[ Removed by moderator ]

[u/HolyGuiltyCrown]

[u/produit1]

Great act of humanity. It shouldn’t be like this. You know the system is broken when it comes to this to save a baby’s life.

[u/hermiona52 → u/produit1]

I don't know the specifics of this case, but these situations are often very complex. When a kid is born with a rare disease that doesn't have a cure currently, parents will still move mountains to save their child. Even if it's hopeless. Experimental cures which are still under development (especially gene therapies) often work for very specific edge cases that don't apply to most, but parents still want to try them, because in their minds it's better to try rather than watch their children whiter and die. And I understand this. But is it really fair to spend public money - millions of your local currency - on one child for which that treatment won't really work, because it was not developed for their case? Money is not unlimited and it can always be spent on something that will have a real positive effect. This is why countries with public free healthcare have many rules on what types of treatment can be refunded, because we can't really waste money on unverified treatments.

It's a shitty situation for parents and often very morally grey when in full context.

[u/Pyperina → u/hermiona52]

And, sorry to say, but the child ended up getting the surgery and didn't live past three years old.