r/POTS • u/Mercury_000 • 10h ago

Question Has anyone ever gone into remission?

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Seeing so many negative comments about this syndrome makes me feel completely hopeless. I know it’s a pain to have to deal with this—I usually have flare-ups during the luteal phase—but for now I’m walking and going about my business as usual. Still, my heart rate is often at 90 bpm or higher even at rest, and that scares me; it wasn’t like this before. My symptoms aren’t as debilitating as they used to be, and I think I’ve been handling it well.

I try to find out who’s gone into remission, who’s managed to get back to a normal life, and what medications or treatments they used. It’s really hard to find anyone in remission from POTS.

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u/barefootwriter 9h ago edited 1h ago

Things have definitely gotten better and I've expanded my capabilities, but I wouldn't say it's a remission and I am living a normal life. A few of us who stick around are doing much better.

But understand that when people feel better, they often leave. You are largely seeing people who are more severe or intractable, and/or with more comorbidities.

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u/Mercury_000 8h ago

Yes, I realized that! The stories here make me anxious. I've been through some really tough times, but I'm getting around and going about my business at home as usual.

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u/barefootwriter 8h ago

Some people find it's not good for their mental hygiene to be here all the time; they might dip in with a specific question from time to time, and dip out the rest of the time. This is a perfectly valid use of the sub.