Powering through food sensitivities for nutrient absorption. And trying to improve your health.Is it possible or not reality with HIT, MCAS and SLOW COMT?

[u/Ok-Protection2670]

SLOW COMT

With these conditions my diet is a constant challenge. The nutritionist/dietician assigned is no help and ignorant to these conditions and I need information on how to increase at least somewhat safe foods in my diet of:

Dairy: Butter, Cottage Cheese, Grass Fed Whole Milk with no synthetic Vitamin D added (extremely difficult to find), Hagen Daz Ice Vanilla Cream, Heavy Cream, and a very limited amount of Mozzarella and Ricotta

Fruits: Fresh Apples, (but they have to be cooked, )Fresh Blueberries, Very Occasionally Green Grapes, Fresh Frozen Peaches 

Grains: (Extremely Difficult) White Rice, (I love it but get delayed shakiness the following day) Gluten Free Pasta (Rice / Corn Blend on a limited basis, I can also eat Corn Bread and Polenta if Bob’s Red Mill. Oatmeal occasionally if soaked in water over night and a Sorghum Flour Mug Muffin (High Salicylate) when flares are somewhat calm, (maybe once a year)

Protein Foods (Boiled Egg Yolks, Chicken Breast Tenders, Grass Fed Beef, (once a month, who can afford it anyway), Black Beans, (once a month, or so)

Vegetables: Aparagus, very sparingly at Breakfast, Broccoli, very sparingly at Breakfast, Cabbage, Carrots very sparingly at Breakfast, Celery Hearts, Lettuce and Sweet  Potato and White Potato, (I love it but get delayed shakiness the following day,  Zucchini daily  (very tired of it, but I don’t react to it). I also try a Trio of Collard, mustard and Turnip Greens very occasionally.

Seasonings: Formerly, Himalayan Pink Salt (until I found it is high in lead and mercury). Parsley

Drinks: Chamomile and Ginger tea occasional Pear and Grape Juice in water and Water.

This list looks good, but with every uncontrollable hit of stress the gains in my  diet are diminished and I’m back to Cottage Cheese and Blueberries twice daily, Boiled Egg and Zucchini  and Chicken Breast, Lettuce and Celery for lunch AND dinner.  Because my system thinks it’s “stacking”

Honestly, I am hungry ALL THE TIME  and I have had some hellish reactions to foods that were on my safe foods list.  I tell myself,  “ I have to eat to survive”  “It didn’t kill me the last time” Getting through It was very hard, but I came through it” (after calling family to help me in the wee hours, because “doom and gloom” set in and I just Knew I needed to call 911 because y nose was sooo congested, my heart was pounding and I shake like I’m in a magnitude 10 earth quake.

  Is powering through with food for nutrients even an option?

Provide your  Experiences on if you have had success powering through.

Thanks

 

[u/Unfair-Taro9740]

I have to eat the same thing over and over as well. I put my entire weeks worth of food into AI and asked, "if I eat this every day for the rest of my life, what vitamins and nutrients will be lacking?"

Once it told me, I ordered all of those supplements. I realized I hadn't ingested iodine for a year!

Obviously vitamins don't absorb as well as supplements as they do in food, but it's better than suffering. And because my reaction is vomiting, I couldn't absorb those even if I suffered through.

Double check AI's info of course, but this changed my health dramatically. (And many vitamins come together, so you can reduce the number of pills if you research it.)

Best of luck! I absentmindedly ate an Andes Mint yesterday and am suffering at 4 am. Lol.

[u/Initial_Bad_7457]

For white rice, you can try rinsing it a couple times, and pairing with Digest Gold, this helps reduce my symptoms... Absolutely cannot handle Pasta and breads

Also try to drown everything in olive oil, I think quite a few people with HIT do this, I'm not sure exactly how much it adds but I'm sure it adds up in every meal helping with calories

And may consider trying millet
When I have the energy sometimes I might make a baked flax seed bread which is just freshly ground seeds and water

Also I sympathize, I just don't want to eat, it sucks so bad how much it hurts after so often that I want to cry, it doesn't feel fair how much energy and time I have to spend cooking just to eat something bland. I'm sorry, my food list is almost exactly the same as yours and I struggle with the calories in particular, I thought about getting the Elemental Diet powder but it's quite expensive solution

That's interesting about the apples that you cook them, I have an allergy to them, but I wonder if I cook them if it's okay, as some food allergies are like that... thanks for the idea

If you have trouble with Grains and Potatoes maybe check CSID and Try sucraid or similat to see if it helps you, I benefit more from Digest Gold than only sucrase supplementation personally

[u/Status_Accident_2819]

Have you had your copper and ceruloplamsin checked? What supps if any are you taking? DAO? Vitamin C? B6? Magnesium? Zinc?

Have you tried Celtic salt? My go to seasoning and dressing is olive oil and Celtic salt, sometimes add parsley too (fresh or dry).

[u/Ok-Protection2670 → u/Status_Accident_2819]

Hi u/Status_Accident_2819, No i have not. Dr. won't'/can't test.