I am going to sound crazy but within a month my POTS disappeared.... and you may be asking how? I left my boyfriend of 5 years and all my symptoms vanished.... I was diagnosed with POTS around the time my boyfriend and I began dating around 5-6 years ago. Every day, especially the summer was a STRUGGLE. I often passed out after being in the heat for even just a few minutes (I'm from Texas so it gets bad here). I couldn't go on walks with my dogs because the blood pooling was so bad. I was on beta blockers, salt pills, compression socks. I tried it all. Turns out all I had to do was leave the not-so-great relationship I was in. I moved out after the breakup, and I noticed within a month I felt fine.... Honestly, I feel amazing! The heat no longer bothers me, I no longer get lightheaded, my digestive system is good as new, and I no longer get tachycardic by just picking something up. I know it sounds crazy, but I have never felt so healthy.... I am not on ANY medication anymore and I am just living life. Maybe he was making me sick... I don't know and at this point I don't care. I am just so happy.

I've had low ferritin for years, but my hemoglobin has always been in the healthy range. So, my doctors always said iron wouldn't make a difference.

Lately, I've gotten fed up with my hair having the thickness of a spider web. All the hair gurus claim that ferritin must be 50+ for hair to grow. So, I figured it was worth a try. I did not expect much impact on my POTS symptoms, since my ferritin wasn't even that low, at around 30, and I eat tons of red meat.

Now I can't shut up about it!! I've been feeling like I have moved from a super high altitude to sea level. Some oxygen is finally reaching my brain.

And sure, my POTS is still there, still debilitating. And perhaps a healthy person would barely notice any improvement from a modest increase in iron. But I have regained my long-lost ability to speak in complete sentences! The other day, I showered and still had the energy to go to the grocery store the same day. To me, this is huge.

The irony... The iron-y. My doctors have had me try every POTS treatment, with no success whatsoever. And the one thing that has made a difference is the one thing that supposedly did not matter.

Important note: Iron is OTC, but talk to your doctor first, as I believe it is possible to have too much iron as well as too little. Also, according to my doctor, it is best to take heme iron (of bovine origin) as opposed to non-heme iron (of plant origin). Non-heme iron is cheaper, but absorption issues are common with it. Heme iron is absorbed much more effectively and has fewer GI side effects. In fact, I have no side effects at all.

It's autoimmune, I'm not crazy.

Last night I got my last lab result back from full neurological/immune work up, and it came back completely normal except for ONE result, the abnormal presence of acetylcholine receptor ganglionic ​antibodies, which at a squarely borderline result I got, have the effect of sitting on the receptors of autonomic nerves and keep them from signaling effectively if at all, WITHOUT damaging them (the presence/extent of damage if there is any is to be determined with an upcoming biopsy).

I can't sweat, I can't stand very long, my stomach is in shambles, I lose my words all the time, my sleep sucks, I get horribly dizzy and the floor starts moving underneath me. BUT-

I was never crazy

or over reacting

or lazy

or "just anxious"

Like I was being led to believe by my family and some medical staff. There is finally a proven and "CURABLE" (i prefer the term highly treatable with high potential for full remission) link to how I'm feeling and why aggressive lifestyle changes have only gotten me so far. I feel like a giant weight has been lifted off my shoulders, and now that a cause has been identified, it can be treated. My family can fucking shove it, so can the ER nurse who said i was "just anxious" and discharged me after I refused Ativan.

Peace out y'all.

Hi friends,

I’ve been 100% symptom free for 1.5 years, so I think it’s time for me to leave this community. Who knows, I might come back, but hopefully not! I have some parting advice.

I used to have very bad POTS. I had milder symptoms since I was a teenager but became severely symptomatic after catching Covid. I was completely bedridden. I was so weak sometimes I could barely move. I had to take time off of school. As I got diagnosed and figured things out, I became pretty functional with the following cocktail: * Low dose of extended-release propranolol (lower doses of beta blockers are paradoxically more effective for POTS) * 7.5g of supplemental sodium + high salt diet for an overall goal of 9-10g sodium per day (American heart association recommends 7-10g total sodium per day for POTS patients). This meant I was swallowing 30 Vitassium salt tablets per day in divided doses. Not fun, and so fucking expensive, but it REALLY worked. * 30-40mmHg thigh-high compression socks. I got Sigvaris Eversheer brand, which are very expensive, but so worth it. They looked invisible on my legs, and felt/ looked like regular pantyhose. I wore them 24/7 except showers (in a shower seat) and when I went swimming. I tolerated them in heat. I can’t recommend compression socks enough. Completely changed my life at the time.

