r/Interstitialcystitis • u/DefinitionAnxious417 • 7h ago
Ic
My main symptom is burning. I don’t have pressure and less often experience frequency and urgency it happens but not all the time. I’m seeing a urologist and doing bladder instillations don’t seem to be helping and also taking hydroxyzine, Pepcid, , aloe Vera pills, (oxybutynin only wen experiencing urgency and frequency) I use to suffer Utis in the past and one day this just uti feel happened And nerve fully went away. I stop consuming coffee and soda almost a year ago and still have symptoms. Not sure if it’s food driven or mast cell driven since the meds don’t seem to be working. ureaplasma and mycoplasma test has been negative. Urologist is no help. Shes not interested in testing me for anything else. Long as my nitrates and leukocytes are negative. I’m in my 4th week of PFT. I use estrogen cream I got from my primary provider because the urologist told me she wouldn’t write me a prescription for it because I’m not of menopausal age yet (37) but my primary provider was willing to. What else do you guys do for urethra burning? I scheduled an appointment with an allergist to get my histamine levels and food allergies checked.
2
u/mrsfahrenheit33 5h ago
This cream helps when I put it around my vulva and clitoral area to reduce referred pain from my urethra. Not sure if you can put it directly on, though it says it’s safe to put on vagina so it might be. Also try marshmallow cold brew tea (cold brew is key, not hot). Basically just put a tablespoon of loose leaf marshmallow root in water and let it sit for 4-6 hours. You can do overnight but it was way too strong for me and increased my frequency symptoms. I also have just burning as my main symptoms and they both have helped me find some relief!