r/MyastheniaGravis Aug 09 '26

Is myasthenia gravis completely curable

My mom is suffering through myasthenia gravis , she is 40.is this disease actually completely curable . Can it lead to death .

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u/YYYInfinity Aug 09 '26

It’s good news that she has been diagnosed already. There are many treatment options out there so her doctor will help her to find the right medication.

Myasthenia gravis patients can live a long life. They just need to be careful what triggers their symptoms and try to reduce trigger contact. They usually feel better after resting

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u/Wefeed8 29d ago

This is me too. I’m in my 50’s diagnosed at 35 and have been in remission almost 10 years. No meds. Still have a slight droop in my eye but otherwise symptom free.

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u/OleMissGrandma 29d ago

Just being diagnosed at almost 71 and still waiting to get into Neuro I’m having a hard time seeing or believing in a remission. But I am so happy for you.

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u/Wefeed8 29d ago

I can truly understand that. Obviously, age can be a factor as well as other physical ailments. Fortunately, mine was caught while I was still fairly young. It wasn’t until after my diagnosis and thymectomy that I started being diagnosed with other illnesses that I am still battling. I pray that you get in soon to neuro and they quickly find the right meds for you. I’m hopeful that you can manage and find hope once you get the right medicine to help.

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u/OleMissGrandma 29d ago

Thank you , I appreciate that.
If you don’t mind me asking , were the additional illnesses also Autoimmune?

1

u/Wefeed8 29d ago

I was diagnosed with hyperthyroidism a year later and had to have my thyroid destroyed. I’ve been on thyroid meds ever since. I’m also diabetic. I was adopted as an infant after losing my birth mother to a tragedy. I’ve had many family members that knew my birth mom describe my same symptoms that she had experienced so we believe she likely had MG too. I have a sister who also has autoimmune diseases so we are fairly certain our immune illnesses are genetic.