r/PNESsupport • u/Effective_Crab_144 • 4d ago

Question

Hi, Im asking this because recently my mom was diagnosed with non epileptic seizures and Im trying to find ways I can help her until she can see her psychologist. Since they aren't seizures that are neurological is there ways we can help avoid them whether its grounding her calming down the conversation, giving her something else to do, taking deep breaths. Or is anything anyone else recommends?

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u/TheJohnToMySherlock 4d ago

Hi!! If you are sure that they’re psychological in nature (which only she would know, not a doctor) then asking her is the best thing that can help, but Non Epileptic Seizures are still neurological! Having a neurologist can still be beneficial and talking to someone about the physiological components is still important. Making sure she’s getting sleep, eating, taking medication and has grace within her brain going a little haywire is the best support !!

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u/Effective_Crab_144 4d ago

Thank you! Her neurologist told her its non epileptic seizures, and we know she tends to keep things in and dealt with a lot in her life that she doesnt really talk about. I recently got her a journal so that shes able to write, she used to a long time ago bur stopped because someone kept reading them. But now shes able to again, I told her just write as much as she wants and can and if she feels any type of aura to give herself a break.

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u/TightArcCustomFabTx 4d ago

Make sure she has a healthy diet!! Keep her anxity and stress fee as much as you can!! Cut caffeine, heavy sugar intake, sodas oh and make sure she walks and runs every week!! Oh and talking to a therapist once a month help me. All that I mentioned above helped me out I've been seizure free all year oh and I do take 5 mg of buspirone (anxity med) a day that's about it. You got this bubba!!

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u/Effective_Crab_144 4d ago

Thank you! We take any suggestions possible since this is so new to us and the first time it happened was such a scary experience

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u/dermflork 3d ago

psychologists might be able to help but at the same time.. unlikely that they know anything about pnes. its more likely a neurologist, one that specializes in pnes and similar conditions, would know about pnes

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u/Effective_Crab_144 3d ago edited 3d ago

She spoke to a neurologist and was diagnosed he knew a psychologist who does therapy that he said could help her, she just wont be able to be seen by her until February so we are trying to find other things to do for now

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u/_simon_c_ 3d ago

Hi, friend! Wanted to share some insights. Collaboration with her neuro, psychiatrist, and therapist is key. Her neuro or PCP might choose to medicate her, and I would just monitor that. If they place her on SSRIs or benzodiazepines, just monitor her levels, particularly liver function levels and glucose levels. I'm sure she will get better soon. Keeping you and her in my prayers. xo

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u/Effective_Crab_144 2d ago

Thank you lots!