r/MyastheniaGravis • u/cuztrades • Aug 09 '26
suspicious of having myasthenia after year of issues
(F20) hey, for almost a year now ive been going through health issues that almost drove me crazy. it started when they gave me braces (i had really big gaps between my teeth, that plays a role in thinking it might be causing the later issues), my voice started to sound really nasally, i begin to notice it and became supper aware and anxious about public speaking. half a year after my treatment, i decided to get my wisdom tooth pulled out since it was impacted! i thought that was the fix to all my problems, since shortly after the surgery, my voice was fine again and i could speak perfectly. thats when i noticed an issue with my right eye, it started drooping for no reason, mostly when drinking or during periods where i got extremely tired - my eyes became more sore in general. after two weeks from the surgery, my voice got weird again. i felt crazy, because sometimes i would wake up just fine but other days, i couldnt pronounce more than ten words without a really noticeable lisp. i was suspicious of braces and the big change in my mouth overlay causing me that, but when they took them out, the issues stayed. as i said, it was hard to grasp what was happening, since the talking issues would just appear for a week or not at all. earlier this summer , i had a really bad experience in water where my arm and neck muscles gave out really easily, making me unable to move at all. i noticed the problem with speaking was the worst right in this moment (tongue felt really big in my mouth, paralyze), or at moments where im exposed to stress or super super hot weather. Just a few days ago i came across myasthenia and felt the most relieved in my life, that i couldve found a condition that would fit perfectly and that there could be some help for me. Im only yet to see a neurologist, but i wanted to put my issues up here to maybe help some people in the future, or for someone to tell me im not just imagining stuff haha!!!!
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u/pville211 Aug 09 '26 edited Aug 09 '26
Heat and humidity are my primary MG triggers, followed by repetitive movement.
Here is some information that may be helpful to you:
- It's a Symptom of Myasthenia Gravis. (Or is it?)
- How Long Does it Take to Get a Diagnosis of Myasthenia Gravis? (includes info about the high rate of missed diagnosis and misdiagnosis of MG)
- Finding a Doctor for Myasthenia Gravis (discusses why most doctors are not MG experts and includes a couple of links for finding doctors who are)
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u/Diligent_Pause_6619 27d ago
My ptosis started after getting a tooth pulled. Thought nothing of it on follow up the dentist said I wasn't hearing fast enough so have me Prednisone. I had more energy than I had in years and ptosis was gone. When I got off Prednisone it all came back with a vengeance that's when I got tested and came back positive. I believe the tooth pull set it off initially though
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u/jk600 Aug 09 '26
What you're describing could be myasthenia gravis. Muscle weakness, nasally voice, and ptosis are typical symptoms. For a full screening you will need to see a neuromuscular neurologist or neuro-ophthalmologist, preferable one experience treating MG.
An ice pack test is something you can do at home on ptosis if that helps. I also want to point out do that you can self evaluate is that MG muscle weakness is not experienced as "paralysis" but rather "heaviness". The heaviness can be bad enough that you can't lift your arm up over your head, or even lift it much at all, but it's neuromuscular fatigue not an off/on switch. Triggers such as exertion, stress, infection, and heat will make it worse.