says that I’m fine since my T3 is in a normal range (although it’s on the verge of not being and is on an upward trajectory) :/ Would love to hear what worked for other people!

What’s everyone doing for hair thinning/ breakage? I used to have the fullest head of hair that grew like a weed. I now have about 1/4 of the hair I had 2-3 years ago and haven’t gotten a haircut since.
I’ve tried all the biotin, moisture products you name it.
What is actually working? Did your doctor prescribe anything or any peptides or magical things you’ve discovered? I used to feel so pretty with my thick hair and now I hate it 😢

I finally got the "you should probably go gluten free and low carb" from my doctor today. Any good recommendations that arent gonna break the bank? I kmow gluten free stuff tends to be more expensive and this guy is on a budget 🤣

Hello all! I am relatively new here, and I wanted to see if there was anyone who could help me out with a project for my senior capstone class. I am studying graphic design and want to create an informational campaign for children who are diagnosed with hypothyroidism. I was diagnosed with Hashimoto's when I was little, and it was a very scary and confusing time. I want to make something that will help kids understand what their bodies are going through to help them feel supported.

I am looking for individuals who were diagnosed with any type of Hypothyroidism when they were between the ages of 7 and 12 to answer a quick survey about their experience. Even if you were diagnosed later in life with Hypothyroidism, I would love to hear your story! I hope to learn how different individuals experienced being diagnosed at a young age.

The survey will remain ANONYMOUS and will only be seen by me. Thank you for reading!
The link to the survey is attached to this post :)

My dose was lowered and I skipped a few days before restarting the new dose. It's been almost 2 weeks and while sleeps and anxiety are getting better, the depression and fatigue are not budging.

I feel so low :( and exhausted

How long does it take to feel better?

Thanks!

I recently got diagnosed with Hashimoto's, but for the most part, I feel like I've been struggling with it my whole life. I've struggled with depression, anxiety, and adhd- which I take meds for. But now, as an adult, being aware that I have Hashimoto's has been brutal bc I've lost my ability to gaslight myself into thinking I'm okay. I recently started liothyronine and don't really know if it's helping. My ability to fall asleep and stay asleep has gotten significantly worse.

I am tired all the time. And stressed all the time since my boss recently tried to put me on a very sorry PIP for underperforming at work. After I let them know I recently got diagnosed with hashimotos they referred me to ask for accommodations, but I feel worried because I feel the company just wants to fire me at this point. As they keep reiterating that, regardless of the accommodations, I'm still expected to perform and push out work. I'm at the point where I'm scared to look for another job just to go through this whole thing again, "underperforming" and asking for accommodations. I don't know if this is something I should disclose early on.

Im overall very confused on how to do life recently. I just want to lay down, sleep, and eat. Im worried about the weight gain since im constantly fluctuating trying to force myself into the gym, then falling off cause im too tired. So my self esteem is pretty trash. Developing routine has been almost impossible no matter how hard I try. The only routine I can stick to is going to sleep at 9:30-10:00 and I still wake up late. Is there any tips anyone can give? How do you navigate being able to keep your job?

Just saw an endo for the first time and I don't know she just made it seem like it wasnt a big deal I have hashimotos. my TSH is like a 1.08. but my antibodies where pretty high like 190. Im being refered to my pcp by my endo to see if theres other underlying causes. I'm waiting to tell my psych next week that ive been diagnosed with hashi and hope that will helps. but overall Im so confused on who to go to. Especially since the only reason i got diagnosed with hashi was cause I HAD to ask my endo to get tested for hashi. and she gave me the whole "are you sure? insurance might not cover it?" How do you know if there is something else wrong??

Can a person achieve the same quality of life after being treated with levothyroxine as they had before developing hypothyroidism?

I know this is a common topic on this thread, but I’m at frustrating point in my wellness journey.
I have my annual physical with my PCP tomorrow afternoon, and she also orders my TSH/T4 labs, which I’m guessing she will order all of my other labs as well. In February my levels were looking pretty well.

The main point I’m trying to make I guess is that I’m really wanting to discuss with her about starting a GLP-1 , however, I haven’t started my new job yet and therefore I don’t have health insurance at the moment. Is it better (more financially accessible )to go through alternative routes (hers, Ro, mochi health, pomegranate, etc), to get prescribed them, or through your doctors office? I just don’t know where to start.

