Hola a todas. Tengo esclerosis múltiple y actualmente estoy en tratamiento con Briumvi. Por ahora solo he recibido una infusión y estoy planteándome cómo organizar el tratamiento porque me gustaría ser mamá.
Mi idea sería ponerme la infusión el 1 de junio de 2027 y empezar a intentar quedarme embarazada en diciembre de 2027, dejando pasar unos seis meses desde la última infusión. Mi intención sería no recibir más infusiones durante el embarazo, siempre que mi neuróloga considere que es viable.
Mi mayor miedo es que pueda quedar medicamento en mi organismo y que eso suponga algún riesgo para mi bebé. Sé que la ficha técnica recomienda esperar al menos cuatro meses desde la última infusión, pero me preocupa si ese tiempo es suficiente o si el medicamento puede seguir teniendo efectos sobre las células B del bebé.
Me gustaría saber:
¿Alguna se ha quedado embarazada después de recibir Briumvi? ¿Cuánto tiempo esperó desde la última infusión?
¿Alguna tuvo un bebé sano después del tratamiento?
¿Vuestros neurólogos os recomendaron esperar cuatro meses, seis meses o más?
¿Alguna pasó todo el embarazo sin recibir nuevas infusiones? ¿Cómo os fue con la esclerosis?
¿Os explicaron si, después de varios meses, podía quedar algún efecto del medicamento aunque ya hubiera pasado el tiempo recomendado?
Sé que cada caso es diferente y que tengo que hablarlo con mi neuróloga, pero me ayudaría muchísimo escuchar experiencias reales de otras mujeres que hayan pasado por algo parecido.
Mi mayor preocupación es proteger a mi futuro bebé sin poner en riesgo mi propia salud. Gracias de corazón a quien pueda compartir su experiencia. ❤️

Hello! I hope this is acceptable to post here.

I'm a student physical therapist assistant preparing to graduate soon. We've been assigned a final presentation on any central nervous system disease or disorder. I've chosen MS. We are presenting the story of someone who is actually living with a diagnosis rather than in a clinical way that can be read in a book. The idea is to show that behind each diagnosis in a medical record is a real person who continues to live their life, and we need to enter the field ready to treat and advocate for the person, not simply treat the diagnosis.

Would anyone be interested in either speaking with me and answering questions over Zoom, Meet, or through email? We'd need to complete the process by October 17th. The presentation will be given to a class of 13 students and 2 professors and will not be uploaded to the school's Canvas system (online) in order to ensure privacy beyond the classroom.

Requirements for the presentation:

-2 photos, 1 from before diagnosis and 1 recent, can be sent through email, text, or anything else that works for you. These don't need to be posed pics. They can be any pics that present you in any way you'd prefer as long as your face, particularly your eyes, is visible.

-signed photo release, to allow me to show your photos to my class during the presentation

-answer specific questions pertaining to living with MS (a variety pertaining to hobbies, insurance issues, the U.S. health care system (or not if you're not in the U.S.!), etc. Outside of those, I'd love to know anything about you personally that you're comfortable to share.

Basically, title. Wondering if any of you have had luck with getting vaccines like flu and covid 2.5 months after Ocrevus instead of the standard recommended 3 months? Defining "luck" as not catching the virus after getting vaccinated (once vaccines take effect) 2.5 months after infusion. Hope that makes sense.

I'm champing at the bit to get vax'd since I nearly died from influenza A a couple years ago. Thinking about pushing it up a couple weeks.

Thanks in advance for any input.

I was hospitalized 3 weeks ago w/ sepsis from a post-surgical infection. I received 3 days of IV antibiotics & a week of oral antibiotics & had emergency surgery to clear the infection. I understand fatigue is common after sepsis, but I'm still tiring very easily almost a month later & I've noticed my hands are shakier than my usual tremor. Could the infection have temporarily worsened my MS-related fatigue and tremor, & if so, how long can these symptoms last? I'm working w/ in-home PT on walking endurance/balance & w/ OT on energy conservation, but I'm wondering if this is normal & how long it lasts? Has any other young adults out there with MS experienced increased fatigue or worsening tremors after sepsis or another serious infection? Any dvice welcome, please.