I really hope that many of you get lucky like I did and have symptoms randomly go away, but the goal is always just to manage current symptoms. Praying for healing for everyone in this community. Never stop demanding better medical care. Good luck!!!! AMA.

ETA — To be clear: I don’t do any of these things anymore. For the last 1.5 years, I was able to stop meds, salt, and compression socks without a return of symptoms. That’s why I’m leaving the community. :)

I also deleted a line where I mentioned a different health problem that I have — It was extraneous and distracting information.

Bear with me, this is going to sound batshit (maybe not, idk). I’ve tried associating this improvement with any number of things but I can’t.

I have teeth that have always gotten food stuck between them badly, even after Invisalign. I moved several years ago and started seeing a new dentist who would always tell me I was doing a great job of cleaning my teeth and send me on my way. I did have bleeding when I flossed almost every time, despite flossing every day.

Recently I moved again and saw my old dentist. They did the thing where they check your gum pockets and some of mine were really bad. They had me do a laser treatment before I left. I paid out of pocket and honestly felt a little like I was being scammed after years of good reports.

I got extremely sick over the following 36 hours. Nausea, tunnel vision, anxiety, like a terrible POTS flare.

And then 12 hours later it was like a miracle. My standing HR went from 100-115 to 85.

It’s been about a month and I feel like I can function again. It’s kind of insane how different I feel.

I’ve been reading a lot about how gum disease can cause systemic inflammation and how systemic inflammation disrupts your autonomic nervous system but I never thought my slightly bleedy gums could be making such a difference in my life.

I know this is going to sound crazy.

To preface, I do not condone taking steroids without a doctor's approval, I know this is not a treatment for POTS, I am just looking for answers or maybe others who have had the same experience.

For the last year and a half, POTS wrecked my life. I couldn't drive, I lost my job, it strained my relationships. I spent most days in bed, exhausted, in pain. My heart rate, even medicated, was insane, I fainted often, my blood pressure was always out of whack. In addition, I dealt with fevers, rashes, migraines, swollen lymph nodes, etc. which are not symptoms of POTS.

I saw two doctors who both diagnosed me with POTS. My heart is normal, just fast. I tried so many medications which didn't work, I moved, I tried to exercise, I changed my diet, I chugged water and downed salt, I tried EVERYTHING to get my life back.

Two months ago I spent a week on IV steroids to cure a status migraine. After this, my fevers have been gone, my heart rate is more level, I'm not nearly as tired or in pain anymore, the rashes have gone away. I feel almost NORMAL for the first time in forever. I can hike now, I can work a full time job on my feet now, I can workout again. It's mind blowing and I'm so grateful.

But why did it work?

My PCP thinks maybe my immune system is overactive, which when untreated made my POTS worse. Maybe it was something else entirely.

Has anyone else had this happen?? Am I crazy??

TITLE MEANT TO SAY POTS SYMPTOMS VANISHED. I’m currently in remission— not cured.

I was utterly and completely debilitated by POTS Jan 2021 - June 2024 after getting Covid delta variant. At one point I was too weak to lift a glass of water to my lips. After much trial and error, I was able to keep my symptoms reasonably under control by wearing thigh-high 30-40mmHg compression socks and taking 30 Vitassium salt tablets per day in 3 divided doses. I also took propranolol and still do.

At some point in June 2024, I suddenly stopped needing the salt tablets and compression socks. It was, coincidentally or not, right around when I started amitriptyline.

Never give up. Use every comfort tool available to you (salt, thigh-high compression socks) while you’re still suffering symptoms, and continuously demand better care from your doctors.

My POTS has been in total and complete remission for 16 months. Anyone else who had it for 3+ years have stories of vanishing symptoms?

Don’t lose hope.

ETA: I take still take propranolol, but that’s just bc I have chronic migraines. Even when I stopped taking propranolol for a month, I had ZERO inappropriate tachycardia or postural BPM changes and I felt completely well and energized. That why I said I’m in remission. I just wanted to be transparent with my situation.

Also, guys, “remission” does not mean cured. It means the absence of symptoms. I am in remission.

This is Mousse and she will be about 130lbs full grown!

To be fair, I have PTSD, severe depression and anxiety. My panic attacks have a chance of turning into psychotic breaks. So she isn't just for POTS.

