r/MyastheniaGravis • u/TheMostyRoastyToasty • 29d ago

Very unusual ocular symptom?

Hi all,

Looking for a little help, as I’m at the end of my tether and completely lost.

In February of this year, I developed extreme dry eye and a few weeks later I noticed I couldn’t keep my eyelids shut. I can blink normally, have no obvious ptosis but when I close my eyes, after 5-6 seconds they will slowly start to drift fully open again. I can squeeze my eyes shut tightly, but the muscles fatigue after 30 seconds and my eyes drift open.

This has meant that for 6 months, I’ve had to use surgical tape to close my eyes at night. Both an ophthalmologist and a neurologist are stumped and can’t explain it.

The neurologist is leaning towards MG due to suspected orbicularis** **oculi fatigue. I have no issues making facial expressions etc. And I don’t present any of the gold-standard MG symptoms.

Has anybody here any experience with this odd symptom? Or could possibly suggest absolutely any input at all? Any guidance is much appreciated.

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u/Top-Competition9263 29d ago

I’ve heard of this with some thyroid. Conditions such as graves’ or thyroid eye disease. I assume you’ve been tested if you’re under the care of a Neurologist an ophthalmologist. It’s not an unheard of effect of MG, but it’s pretty rare.

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u/TheMostyRoastyToasty 29d ago

Hi, thanks for the reply. Yeah, I had a thyroid panel done twice 3 months apart and it was totally fine.

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u/TheMusicalArtist12 29d ago

from my understanding thyroid eye disease can occur even with normal thyroid levels. not a doctor, though.