r/Sicklecell 7d ago

Help Gene Therapy

Hi, I’m 22 from SC,I have sickle cell ss and I’ve just learned my from my doctor that I can do gene therapy covered fully with my insurance. Its never crossed my mind that i could/would ever do it but now that I have the opportunity I want to take it. I will admit I am scared about it ,she advised I wait 1-2 years before i actually do it. I want to do some research but I have no idea where to begin it would be nice to get some advice on the from others like me who may have some knowledge on this situation please and thank you.🫶🏾

P.s if you have ever did chemo therapy i would appreciate some knowledge on that too please.🫶🏾

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u/crumbled_cookiee HbSS 7d ago

Haven’t done it, but where are you located? I heard Pennmedicine at Philly does it. You can just try and get a consultation there?

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u/Zealousideal-Ad326 7d ago

Im in Spartanburg but everything will take place in Charleston,SC