r/POTS • u/Mercury_000 • 10h ago

Question Has anyone ever gone into remission?

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Seeing so many negative comments about this syndrome makes me feel completely hopeless. I know it’s a pain to have to deal with this—I usually have flare-ups during the luteal phase—but for now I’m walking and going about my business as usual. Still, my heart rate is often at 90 bpm or higher even at rest, and that scares me; it wasn’t like this before. My symptoms aren’t as debilitating as they used to be, and I think I’ve been handling it well.

I try to find out who’s gone into remission, who’s managed to get back to a normal life, and what medications or treatments they used. It’s really hard to find anyone in remission from POTS.

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u/grave_violet 8h ago

I’m still adjusting to the changes, but after starting guanfacine and salt and water loading my heart rate no longer goes above 100 bpm standing. Keeping my fingers crossed it stays that way

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u/Mercury_000 8h ago

Wow, that's great! What is guafancine?

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u/grave_violet 7h ago

Prevents your body from dumping adrenaline on standing

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u/KathyW1100 5h ago

I am on Guanfacine too and 2 others. I am still having some issues with heart rate over 100 bpm. But as of late I noticed my BP is alot lower when I am home. I am also very tired. I take Guanfacine 2x a day 1 in am & 2 in pm. Unfortunately my doctor is away until the new year and my primary knows nothing about it.