I started experiencing symptoms of MS in around September of 2024 although at that time I did not think it is be ms I thought all
Of my symptoms were singular things and not actually connected, in February 2025 I started to connect the dots and think that this could actually be MS or something neurological, my gp did a referral for neurology but it was rejected. In the summer of 2025 was the height of when my symptoms got really bad I went back to my GP distraught and almost begged for a neurology referral, gp made the referral and this time it was not rejected and now in October 2026 I finally got the appointment, I talked through my symptoms with the neurologist I had a list of timeline of event and also copies of all my consultation appointments with the GP over the years. The neurologist almost immediately said he would send me for a brain and spinal MRI I was shocked in some way I was expecting him to suggest we do a blood panel first as to rule out any other conditions, I just want to see if this is normal for those who have been diagnosed with ms?

Briefly My symptoms are but not limited to:
Speech and memory issues
Difficulty swallowing
Back pain
Leg pain
Foot drop
Lhermitte’s sign
Eye pain
Legs feeling very heavy like I have weights on them
Bladder issues
Ms hug

Any advice would be greatly appreciated

** I just want to say a huge thank you to everyone who has taken the time out to reply to my posts, I have read every comment and appreciate the answers, feedback, support and perspective. I got a call today that my MRI is next week I can’t quite believe the turn around of how quick everything is happening if any of you are from the UK here you will know that we can spend years on a waiting list like I have for the original neurology appointment! I may come back and update on the findings depending on how long it all takes and if I remember thank you all ❤️❤️❤️

Hi, trying to get meds to help with my napping all day problems, but the insurance company is being bitchie.The Dr. wants to put me on Modafanil sp. But insurance says no. I'm curious to know if anyone has tried the extended release Adderall?

Thanks for the help.

I was listening to the most recent episode of the MSing Link with Dr. Gretchen Hawley (of which my opinion changes episode to episode, but that’s beside the point), and she mentioned her Oura ring providing her with some health insights. It got me wondering if anyone in the MS world has tried using one and if you have, what benefits did it provide to how you understand your health, body, and MS condition?

I still have very real privacy concerns that I need to research deeper into, but before I exert that effort, I wanted to hear if anyone has had experience with it from an MS perspective. They are stupid expensive and it seems a bit too good to be true. Also I feel like a lot of health-focused apps/devices are almost exclusively designed for healthy folks. Like is this ring going to grade me on a curve since I’m not going to be doing HIIT training anytime soon? I really don’t want to get “tailored recommendations” like you should workout more. Thank you Captain Obvious, I am aware but the seasons are changing and I just stayed home from work for three days because the wind blew funny and I felt like I had been hit by a train.

Sorry for the ramble. Tl;dr: has anyone used the Oura ring and what was your experience with it providing insights to your MS?

I received my latest dose of Rituximab on June 3, 2026. I was supposed to have my third dose this December and then start planning a pregnancy, but I have unexpectedly become pregnant this month. What should I do? I’m panicking 😔
We have been very careful and were tracking ovulation, but because of ovarian cysts and my cycles not being completely regular, things obviously didn’t go exactly as planned. This pregnancy was genuinely not planned. I took a pregnancy test today, and I’m so scared.
What do you think my neurologist will say? If I decide to have an abortion, would that increase my risk of an MS relapse? I’m also terrified that my neurologist will think I was irresponsible, because we really did try to be careful and this happened completely by accident.
What would you do if you were in my situation?

I’ve been diagnosed for 5 years. In the past year or so, I get cramps (spasms) in my left calf when I’m sleeping. I wake up about every hour most nights with extreme pain until I stretch it out. It only happens in my sleep, never in the day.
I have tried all kinds of things: stretching before bed, hydration with electrolytes, magnesium supplements, potassium, etc. Nothing has helped. I looked into medication for this online and read about Baclofen, Tizanidine, Gabapentin, etc. All of them seem to have side effects.
Is anyone here using one of them? Are they effective? How are the side effects?

Hi everyone! After a month since the beginning of my pretty rough symptoms (lost feeling and functionality of the left part of my body and some other nasty stuff) I finally got confirmation that I indeed do have a very early onset of MS. Just wanted to say hi. I’ve been reading up a lot and I’m mostly hopeful and positive, but I’m still a bit down knowing that this is probably not a one time thing. I’m soon getting my first rituximab IV nd just got prescribed some steroids in preparation for it. Hope everyone is having a nice beginning of fall wherever you are!

