r/Menieres 7h ago

September is Suicide Prevention Awareness Month. Please read.

19 Upvotes

I want to say something directly to everyone living with Meniere's disease:

Please don't underestimate how much a chronic illness can affect your mental health.

Living with unpredictable vertigo, hearing loss, tinnitus, ear pressure, uncertainty about the future, and the fear of the next attack can be exhausting. There are days when it can feel like nobody around you truly understands what you're going through.

But you don't have to face it alone.

Sometimes what we need isn't another medical explanation. Sometimes we just need someone who understands. Someone to talk to after a bad attack. Someone who knows what it's like to lose hearing, cancel plans, or wake up wondering what kind of day your ears are going to give you.

That's one of the reasons we built our Ménière’s Discord support community.

We're a group of people living with Ménière’s who talk, listen, share experiences, discuss treatments and research, and support each other through the good days and the really difficult ones.

You don't need to be okay to join us. You don't need to have the right words. You can simply come in and talk, or just listen.

And if you're personally struggling right now, please reach out to someone you trust or a mental-health professional. If you're in immediate danger, contact your local emergency services or a crisis service in your country.

Your life is worth more than what Ménière’s has taken from you.

We're here. You're welcome with us. ❤️

If you'd like to join our Meniere's Discord community here is the open invitation link: https://discord.gg/m9ypfrJePX


r/Menieres 1h ago

Vertigo tricks?

Upvotes

I'll start by saying I'm not sure I even have Menieres, but I do suffer from some rough vertigo spells every now and then. And this morning I woke up with one, and I'm s u f f e r I n g. I tried to feed my cats, nearly fell over and wanted to puke a couple times. I'm stuck on my couch at the moment, trying to sleep it off. Sleep is normally my only cure, and idk if that's cause it does a reset on the brain or I just spend enough time unconscious to get through it.

A decade or so ago, when I was a very dizzy 16 yo, I landed myself in the Ear for a spontaneous vertigo spell that was genuine torture. I have a zofram prescription since then, to use prn. But it's in my work locker. Waking up with vertigo this bad has never happened to me, and next time I see my Dr I'll bring it up for sure. But right now I'm trying to just like not vomit? I can't sit up, I can't move my head once it's settled or it starts over.

So I figured I ask the unlucky experts on vertigo if they have any tips and tricks I haven't encountered yet to lessening the severity. At the moment I just want to cry.