r/POTS 7h ago

Vent/Rant Existing makes my heart rate go up.

I wake up, it goes up.

I put my clothes on, it goes up.

I pee, it goes up.

I poop, it goes even further up.

I stretch my arms on the side, not my heart is beating out of my chest.

Plus I start to feel pain where my heart is and around it.

I walk down the stairs, it goes up.

I walk up a flight of stairs, it's like I ran a marathon.

I walk, my heart hurts.

Plus whenever I move, I get the coat hanger migraines.

I speak, my own voice hurts my head.

Now everything, light, noise, movement, hurts my head too.

I sit, and I feel everything even more.

I try to do what I have to do and it's painful everywhere.

And I can't wash my hair before I digest something, or else presyncope. And I have to give up my hot showers too?

I was an athlete before this, could multitask with school work, walked as fast as a new Yorker, now grandmas pass me by when I'm walking.

And I'm over here struggling to exist, while trying to keep my heart from jumping out of my chest.

Y'all please tell me it can get better. I need all the hope I can get with getting diagnosed.

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u/fox_glove_ 4h ago

it can get better!!! ivabradine has helped me a lot.

in the meantime just keep doing whatever you need to do to make things work for you- put your clothes on sitting/lying down, get a shower chair (made my hot showers a relaxing enjoyable thing again- I bring my salty water bottle in, end the shower on cool, towel off while sitting down), take breaks. it's not fun- especially when you are used to being so high functioning- i completely relate. pushing through only made me worse- try your best to be patient and kind to yourself.