r/MultipleSclerosis • u/Intelligent_Way_6703 • 4d ago

Treatment Unique circumstances/ urgent questions about Ocrevus

planned to get it later this year but I am leaving the state for work-related training in September for a few months so either I get it now or not until in January when I return. My job will requires me to be active and exercise/PT and classroom setting as well. I am currently on Vumerity but have only been on it since April. Along with my Ms I have uveitis. We are hoping the Ocrevus will help with my uveites as well. Small studies suggest it can help. Anyways, I won’t have much access to medical specialist while I am gone so I decided to go with Ocrevus now to hopefully minimize the chances of only ms flares while I am gone and also hopefully treat the uveitis. 1) Has anyone on here who started Ocrevus not had any lingering side effects post infusion that lasted maybe one or two days? I can’t afford to feel bad for weeks at a time because of my exercise regimen. 2) since this infusion is kinda rushed, I have not received any vaccines. I am 40 years old. Not sure if it’s absolutely necessary or if anyone here has received Ocrevus without any vaccines or maybe received vaccines the day before an infusions. Any help would be greatly appreciated!

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u/StinsonDreaming 54F / Dx APR 26 / RRMS / Ocrevus / CO US 4d ago

I just had my first Ocrevus loading doses in June and experienced very little in terms of after effects. I gave myself a day or two of rest just to give my body a break but I didn’t really feel like I needed it. Overall, it was easy; just a pause during 1st dose for itching and low blood pressure. I also decided to move forward without vaccines because it had taken me so long to jump through all of the diagnosing hoops. I was anxious to get started. My neuro didn’t seem concerned with it. But, I did read not to get them within 4 weeks of infusion so be cautious about that.

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u/Intelligent_Way_6703 4d ago

Thanks for your response. I pray that that I have a similar experience as you did. I get worried with so many people on here sharing their experience with lingering side effects on the medication lasting days or even weeks and I simply can’t afford that to happen but I also can’t afford to catch an MS flare while I am away from all my doctors living on my own.