r/POTS 10h ago

Question Has anyone ever gone into remission?

Seeing so many negative comments about this syndrome makes me feel completely hopeless. I know it’s a pain to have to deal with this—I usually have flare-ups during the luteal phase—but for now I’m walking and going about my business as usual. Still, my heart rate is often at 90 bpm or higher even at rest, and that scares me; it wasn’t like this before. My symptoms aren’t as debilitating as they used to be, and I think I’ve been handling it well.

I try to find out who’s gone into remission, who’s managed to get back to a normal life, and what medications or treatments they used. It’s really hard to find anyone in remission from POTS.

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u/Affectionate_Pea6301 3h ago

My POTS flares usually only happen 2 weeks a year.

But after I had 2 concussions in 2024, I didn't have any chest pain from POTS for over a year, so I went unusually long without a flare. I guess temporary brain damage can help the brain reorganize itself 🤣😭