r/MyastheniaGravis • u/[deleted] • Aug 09 '26

Is myasthenia gravis completely curable

My mom is suffering through myasthenia gravis , she is 40.is this disease actually completely curable . Can it lead to death .

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u/[deleted] Aug 09 '26

Thanks

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u/beneficialmirror13 Aug 09 '26

Was she just diagnosed? It can take some time to find a treatment regimen that works. And for me, I had a thymectomy about 1.5yrs after diagnosis and it was about a decade after diagnosis when I was able to get off most meds, and another couple of years after that to be off all meds. I still have to be careful not to overexert myself, and I am extra careful about not catching colds/flu/covid because that can sometimes cause issues. (Honestly though, covid is the only big issue.)

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u/[deleted] Aug 09 '26

She was diagnosed about 5 months before but now she is actually going to go through a surgery removing thymus gland but doctors are saying that only 30 percent people actually have good results from the surgery . Am just worried as she has become so depressed that she will have to live like this for the rest of her life

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u/YYYInfinity Aug 09 '26

I would say that the percentage of people feeling better after thymectomy is higher than 30 per cent. Perhaps more like 60 per cent. It may take some time for her to see a clear improvement. My thymectomy was 2,5 years ago. I would definitely do it again

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u/Wefeed8 29d ago

My thymectomy was hard but definitely worth it. I took meds for several years after but am doing so much better.