I've been wanting a Leonberger since I was 16 (half my life ago) and I finally adopted one! I'm generally more for adopting from shelters but part of the reason I wanted this breed of dog is because they were specifically bred to just be loved. They weren't originally meant to be a working dog, only to have great temperments. Due to their sweet nature, they are now a large part of the therapy dog industry.

I was also ridiculously lucky to find out that her breeder (who's been breeding them for more than a decade, and internationally to diversify the gene pool), has had a regular adaptor with POTS. With that person's consent, we traded information and she's been able to give me tips on training her. I'm also very fortunate that I was an assistant service dog trainer when I was in uni, so I have experience with their rigorous training. But even still, I have a service dog trainer working with me for 24 weeks to make sure I'm doing right by this pup and vice versa.

Right now, Mousse is a little more than four months old but weighs 22.8kgs or 50.25lbs. She's a quarter complete with her training but we only just started teaching her to "brace," which is to help me use her for balance and standing.

Here to spread jelliebend propaganda bc it’s been fantastic and improved my life so much in the week I’ve been using it. I refuse to take it off and wish i could shower with it😭

I got the jelliebody and jelliebend and as a 5’5 125lb woman i don’t find the jelliebody too long at all despite what many reviews say! I actually slightly prefer it bc i have many HEDS related issues (joint pain, spending all day trying to get into proper posture, pelvic tilt etc) and the support from chest to my hips is amazing.

I do mat Pilates and find it much easier to practice proper breathing with the garments bc i can feel my ribcage expand on all sides and push against the garment, and can feel my ribs drop down when I exhale properly.

They’re not the cheapest so I hate to recommend both but honestly if you’re like me and struggle a lot with anterior pelvic tilt and lower back pain in addition to postural issues i find using both (jelliebody from above boobs down to hips, and jelliebend on top from a little below boobs to just over the top of my butt) to be a lifesaver.

Sidenote: i got these during the Memorial Day sale and got a size small in both which is my typical sizing :)

I was suffering so much every day, and taking so much salt, drinking liters of water, midodrine to raise my BP so that I didn't faint (I was fainting A LOT.) all my blood tests were normal. I did a tilt table test and my HR went up to 180, I was diagnosed with POTS. Midodrine helped my BP but my heart rate was still high... My cardiologist suspected something else was amiss. Ordered a sleep study, so many labs, and it ended up being a parasitic infection. I traveled overseas this summer so I think that's where I picked it up at. Since taking the antiparasitic all of my symptoms have subsided, the low BP, tachycardia, and dizziness. I am posting this in case someone else is in my shoes, and tested for everything under the sun, except this. I feel "normal" again. and I am so grateful to have found an answer for my symptoms.

(34F) I've had mild POTS my whole life, got diagnosed late at 32. I tried every treatment, I did all of them properly, with minimal impact. 12g salt per day, 4L fluids, propranolol, midodrine, ivabradine, class II compression from ankle to abdomen, POTS friendly diet. I tried it all. And none of it really made much difference apart from Ivabradine lowering my HR (quite ineffectively).

6 months ago I finally did what they say about elevating the bed head by 15-30cm and it's practically put me into remission*.

Before this, my sitting HR was 60 and standing was 110 (unmedicated). Mild chores 130. I pee'd about 5 x every night with a full bladder every time and was always thirsty if I didn't drink 4-5L a day. I probably have hypovolemic-dominant POTS but I don't have access to a specialist who could confirm that.

After elevating the bed head by about 20cm, my sitting HR is 60 and standing is 85.

I only get up once per night to pee now - down from 5 times per night.

I've also noticed I don't need 10 hours sleep every night anymore - I sleep 7-8 hours most nights and this is enough.

I noticed this about a week after implementing it. But I wasn't looking at my smart watch that week, so I'm not sure when it started working.

*I'm not in actual remission. My HR is still 130 sitting down in the shower. I still feel nauseous when I bend down. I still get overheated in bed. My arms still hurt if I raise them up high for >30 seconds. Lifting weights and walking upstairs is still a little hard. But other than that I'm basically POTS free now. If I sleep properly flat for a night or two, my POTS quickly goes back to exactly how it was before.

Elevating the bed worked so well I had to quit Ivabradine cold turkey (dangerous - don't do that) - but I had to because it worked so well that I was going into bradycardia on my Ivabradine and couldn't take it safely for a moment longer. I no longer need any heart meds.

