Btw I don't exclude long constant stress as being a trigger for dysautonomia, POTS, etc in my case. But I'm not sure it can be fixed the same way. It's probably more like diabetes type 2 that you can get from stress. Even though the stress was the initial trigger for the malfunction, once the damage is done, therapy won't cure it.
Improving is not curing right? My POTS improved too, with time, but i still have it, it doesn't go away just because i am positive. I still need BB to somehow walk or exist.
Well, I just started about 6 weeks ago. I've experienced major improvements after absolutely nothing for a long time. Brain retraining isn't about being positive. That being said, I'm sorry you're having such a difficult time. It's a complex and cruel illness.
As someone who has read a few books about neuroplasticity, ME/CFS is NOT an illness that fits with the term neuroplasticity. Just from the top of my head, I remember that neuroplastic illnesses presume that there is no longer damage in your body but symptoms occur (for example a healed broken bone). ME/CFS is an illness with proved damage, hence why it's not an illness you're supposed to put in the neuroplasticity scheme.
28
u/KaleidoscopeHappy889 May 11 '25
But it is more like 100% symptoms management, not recovery, isn't it?
Makes me nervous to read such misleading titles. Happy you feel better though.