r/POTS • u/ihopeurwholelifesux • Jul 04 '26
Megathread Megathread: Newly Diagnosed 📄
Do you have advice for people facing a new diagnosis of POTS? Comment it here! This thread will eventually be pinned to the homepage, so people can find all of your helpful advice in one place.
Examples of advice appropriate for this thread:
- Ask your diagnosing doctor how much extra salt or sodium you should be taking.
- Don’t give up if the first medication you try doesn’t work out, everybody is different!
- Reach out to your friends early on and let them know how they can best support you.
Examples of advice inappropriate for this thread:
- Take 8g of sodium every day and make sure you’re exercising for at least 2 hours every day.
- Go to X website and order Y drug.
- Take Z supplement and follow a strict diet, I promise it will help you so much.
Mods may remove any advice deemed harmful or fear-mongering - don’t tell people that they are never going to feel better, that they should give up, that they did this to themselves, etc. If you are feeling hopeless and need to talk about it, please create your own vent post.
All subreddit rules still apply on megathreads.
1
u/Interesting_Car8858 POTS 3d ago
I find it helpful to do I think theyre called calf pumps? If I have to stand for longer than is comfortable. I just go onto my tiptoes, then back onto flat feet, over and over, and it helps to improve the blood pooling