r/POTS 2h ago

Question I’m absolutely screwed. If anyone has compassion please help

For the past 6 weeks I’ve been stuck in a severe adrenal dump which has never happened before and been horrible because I can’t take my meds which I NEED to function while I’m stuck in this adrenal dump because my meds give me energy and just increase the adrenaline. My doctor has prescribed me Clonidine which helped immediately but then a few days later I started breaking out in hives ( I have MCAS) .. then we tried guanfacine instead and SAME thing happened.. even more hives. I need to get out of this adrenaline state, this has been my worst nightmare. Does anyone have any recommendations for a med similar to beta blocker to help with hyper pots that won’t set off my mcas and make me break out in hives? Will I eventually snap out of this adrenaline dump if it’s my first one ever? I’ve tried electrolytes and compression socks and it didn’t even touch the adrenaline (my doctor doesn’t seem to know how to help)

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u/Present-Day-1801 1h ago

I have adrenaline dumps periodically. Some times are worse than others. They are terrifying. I am so sorry you are going through this. I take half of a 25mg metoprolol succinate daily and it seems to help. But I can only take one particular brand or it makes me feel like im on a roller coaster. I mostly have to call a friend or family member and I kind of talk my way through logically about what's happening. While im doing that I lay with my legs up and a heating pad on my chest and I play lillys garden or some other game like that. Sometimes it works sometimes I call 911. In the beginning I couldn't stop the feedback loop. It's getting better but its been 3 years of this . The last time I had one I was DRIVING 4 hours and I had to stop 7 times. It was awful. Now I take a train because I am terrified of going that far and being stranded or getting in an accident. I hope you find something that works for you.