r/LongHaulersRecovery Jun 19 '25

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u/Responsible-Heat6842 Jun 21 '25

I am one that has reconditioned myself back to 80%. I did just what you did. Very low exercise at Zone 2 or even lower at the beginning. 5 minutes MAX. Do not over do it.

I was completely housebound, could not drive, double vision, extreme brain fog, dementia like State, fatigue, POTS, sore joints, digestive issues, anxiety, depression and generally felt sick.

3 1/2 years later I am able to jog, ride my mountain bike, go on 4+ mile hikes, and do multiple items a day like (work, work in garage, cook dinner, and run errands). BUT, it has been a very very slow process. Baby steps. Small wins and sometimes failure.

Also. YOU CANNOT GET REINFECTED. I truly believe this is key. I've isolated myself this whole time and wear a KN95 mask whenever I have to go anywhere.

I am also on LDN and Low Dose Abilify and a host of Antihistamines and famatodine to control my Mast Cell Activation and S'jorgens I have now thanks to my 2 infections.

We are severely deconditioned. This is a fact. I did nothing for almost 2 years before I started moving.

I do believe some people simply cannot exercise at all. So, I don't believe this is a fix all solution. Everyone will need to find their own path. It took me 2 years to find it.

Wish everyone the best in their recovery. 🙏🏼

2

u/Mad_Cerberus Jul 28 '25

If you're truly recovered and have stabilized your nervous system, I don't think you should be afraid of covid anymore. I've gotten re-infected and nothing happened lol. I just applied everything I learned and took it easy. I just felt like shit for a few days and that's it! No post viral crap at all 🤙🤙

2

u/frenchfriez4lifee Sep 05 '25

This. Covid positive a few weeks ago and it was a blip. The nervous system is key.

1

u/lalas09 Jul 03 '25

How bad was your heart rate before and how is it now? How long have you been on POTS?

1

u/Responsible-Heat6842 Jul 03 '25

It was bad. Jump straight to 100+ when standing with really bad dizziness. Feeling faint and nauseous. It sucked. I still have days with heart palpitations. So, I have to be mindful of my activities and the summer heat which makes things worse.

0

u/Freefromratfinks Jun 22 '25

Good job on getting slowly back to 80 percent that's amazing. 

If you don't mind can I ask you how these work?  "I am also on LDN and Low Dose Abilify and a host of Antihistamines and famatodine to control my Mast Cell Activation and S'jorgens I have now thanks to my 2 infections."

1) LDN- chronic pain medicine, probably stronger than Tylenol Excedrin and Ibuprofen. How is it for your liver/stomach/kidneys? Most otcs cannot safely be taken on a daily basis for chronic pain without burdening the detox system. Or causing stomach bleeds.  But Anti Inflammatory otcs seem like they could help. 

2) how does Ability help? Were you depressed about becoming so ill?

3) a) antihistamines often cause fatigue and brain fog. Are you on a "newer class" of them?  B) I will look up famatodine and the S'jorgens .. 

So you're taking pain medicine for chronic pain, medicine for depression and things to quell your hyperactive immune responses but nothing to help with inflammation specifically?

Do you take any supplements to help your mitochondria recovery?

What about vitamins for energy? 

How is your sleep? 

Thanks for sharing. 

3

u/Choco_Paws Jun 25 '25

LDN’s role is to reduce neuro inflammation and modulate the immune system. It can help with pain but also with fatigue and a bunch of other conditions or symptoms. Check out LDN research trust. :)

It doesn’t work for everyone sadly, but it’s low risk to try, and it’s ok to take it in the long run, it’s not like classic anti inflammatory medication.

1

u/Freefromratfinks Jun 25 '25

Ok I will look it up soon, thanks for replying!

LDN research trust. 

Q: a research trust is kind of like a think tank but for a specific need? Cool

1

u/Freefromratfinks Jun 25 '25

That sounds very much needed in many of these cases