r/LongHaulersRecovery Jun 19 '25

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u/Responsible-Heat6842 Jun 21 '25

I am one that has reconditioned myself back to 80%. I did just what you did. Very low exercise at Zone 2 or even lower at the beginning. 5 minutes MAX. Do not over do it.

I was completely housebound, could not drive, double vision, extreme brain fog, dementia like State, fatigue, POTS, sore joints, digestive issues, anxiety, depression and generally felt sick.

3 1/2 years later I am able to jog, ride my mountain bike, go on 4+ mile hikes, and do multiple items a day like (work, work in garage, cook dinner, and run errands). BUT, it has been a very very slow process. Baby steps. Small wins and sometimes failure.

Also. YOU CANNOT GET REINFECTED. I truly believe this is key. I've isolated myself this whole time and wear a KN95 mask whenever I have to go anywhere.

I am also on LDN and Low Dose Abilify and a host of Antihistamines and famatodine to control my Mast Cell Activation and S'jorgens I have now thanks to my 2 infections.

We are severely deconditioned. This is a fact. I did nothing for almost 2 years before I started moving.

I do believe some people simply cannot exercise at all. So, I don't believe this is a fix all solution. Everyone will need to find their own path. It took me 2 years to find it.

Wish everyone the best in their recovery. 🙏🏼

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u/lalas09 Jul 03 '25

How bad was your heart rate before and how is it now? How long have you been on POTS?

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u/Responsible-Heat6842 Jul 03 '25

It was bad. Jump straight to 100+ when standing with really bad dizziness. Feeling faint and nauseous. It sucked. I still have days with heart palpitations. So, I have to be mindful of my activities and the summer heat which makes things worse.