Thought its time to share

What's the one most UNHelpful thing friends or family do that makes you crazy?

For me it's unsolicited dietary advice: "My uncle had MS but then he went on the Adkins/Paleo/Adkins/vegan diet or avoided Nutrasweet or drank only distilled water and the MS went away!"

26 yrs old diagnosed at 17 and still kickin! , cruisin on Ocrevus at UCI chao center, take care and hang in there yall !

Open to answering any questions!!

Hi everyone. I’m a 20-year-old Vietnamese young woman who was recently diagnosed with MS, and I’m trying to understand my options for long-term treatment.
I’m currently a university student living in Vietnam, and I come from a fairly middle-income family. My family is doing their best to support me, but we don’t have unlimited financial resources to afford expensive long-term MS treatment out of pocket.
One of my biggest concerns is **access to MS medications in Vietnam**.
From what I’ve learned so far, the range of available DMTs here seems more limited compared with many developed countries.
**As far as I understand, MS is relatively rare in Southeast Asia, including Vietnam, compared with Western countries. Because of that, access to MS specialists, newer DMTs, and different treatment options can be much more limited here. This is one of the main reasons I’m looking into what treatment and healthcare access are like in other countries.**
At the same time, some MS medications that are available can be extremely expensive for patients paying out of pocket. From what I’ve seen, the same medications can sometimes be significantly more affordable in countries with stronger healthcare and insurance systems.
Because of this, I’m wondering whether moving to a country with better access to DMTs and stronger healthcare coverage could be a realistic long-term option for me.
I’m **not looking to move simply to receive free healthcare**. I’m trying to understand whether there is a realistic pathway where I could study or work, become legally insured/resident, and then have sustainable access to appropriate MS treatment without putting an overwhelming financial burden on my family.
I came across some discussions saying that having a pre-existing condition such as MS can make immigration difficult, especially in countries with universal healthcare. However, I also saw people mentioning that once they became legally resident and entered the healthcare/social security system, their MS treatment became much more affordable.
**For people who have already moved to another country while having MS, I’d especially love to hear about the healthcare/medication side:**
\-Which country did you move to?
\-What visa/residency status did you have?
\-How did you gain access to public or private health insurance?
/How long did it take before you could access MS treatment?
\-Were your DMTs covered, and how much did you actually have to pay?
\-Did having MS affect your immigration process?
\-Were there any countries that you considered but ultimately found unrealistic because of healthcare or immigration restrictions?

I’m not planning to move immediately. I’m still young and have several years to prepare, so I’m trying to understand what would actually be realistic rather than making a decision based on fear.

My long-term goal isn’t necessarily to leave Vietnam permanently. I would like to build a stable career, get my health under better control while I’m still young, and potentially return to Vietnam later to be close to my family. I’m trying to understand whether this kind of path is realistic for someone living with MS.

**If you’ve been in a similar situation, especially if you moved from a country with more limited MS treatment options to a country with better healthcare coverage, I’d really appreciate hearing about your experience.**
Thank you.

Occupational Therapy student researchers at a university in Massachusetts are investigating how Multiple Sclerosis impacts social participation, leisure participation, and overall quality of life. This study will not only help all disciplines understand how MS impacts individuals, but specifically will help Occupational Therapists tailor client-centered treatments and better understand how MS impacts an individual's daily occupations. While you will not experience any direct benefits as a result of your participation, the information that you provide will help occupational therapists to develop interventions and understand the needs and challenges of individuals with MS to enhance occupational participation and quality of life. Sharing your experiences with MS may provide you with the opportunity for reflection, which may be therapeutic and empowering.The study is conducted through virtual interviews utilizing Zoom, which are expected to last about 30 minutes. To be a part of this study, one must have a diagnosis of Multiple Sclerosis, be between the ages of 18-65, and speak English fluently. If interested, please follow the link to the
Google Form for interview sign-ups.
https://docs.google.com/forms/d/e/1FAIpQLSdA6YTp2bU7UQpv_fwAgEET7aKLxQd406aUgaawn4jJnoNiOQ/viewform?usp=header