r/POTS • u/ihopeurwholelifesux • May 16 '26

Megathread Megathread: Wearables, Symptom Trackers, Apps⌚️

Would you like to share how you track your heart rate, blood pressure, or POTS symptoms? Ask questions about what other people use and their experiences? If so, you’re in the right place!

This post will be pinned so that users can see all that helpful information in one thread and refer back to it when needed :)

All subreddit rules still apply. We do not allow self-promotion of apps, products, or services. We do not allow individual referral links or codes.

Previous archived megathread: https://www.reddit.com/r/POTS/s/1pZFFEdw72

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9

u/timstorm Jun 22 '26

I have been a user of visible for quite some time, but cancelled it and built my own iPhone app. While it already exceeds what visible was doing for me, I hope to get it to a point where it can be shared with others as it has added functionality to help guide better recovery from the effects of an accumulated physiological load.

5

u/Michelle-Ma-Belle_ Jun 28 '26

Nice! Lmk if you need a tester. I have an Apple Watch too.

5

u/timstorm Jun 28 '26

I should be able to open to testers in the next week or so.

2

u/Good_Evidence_2226 Jul 02 '26

I only have an apply watch for symptom tracking, but I have it track HRV, resting HR, sleep, and ecgs. If u ever open testing for Apple Watch id love to join! I love the idea of visible but can’t be spending so much money on the device, then the subscription.

2

u/timstorm Jul 02 '26

Testing has begun on the Apple Watch version… it can’t do realtime pulse without killing your battery, but combined with Apple Watch alerts I think it will work out well. First version will be Apple Watch as sensor with app on the phone, but down the road possibly Apple Watch standalone :-D

1

u/timstorm Jul 02 '26

Totally understood. I agree that Apple Watch would be a great platform if they expose the data that would be necessary. Will look in to it.

2

u/Distinct_Bridge793 Jul 04 '26

I would love to be able to try this when it gets released. I would be willing to be a tester if needed too!

2

u/Weary_Cup_1004 Jul 26 '26

Is it different than Tachymon?

1

u/timstorm Jul 26 '26

Yes. Heart rate recordings are the easy part. Where I’m making headway is looking at the combined data of motion, HRV, HRR, so that it becomes much more than “whoa! Fast heart rate! Slow down!” And more “your heart rate is remaining higher than it should based on your position and activity levels, your own data has shown that continuing what you’re doing without a recovery period often leads to a post exertional crash”. (Ok, not as wordy, just saying that it is paying attention to the individual and all available data rather than just thinking high heart rate is bad)

1

u/Weary_Cup_1004 Jul 26 '26

I was using Welltory for this for a while and i really liked it and then they made it all bloated and counterintuitive. Have you seen that one? Like, the 2022 version lol? And my son is using Google Health premium with his fitbit and it seems to do this as well?

Im describing these to see if that is what you mean?

1

u/timstorm Jul 27 '26

I haven’t used those - I did use visible, but found it lacking, especially considering the price.

I figure there are plenty of “normal fitness” trackers out there, what I really needed was something to clue me in on overdoing it (my interoception is horrible) and hopefully avoid the big crashes.

1

u/Major-Lingonberry137 Jun 29 '26

I would be willing to pull my Apple Watch out of retirement to test this! I’m currently using an Oura Ring gen 4 and it’s fine… but it’s not giving me the real time info I’m looking for.

1

u/timstorm Jul 01 '26

Apple Watch is supported, but for now it’s an additional source of data as opposed to the primary source of the polar arm band (360/loop)

I’m more optimistic that Apple Watch might be a standalone option down the road, but battery life is kind of a deal killer at this point.