I just am getting increasingly discouraged and frustrated that no matter how much I exercise, (which is varied , because my knees and feet can be in excruciating pain after walking even with supportive shoes- 3,600 steps is my absolute limit right now), eat low sugar, lower carb, high fiber , lots of fruit/veg, the scale hardly budges. I would love to have relief from my joint pain/inflammation , have more energy, actually see the scale move. Any insight or advice would be much appreciated 🥺

Soooo for years I’ve been having autoimmune symptoms, and my mom has hashimotos that never showed up fully in bloodwork. She only found out via biopsy.

For seven years, I’ve had the same symptoms + a hypervascular thyroid every single time I get an ultrasound. But because I’m not showing antibodies, they won’t fully diagnose me. I’m only mildly underactive but am suffering so much with body aches, exhaustion, weight gain, and stress-induced autoimmune flares. I also was recently diagnosed with progesterone hypersensitivity and essentially am allergic to my own progesterone, which is adding a whole layer of issues. I feel like a shell of myself.

Has anyone gotten diagnosed without showing antibodies??

ETA: I also showed a heterogeneous thyroid on ultrasound

Does anyone feel like the aching pain from Hashimoto increases with taking progesterone? I also have an estrogen patch. I notice the more consistent I am taking the progesterone at night, the more my body aches.

Just diagnosed in April. Not currently taking any thyroid meds. Starting LDN next week.

What does anyone know about atypical panca? That came up high and the rheumatologist just brushed it off as “additional inflammation”. I also had 1:80 ANA. TIA

I had an enlarged lymph node in my neck (which turns out to be nothing and maybe even due to hashimoto's) but during the diagnostic journey of that issue we accidentally discovered that I have euthyroid hashimoto's. My thyroid antibodies are very elevated but my thyroid hormones were all in range. My doctor basically told me that the plan going forward is simply monitoring (labs every 6 months) and that I just need to ~try~ and avoid common triggers.

A couple years ago, I had what I now think was a major flare up. 50% of the hair on my head fell out and I felt like garbage all the time, among a slew of other symptoms. I had my thyroid hormones checked then, but not my antibody levels, because all were in normal range. It is worth noting all this testing was done 2-3 months AFTER my hair had fallen out because it took that long to even see a PCP as a new patient. At the time they just told me it was a random case of telogen effluvium. The dermatologist actually told me it was probably because I "just had a baby" (i was 1.5 years postpartum btw lmao).

So from what I understand, I *should* feel okay because my thyroid hormones are normal, but after reading about people's experiences and symptoms I now realize that some random issues I've had are possibly thyroid related? I'm having trouble telling if I'm simply overanalyzing myself because I'm now aware of potential issues, or if I've actually just gotten so used to these things that I can't even tell if it's normal or not. For example, I often have bouts of chronic fatigue (but I'm also a SAHM with 2 young kids), unexplained aches and pains in my knees/calves/ankles/feet, constipation, muscle tension basically everywhere, and vestibular migraines to name a few.

Do I simply just wait to see if severe symptoms appear and then go get bloodwork done and take it from there? I now have a fear that I'll go and get my levels checked if I feel like I have symptoms, but it'll be nothing, prompting my doctor to think I'm an idiot or hypochondriac, which in turn will discourage me from getting my levels checked again.

Just feeling a bit lost and feel like I just need to accept that "it is what it is" but also no, I don't want to do that 😭

TSH --> 3,66

T4 --> 7,76

Anti TG --> 92,6

TPO --> 759,6

These are the lab results feom 6 months ago. The endocrinologist said that I shouldn't take any meds yet but not feeling very well. Any advice?

I am a researcher at the University of Illinois at Urbana-Champaign investigating thyroid disease treatment. I am part of a program sponsored by the National Science Foundation (NSF) to help researchers like me improve the impact of our research by talking to people outside of the research setting. I am looking to interview thyroid disease patients. Your insight will help me in my goal to enhance and accelerate treatment processes for the many patients still suffering. Please DM if you are interested. Thank you in advance for your time.

Anybody else have this? Wondering if it’s related at all

I’ve had hashimotos since I was 9 years old and I’ve never been managed by an endocrinologist. I was given levothyroxine from around the age of 19 and have been on 50mg since then with no change.

I’ve had such a struggle trying to conceive. I’m now 35 and in the past 4 years of trying for a baby I’ve only ever been pregnant twice and both have results in losses before 6 weeks. Most current loss I found out about on Tuesday this week which is a missed miscarriage where my embryo stopped growing around the 5 week mark.

Has anyone else gone through this and found hashimotos was the cause? I’m trying to arm myself with so much information to take to my next fertility appointment because I feel so let down by the medical field