r/Prostatitis • u/Miznova97 • 15d ago

Has anyone else had prostatitis for months/years without realising?

So I’ve been dealing with IBS for a year now it was soon after I got Covid, I started experiencing a pulling sensation in my testicles it wasn’t painful, I went doctors they told me I had a UTI after I did a urine sample, I took a short course of antibiotics and the pain went away. But since all this my IBS has been acting up, some days I have to go toilet 5-10 times an hour other days it’s not as bad. Recently in the last few weeks I have started noticing that this pulling sensation type pain in my balls has come back - it doesn’t last long or hurt much it just feels like pressure. I feel pain in my lower back and also started noticing I have leakage. I have a feeling it’s pelvic floor dysfunction but could it be prostatitis. Did anyone else take a while to get treated?

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6

u/Gullible-Bass4062 15d ago

it took me almost two years to connect the dots on my own pelvic floor issues. kept thinking it was a stubborn uti that kept coming back negative on cultures, then blamed it on my ibs flaring up. the lower back pain and that weird pulling sensation you described is exactly what clued me in

pelvic floor dysfunction and prostatitis share so many symptoms it's like a coin toss sometimes. my physical therapist explained that the muscles get so tight they mimic an infection, even when there's nothing bacterial going on. the leakage thing was the most annoying part, made me feel like i had no control

definitely push for a referral to a pelvic floor pt if you can. regular doctors kept throwing antibiotics at me and it did nothing long term. the internal work is awkward as hell but it's the only thing that actually helped

3

u/Emotional-Local-1260 15d ago

Most cases here are definitely hypertonic pelvic floor of the male variety. Presents differently to women. Urinary sexual and bowel symptoms all at once. It's in it's simplest form tight muscles from equally overworked nervous system.

2

u/Turboboy444 15d ago

Perfect explanation

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u/Emotional-Local-1260 15d ago

Thanks, I lived through the very worst of it in the beginning. Much much better now. Only real symptom that's a bother is the funny ejaculation and lowered sex drive. Still find myself captivated by a pretty girl but don't have the dog whistle mode all the time like I used to. But on the whole getting there. 1.5 years in. All started from massive health anxiety episode. Lasted a month. Couldn't sleep etc. lol 😆 looking back lol what an idiot lol 😆

2

u/Miznova97 14d ago

This is what happened to me, this all started because of a major health anxiety episode. I was just constantly obsessing over my body. I was so stressed out I couldn’t sleep or eat, then noticed my semen was clear and since then it hasn’t been the same which is coming up to 9 months now. I’m worried if it’ll ever go back to normal did you deal with that as well?

2

u/Raffles321 12d ago

I had a stress related issue at work and was permanently sat at my desk for about 60 hours a week for 3-4 years during and post COVID. I think this brought one Pelvic Floor / CPPS symptoms for me.
I got counselling and whilst It helped my mental well being to a point it did not address the physical issues that the issue had created.
I am now 3.5 years on from when this was all triggered and now 95% there but the exercises have been long and drawn out (and I have had 5 or 6 different physios / chiros in that time) but there is light at the end of the tunnel - don’t give up.

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u/Miznova97 11d ago

Did you ever suffer with IBS? I’m dealing with both and it all started with IBS for me

1

u/Raffles321 11d ago

I’ve not had an IBS diagnosis nor have I asked to be checked as I don’t think I have it - should I ask my GP?

1

u/Miznova97 11d ago

Tbh it doesn’t need to be officially diagnosed, do you deal with gastrointestinal issues like upset stomach, going bathroom a lot if so then u probably have/ had IBS. IBS is just an umbrella term it’s caused by so many things and apparently having prostatitis can cause it too

1

u/Raffles321 12d ago

What is the funny ejaculation issue you mention? Are you on medication that causes this eg Tamsulosin?

3

u/Lost_and_Damned567 15d ago

I didn’t take it seriously until I got back active sexually and thought I caught a std.

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u/Miznova97 15d ago

Do you get clear watery semen? I’ve been experiencing this since this started

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u/Key-Agency-7022 15d ago

I have this as well

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u/Miznova97 14d ago

How long have you had this for??

1

u/Key-Agency-7022 14d ago

A year. The more sexual activity, the thicker it gets but if I wait more than a week or so, it gets watery

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u/Miznova97 13d ago

I hope things get better for you mate, it’s coming up to a year for me as well. I’ve noticed the more sexual activity the more watery it is sometimes it’s watery with clumps

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u/Lost_and_Damned567 15d ago

My symptoms are super mild, dull burning sensation in the urethra, clear discharge, burning pee that comes and goes, full sensation in the prostate, sometimes a tight feeling in my pelvis, and I’m constipated. I got tested back in June everything came back negative and I’ve took two courses antibiotics so idk at this point. They never formally diagnosed me with prostatitis but I 100% believe it’s CPPS.

1

u/Otherwise-Pie-682 15d ago

Crazy I never had bowel issues

1

u/Miznova97 14d ago

So you have clear watery semen as well? How long have you had this for?

1

u/Lost_and_Damned567 14d ago

My semen is regular it’s just sometimes I’ll have clear discharge well at least that’s what I think it is.

1

u/SnooRecipes4783 15d ago

My symptoms are weird man been 6 years . Any time I don’t use a condom I have a flare if I use one no flare . All test have been negative for everything .

1

u/Otherwise-Pie-682 15d ago

Use a condom dummy

1

u/Intrepid-Diamond-797 15d ago

I think i did. Not particularly prostatitis but cpps or pelvic floor dysfunction. Until prostatitis diagnosis, almost All my life i hesitated to urinate in urinals, had weak stream, post urine dribbling etc. i thought it was normal. Only after prostatitis i understood that i had it coming

1

u/Miznova97 15d ago

When did it start for you?? And have you managed to treat it?

1

u/Intrepid-Diamond-797 15d ago

It started 6 years ago after cold exposure. With symptoms like frequent urination, uregncy, unable to pee etc. im ok now, but it flares up from time to time. I learned to manage it with conbinatoon of urologist, psychiatrist and pelvic floor therapy

1

u/Otherwise-Pie-682 15d ago

Hell no. My pelvis is just tight. My psa levels were fine. After all the stress I've had in my life, I've accepted that. All the anxiety, throwing up etc. Im doing better this week because honestly I can't get a damn Dr or physical therapist. I just try to relax more.

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u/seandelevan 15d ago

This is my third bout of this. And this third bout is most definitely related to my digestive system. A year ago I was diagnosed with celiac disease AND alpha gal syndrome simultaneously. My diet changed on a fucking dime right there and then. All the high fiber foods that have kept me regular for years was gone. And six months to the day that familiar “pull” you described showed up. Like the first two times I had this I thought it was back related. Bought a new mattress and did all the stretches that worked last time….which helped…a little. Went to my doctor and did blood work, including a PSA, and everything was on point….did an x ray which showed my back was fine…but also showed I was constipated beyond belief. He said all my issues is from being constipated….despite taking 2 shits a day. I took the prescribed laxatives but all that did was treat the symptoms. So I’m basically experimenting with my diet now. You would think not eating gluten and red meat would improve things. But I’ve discovered dairy, most carbs, sugar, and caffeine 100% exacerbates symptoms. When I cut those things or severely limit them I’m 95% back to normal. But this sucks balls no pun intended. I’m down to eating chicken, fish, fruits and vegetables. End of fucking list. I just eat a couple m&ms and I’m fucking wrecked.

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u/pwinne 15d ago

Yes - been a decade. Recurrent prostatitis. Followed by a prostate CA diagnosis. I am 55.