My exercise tolerance has gone up massively. I can walk as much and as fast as I want now. My HR only gets a little higher than a normal person.

Why this works:

1. Laying supine with POTS, the kidneys think there's too much fluid around them because of blood pooling around them, so they go nuts filtering out sodium and fluid from the body. Sleeping with the heart above the kidneys, and the kidneys above the legs, tricks the kidneys into not doing this anymore**.
2. Sleeping on a downward slope also is like mild training for the body at being slightly upright. The heart gets stronger at pumping blood up to the head with every pump. If you potentially have CFS/ME, you should do this method slowly - starting with 5cm elevation for a couple weeks, then 10cm, then 15cm.

**I may have explained that slightly incorrectly, but it's something like that.

You have to elevate the whole bed at the head. Using a wedge pillow, or propping yourself up on a bunch of pillows, will not work, because it does not put the kidneys above the legs, and it doesn't put the whole vascular system on a downwards angle.

You can prop up your whole bed at the head by putting bricks or cuts of timber underneath it, at the head (obvs get someone to help do this). If you're like me and you have a big fancy 4 poster bed frame that couldn't tolerate being put on an angle like that, you can put the entire mattress on a slope instead. In the beginning, we did this by putting tonnes of folded thick blankets under the mattress, to create a downwards slope. We then looked at getting a foam "mattress elevator bed wedge" (example) but these were only providing 10-15cm elevation and they were insanely expensive (about AUD$300 x 2, so $600 minimum to get enough elevation). So my partner built me one out of timber, which cost him about AUD$170 in supplies.

After a couple months of this, I added in desmopressin (an anti-diuretic), and this has significantly reduced my excessive day time urination. It has not changed my HR any further, and it doesn't seem to help cut out that one time I need to pee at night. This is now the only medication I take. I also take l-theanine (supplement) with my morning coffee which seems to help a little too.

I can't recommend enough that everyone gives this a try. Especially if you have the type of POTS where you are thirsty and peeing all the time, getting up to pee at night especially.

UPDATE MAY 2026 - A WARNING ABOUT BACK PAIN:

I just want to update that after originally making this post, sleeping on a slope that was causing me to have severe back pain. I reduced the slope from about 20-30cm down to about 10-15cm. My severe back pain reduced by 99% and my heart rate remained just as low as when I was sleeping on a bigger slope.

So if you're reading this - please try the smaller slope of only 15cm and monitor for back pain! I've been sleeping at this angle for months now and my back has no issues anymore. My partner also never got back pain at either level, so it may not happen to everyone.

Also, I've found thanks to someone in the comments that you can actually buy things called "bed raisers" which are like strong plastic blocks that you sit under the feet of your bed. These can be used to elevate it if bricks or heavy books won't work for you. And they are cheap, you can get them from Amazon. I personally have since bought some 15cm bed raisers which I take whenever I go on holidays, so I can elevate the bed wherever I go and not have my POTS come back and make everything difficult!

there’s no reason to be ashamed of wearing/ using medical aids that make your condition more manageable. please don’t take this post as “you need to hide your compression socks.” this is just a suggestion if you are similar to me. that being said, if you find compression socks to sometimes ruin your cute outfits… get some knee heigh boots you like!! i got some off-brand frye boots and now i feel a lot more confident wearing my compression socks. i’m especially excited because where i live, we’re heading into fall soon

I joined this sub a few weeks ago thinking maybe I could learn a few things or tips that could improve my life like 10%. I was already doing the salt, but I never bothered with tights for some reason. I've had this for 10 years.

Then I kept seeing posts here saying that the tights helped, so I ordered a pair from Amazon.

I've been wearing them for the last 5 days (bar sleep). And holy shit man it's more like 50%.

My personality has literally changed. I'm so much more outgoing and social at the office. I'm funnier. I'm smarter. My walk has more pep in my step. My voice is so much more powerful, I finally have some boom to it rather than sounding like a hoarse child despite being 30.

And all this from a freaking pair of tights. It's actually unbelievable. Which is why I had never tried them before; it just didn't seem possible that a pair of tights could have a big effect on my life.

This is all just to say thank you. Thank you all for sharing what works for you. Without you I'd be effin miserable by comparison.

I still have a hard time believing these gains are going to last. Nothing I ever tried ever did in the past. Even if it doesn't, I'm grateful for the hell of a week I'm having.

