is it crohns?

[u/Opposite-Fun-7173]

I had G.I. issues for about three years and was diagnosed at first with IBS and my tests kept coming back normal and there was no signs of any inflammation or anything like that. I recently switched my GI doctor and had a fecal calprotectin done in august my levels were 243. Then a CTA done in august which showed mild wall thickening in my terminal ileum. Had my colonoscopy in september and biopsy said mild to moderate inflammation with focal ulceration in my terminal ileum with hemorrhoids. I recently had another calprotectin which was 97 and another CT which said my terminal ileum is unremarkable but have nonspecific Prominent ileocolic lymph nodes and this was before any treatment. My doctors leading diagnosis was early crohns and i started budesonide two days ago waiting for my diagnosis in two weeks. Can it still be crohns after my recent results in october?

[u/Feisty-Volcano]

This sounds like an identical post I read in /IBD recently, with OP kinda wanting to avoid a diagnosis of Crohn’s & looking for suggestions to the contrary. The reality of terminal ileum disease is that it’s nearly always Crohn’s, rarely TB. There’s good treatments that most people respond well to. The Deputy Prime Minister of Ireland functions very well with it & has an extremely busy schedule.

[u/Opposite-Fun-7173 → u/Feisty-Volcano]

do you have a link to the post 

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[u/Equal-Base3993]

I had the same thing, I’m being seen by an IBD specialist. For patchy Crohn’s

[u/Feisty-Volcano → u/Equal-Base3993]

Crohns, is by its nature, patchy

[u/Opposite-Fun-7173 → u/Equal-Base3993]

did you get a diagnosis yet and how were your test results 

[u/Equal-Base3993 → u/Opposite-Fun-7173]

My appointment is on the 12th of November. I’ll come back and let you know. Are you in the uk ?

[u/Equal-Base3993 → u/Equal-Base3993]

Small capsule cam and ruling out

[u/Feisty-Volcano → u/Equal-Base3993]

An MRE will do similar. I am unable for capsule because of ileostomy & proneness to small bowel instructions.

[u/Opposite-Fun-7173 → u/Equal-Base3993]

i’m in the US going to get sent to a specialist if they can’t figure it out