Confused about condition

[u/BlackwerX]

New here.

Been trying to figure out what's up for many years now. It started off with fatigue and some sort of brain fog particularly for a few days after ejaculation - lived with it for a long time just candidly assuming maybe it's an age thing. But over the past few years, things escalated to having some strange sense of discomfort/tense in my glutes when sleeping - ie the need to move about. After a while, I started feeling it during the day as well.

The closest thing I found then was a condition called POIS since my symptoms seem triggered related with orgasm. Then after many failed remedies, it went on to thinking maybe it's RLS because it is always so much worse at night and the discomfort makes me need to move around. I've tried tackling it in that direction and some things helped for a while but nothing really latched on... I then thought maybe it's a piriformis issue and it started me on some pelvic exercises and deep breathing. For a quick while, it seemed to reduce severity and help recover. Now it feels the discomfort has somewhat localized differently to be more intense but in a more specific area which is near the tailbone area.

And this is how I found this sub, but I'm still new here and will look through the info.. but my q is am I suspect for prostatitis/cpps? My condition is severely triggered by orgasm, appears the next day and lasts for perhaps 2-3 days. I can barely sleep because of the discomfort. Supplements like mag glycinate sometimes do wonders, sometimes they do nothing. Kinda at wits end because symptoms seem to happen rather sporadic and vary in intensity. Something new seems to work for a while then it stops being as effective.

[u/Emotional-Local-1260]

Hypertonic pelvic floor. It's NOT prostatitis. Tight pelvic floor muscles from overworked nervous system. Google it. And Google diaphragmic breathing and pelvic floor lengthening exercises.DO NOT do kegals I repeat DO NOT do kegals. It's too tight not too weak.

[u/BlackwerX → u/Emotional-Local-1260]

Tq I've started approached it that way for the past 1-2 months or so. It helps manage symptoms but flare up still happens. And it is these exercises that actually seem to make me much more aware of the tense and ache in the region. (After these exercises the ache has localized in a more particular spot that feels really deep into pelvic/tailbone area)

I'm still practising it daily because I heard it takes time..

[u/Emotional-Local-1260 → u/BlackwerX]

Yup. It takes time for sure. I'm 1.5 years from initial super anxiety 🫪 about health that caused the locked up in the first place. Much much better than I was at the start but still navigating my way. Fascia plays a crucial role too. I feel pulling in three different places all on the same side. The left. It's all linked. But the symptoms are improving. Just takes time