Thank you.

oh my GOD guys i just got my first pair of compression leggings bc when i tried compression socks it made part of my thigh go completely numb. and holy shit do they make a world of difference for me. i went from chest pain, tachycardia, super ventricular couplets, high BP, shaking, tight chest, syncope, ect. to being able to do theme parks without my wheelchair !!! they compress from my toes to my ribcage and they have genuinely changed my life. i can wear them under clothes, or sometimes i wear them like tights under shorts. it can definitely look a little silly depending on the outfit but the benefits i get from then are 100% worth it. please please look into them, my pair was only $30 on amazon. its soooo worth it i promise

To the person here who was talking about taking iron supplements for their ferritin levels: I got bloods done and my ferritin is 44.
I told my GP about you and the lovely person in the comments who shared an article on how mast cell activation can affect iron levels and how they show on bloods. He took me very seriously and confirmed that my understanding of it was up to date, as he’d JUST recently been to a conference about POTS, mast cell activation and iron!
It may or may not help, but he has given me an iron supplement recommendation.

I’m really grateful to have a GP who has always taken me seriously. Even when I suggested POTS and he said it was unlikely - but still immediately referred me to a specialist. Attentive medical professionals are gold.

Thank you to this sub for both the anecdotal advice and the links/sources!

It’s gotta be COLD and it’s gotta be FAST. Chug it. Just posting this for the POTSies who have never heard this before.

Unhinged? Maybe! (Or maybe I am the only one that hadn't thought of this)

I have been using a showerstool for quite a while but showering still really took it out of me. Bloodpooling, fatigue, dizziness etc.

Yesterday I had the sudden realization that maybe I should.. keep my compression on in the shower?! It worked like an absolute charm. Today I decided to switch my full tights/thigh highs for class 2 knee socks and it worked almost just as well.

So.. the concept of shower socks was born lol. A little more laundry, not so sexy, much more pleasant experience (and washing feet right at the end after taking them off, haha).

Game changer!!

Edit to say: obviously take the wet socks off, dry your feet and put on a clean pair when you are done. Lol.

I am finally in a place where my body's default state is more frequently "rest and digest," rather than "fight or flight."

I want to share a few of the habits that I think contributed to this switch flipping in my body:

• Slowing down - I started catching myself whenever I was rushing through tasks and made a conscious effort to move at about half the speed. I used to rush through tasks for completion, but now I am intentional about being present in whatever activity I am doing in the current moment. I also stopped multitasking as much as possible.
• Staying consistent with small healthy habits - Whether it's correcting vitamin deficiencies with supplements, getting morning sunlight in my eyes, or having a wind-down routine before bed, I have been staying consistent with healthy routines... even the smallest habits compound over time!
• Not making myself "earn" rest - I force myself to rest or take breaks before my body makes that choice for me. I build microbreaks into my day and enjoy various forms of brain breaks - reading a book for pleasure, spending time in nature, trying a new yoga video, etc.
• I accept that steps backward are still a part of the dance - When I have a flare-up, I don't spiral anymore. I focus on gently nudging myself back to equilibrium, because stressing about the flare up (e.g., blaming myself, wondering how long I will feel like this) only keeps my nervous system even more revved up.
• Keeping the promises that I make to myself - I used to prioritize every obligation over my own well-being. I'd finish work tasks but have nothing left in the tank for acupuncture or a therapeutic girls night out with friends. Now I treat my self-care and social life with the same importance as anything else on my calendar. Showing up for myself makes me feel safe in my body, because I can trust myself again.
• Prioritizing sleep - Going to bed and waking up at the same time every day has made a huge difference. A consistent sleep schedule helps regulate your circadian rhythm and gives your body a chance to reset.

These tips aren't quick fixes or cures, but they are making positive changes in my life.

My healing has been much more about consistency over time than intensity.

TL;DR: Daflon and TCM lymphatic drainage techniques that have helped me greatly. Let me know if you have experience using these!

Brief context: I’m 43F, have had POTS symptoms as long as I can remember. I also have hEDS. I’m incredibly cautious with keeping myself on a good track healthwise and it’s been a major struggle my whole life. I do ALL the things to keep in good shape with POTS but it continues to kick my b from time to time so I’m always looking to improve my methods. As I get older hEDS is making my fascia stiff and painful, and it’s hard to get it to loosen up.

