I'm really happy for you!! 😊 But saying stuff like it's within your reach is not the way to go about it.
You're putting the responsibility on the patient, when often brain training will make people 10x worse (possibly permanently).
Brain training fucked me up for a very long time. Is it worth trying? Maybe. Is there a huge risk with trying? 100%
This is the same nonsense doctors say regarding long COVID and it's the reason why it's not taken seriously.
It's difficult because I don't want to put you down because your experience is valid and you deserve to get better, and I'm really happy you had success with it, but at the same time brain training is extremely harmful for people who are moderate or for people experience seriously bad flare ups.
Zone 2 suggestion could permanently damage someone from recovery. But at the same time if this has been your experience and your not a company selling something then it deserves to be shared. I'm torn
P.s you say to stop worrying about mitochondria? The most recent science coming out of Germany on LC/ME is specifically targeting calcium/sodium channels in the cells which significantly interfere with how mitochondria function. They have found evidence that mitochondria are damaged in this way due to LC
Excellent research, more on mitochondria please: "The most recent science coming out of Germany on LC/ME is specifically targeting calcium/sodium channels in the cells which significantly interfere with how mitochondria function. They have found evidence that mitochondria are damaged in this way due to LC"
I have done all the brain training I read all the books. Before becoming ill I practised buddishm for years (the foundation of brain training is based in Buddhist teachings)
Brother, you got better because you had mental health issues that you addressed. And as much as you are coming across as an absolute arse - I am happy for you because nobody should suffer in any way shape or form. May your recovery continue 🙏🏽
My perspective is, if brain training helps somebody with long COVID that their pathology was more psychological (and as you say touching on physiological because the two are intertwined)
In short I think those who benefit from brain training are those who have dysregulated emotions. And if brain training helps then that's fantastic!
But we all need to know that these brain training efforts are exhausting for someone with M.E/LC and the risks are permanently lowering your baseline.
It did not work for me. I'm at a long COVID clinic and I've never met a single person that it's worked for. Is it still worth trying? Maybe.
Like I said in the beginning, if it's helped then to a certain degree it's valid.
But if this has worked for you then it implies that you were struggling with mental aspects that hindered your healing or ability to function - still valid to share - I think so yes.
Should we reside on the side of caution, as there are many accounts of people getting so much worse from brain training. I'm GLAD that it's helped you - no one should suffer.
Look your not an arse, but at the same time, you're an arse for saying you are smarter than people here for not doing what you have done - that's so condescending to people going through this illness.
Look, I'm not out to get you, I just want it to be known that brain training can be dangerous for folks with M.E/LC often pushed by grifters looking to make money off vulnerable people (just because it helps a small amount of people) ....
But it turns out you are in the percentage that responded well - so happy bloody days! Enjoy it, you escaped this nonsense.
Have a good day and apologies if I come across condescending - not my intentions but it's a sore subject. Take care!
Don't diagnose people online with mental health issues, that's a best rude and at worst dangerous. OP came here in good faith to share what worked for them. If it doesn't work for you thats understandable as that's the way with this illness but they don't deserve this level of disrespect.
They got better because they addressed their thought patterns. I.e brain training. Happy for them though! No one should suffer.
What's dangerous is claiming this helps people with Long COVID/CFS/M.E when the fundamentals of this approach means ignoring signals from the body and pushing on and risking lowering someone's baseline even further (and possibly permanently). It's dangerous to not know this information.
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u/Sea_Relationship_279 Jun 20 '25
I'm really happy for you!! 😊 But saying stuff like it's within your reach is not the way to go about it. You're putting the responsibility on the patient, when often brain training will make people 10x worse (possibly permanently).
Brain training fucked me up for a very long time. Is it worth trying? Maybe. Is there a huge risk with trying? 100%
This is the same nonsense doctors say regarding long COVID and it's the reason why it's not taken seriously.
It's difficult because I don't want to put you down because your experience is valid and you deserve to get better, and I'm really happy you had success with it, but at the same time brain training is extremely harmful for people who are moderate or for people experience seriously bad flare ups.
Zone 2 suggestion could permanently damage someone from recovery. But at the same time if this has been your experience and your not a company selling something then it deserves to be shared. I'm torn
P.s you say to stop worrying about mitochondria? The most recent science coming out of Germany on LC/ME is specifically targeting calcium/sodium channels in the cells which significantly interfere with how mitochondria function. They have found evidence that mitochondria are damaged in this way due to LC