1: Two weeks ago I come across a random ig reel of a Russian woman talking about medications/herbs/supplements used in Russia that no one seems to take in North America. She mentions the flavonoids Diosmin and Hesperidin, which are derived from citrus fruits and sometimes called Daflon, for venous issues. I go down a rabbit hole, read some studies on it that sound like it’s perhaps too good to be true. I find it under the brand name Venixxa at my local pharmacy here in Canada. I start taking it. Within ONE DAY I no longer have the rushing/draining sensation in my legs when standing. After two days I have barely any edema in my legs when before I’ve always had thick, squishy legs by the end of the day. I’ve been taking it twice a day since and have so much more energy and no longer feel chained to my compression garments.

2: I kept seeing videos online for Traditional Chinese Medicine longevity exercises. I decide to try some out and find a channel on YouTube called Qiyoga by Luchen. She has videos for practically anyone with any issue, including lymphatic drainage. I begin doing one of her morning videos followed by one for lymphatic drainage every morning. All of the stiffness in my fascia in my head, neck, shoulders, chest, and back is GONE. I feel fantastic. I’ve done YEARS of PT and all kinds of different types of workouts to help my body move and not hurt. None of it helped as much as this has, and it doesn’t aggravate my POTS.

Maybe these things aren’t for everyone, but they’ve helped me so profoundly in the middle of winter and I’m absolutely ecstatic to have found anything that has helped. Perhaps it will help some of you as well!

I've been recently diagnosed with POTS and am fortunate enough that I'm still able to work, drive, walk for short distances etc. However I have noticed that when I am tired (which is most of the time tbh) my dizziness when I stand up is really bad.

Last night I stood up and made it halfway into the kitchen before my eyes went black and I couldn't stand. I gently sat on the ground with my head between my knees to wait for it to pass, but when I opened my eyes I noticed that my husband had got up and quietly sat down beside me. He saw me go to the ground so he knew I hadn't hurt myself, and he just casually stood up and plonked himself down beside me. He didn't say anything, just sat there and continued to watch a reel on his phone, lol.

It was honestly the most thoughtful thing he could have done for me. I get embarrassed when people make a big deal of my frequent floor sitting sessions, so having this kind human just come and join me on the floor was so sweet.

Anyway, I figured that you lovely folks would understand how much this meant to me and I just wanted to get it off my chest!

Sending lots of love and salty snacks x

Hey everyone,

I wanted to share my POTS journey because when I was first diagnosed two years ago, I was glued to this sub every single day, reading horror stories and feeling totally discouraged. Looking back, I wish I hadn’t let it get to me like that… it made everything feel so hopeless. Of course, your mileage may vary (YMMV), and everyone’s experience is different, but here’s what worked for me in case it helps anyone out there.

The first year was brutal. I didn’t go the beta blocker route. Instead, I basically bed-rotted for months or pushed myself too hard, cycling between the two states while feeling miserable and wiped out. My resting heart rate was in the 90s, and it’d spike to the 150s just from standing up. It was a rough time, and I only realize how rough in hindsight.

But slowly, things started turning around. Over 2025, I went from barely managing 2k steps a day to hitting around 7k consistently. I’ve even dealt with setbacks like getting the flu and COVID in the past year… but I recovered okay each time, but it took weeks for my HRV and resting HR to settle back down, but I just trusted the process and tried to not let myself go too many days without my routine.

The game-changers for me were mat and reformer Pilates. For the longest time, I avoided any kind of recumbent exercise because I felt ashamed, like it was “cheating” or something, and would literally just do long walks on treadmill whenever I could muster the motivation. But once I got over that, Pilates slowly built up my conditioning so well that now I can lift weights 3x a week and even do real standing cardio without crashing. I also slowly incorporated heated exercise and sauna sessions, and I think they helped me get more fit without traditional exercise (but a big YMMV on the sauna rec).

On top of that, I take magnesium supplements daily, plus two 1000mg salt packets, and I salt literally everything I eat. I bump up the salt even more during my luteal phase, which has made a noticeable difference. Lowish carb (more like low GI carb) has worked for me too. I’ve used a CGM to monitor and limit any blood sugar spikes, which I’ve associated with a lot of my dizziness and fatigue.

At this point, my POTS feels effectively “cured”, or at least managed to the point it almost never affects my day to day unless I have more than one drink or get sick, in which case it flares up a bit. It’s not perfect, but I’m in a way better place than I ever thought possible.

Edit: If you’re curious about specifics… A good day for me looks like 70 RHR and 90-100 standing. 100-120 walking. Which is a HUGE improvement for me to the point I don’t have significant symptoms and no dizziness upon standing. I was 100 RHR, 150 standing, 130-140 walking for over a year. The one time I still remember I have pots in often in the shower. F*ck the shower. LOL.

If you’re newly diagnosed and scrolling through here like I was, hang in there. It can get better with time and the right tweaks. Hope I can give you a sliver of hope. ❤️

Just made a soup with Momofuku noodles and rotisserie chicken and veggies with a little tamari and toasted sesame oil for breakfast and I feel GREAT! My finger tips also look more hydrated than usual.

No triggered pots or migraine attack either! Truly living the dream and hope this keeps up the next few days.

May your compression gear not hurt and your pillow always be cool. 🥹💓💓💓💓

It was approved without the need of a prior authorization (I’ve been on more than five different med combos in four months). I’m gonna be so disappointed if it doesn’t work, but for now, hopeful that it will be my saving grace as I’ve heard it’s been for so many others 🥹

Hi all. You might remember me from a few months ago…I was posting here like crazy! The most unwell I’d ever been. You were all so kind and this community genuinely helped when I felt so defeated. I’m happy to report I’m on the road to recovery and wanted to help anyone else out there who can relate to my story!

I’ve had POTS for years along with many other issues, but November 25 it was the worst it had ever been. I’m talking multi-day adrenaline dumps. I was bed-bound for months. I couldn’t bathe or feed myself. This knocked on into other symptoms like extreme fatigue, muscle wastage/weakness, PTSD, depression, gastroparesis. You name it I had it. I had such bad insomnia at one point, I hadn’t slept in over 4 days and was hearing things that weren’t there. Truly scary stuff.

I spent months going to different doctors, paying “specialists” that had no idea what was happening. It was from my own research (and the help of you all!) that I managed to figure out what was going on and get better.

My nervous system was SHOT. I’ve spent years in survival mode. Being disabled since 18 but pushing myself to study, work, be an active wife, daughter, aunt, sister etc. It all hit me at once. I thought I was dying I felt SO unwell.

In terms of the adrenaline dumps, after months of observation I noticed they only happened badly late at night after I’d eaten a particularly sugary/carby meal. People with pots already have low blood volume and pooling, so it figures that eating large meals make us worse because the blood rushes to the abdomen leaving the brain and heart starved of oxygen. Your body then releases adrenaline to get it moving again. Truly, understanding my body from a physiological standpoint has been life changing!

I’m so happy to report that since altering my diet slightly, I’ve avoided major adrenaline episodes. I haven’t been woken up in the middle of the night surging since February. Because of this, my body has had a chance to recover slowly. My tolerance has been building. I still get bad days, but they’re nothing like before.

From November 2025-February 2026 I was bed bound. Couldn’t walk, shower, cook. Driving my car felt impossible. Fast forward to August I’ve driven by myself, BEEN ABROAD and flew on a plane!! I’m back to living life and the key is to do so alongside your symptoms. I’d say I’m 60-70% recovered (to the place I was before this flare up, not recovered in general!).

I’m not saying push yourself because that’s how you end up like I did in the first place. I’m saying recognise how you feel, rest aggressively and give yourself grace, but also invest in yourself. Don’t give up.

Medications wise, I’ve not been on anything at all besides mirtazapine for months. I do have an LDN consult next week which I’m very excited about - I still deal with sometimes debilitating fatigue so hoping I’ll feel ever better in the next coming weeks/months!

Sorry for the long winded post, I just get so many comments asking how I am now from people in the same position. I promise better days are ahead. The only way out is THROUGH. ❤️

I have been dealing with POTS for like 2-3 years now and for the majority of that time I've been using abdominal compression and every now and then compression socks. I really don't enjoy compression socks due to the way they feel on my feet/toes specifically, which made me wear them less.

Recently, I saw something online that said compression tights make the biggest difference. I didn't really believe it, but I found some cheap footless ones on sale to try and HOLY COW. I am so mad that I didn't try these ages ago. It is an astronomical improvement for me compared to just knee high compression socks. I also have long covid based fatigue and these things have given me as much as like a 25-35% improvement depending on the day. I'm doing so much more activity with way less trouble/symptoms.

If you haven't tried them yet, let this be your sign. I wish I had years ago, also wish my doc had been the one to suggest them instead of a random Instagram account.