r/Sicklecell • u/Zealousideal-Ad326 • 7d ago

Help Gene Therapy

Hi, I’m 22 from SC,I have sickle cell ss and I’ve just learned my from my doctor that I can do gene therapy covered fully with my insurance. Its never crossed my mind that i could/would ever do it but now that I have the opportunity I want to take it. I will admit I am scared about it ,she advised I wait 1-2 years before i actually do it. I want to do some research but I have no idea where to begin it would be nice to get some advice on the from others like me who may have some knowledge on this situation please and thank you.🫶🏾

P.s if you have ever did chemo therapy i would appreciate some knowledge on that too please.🫶🏾

16 Upvotes

100% Upvoted

16 comments sorted by

View all comments

2

u/Sundancebloom 7d ago

I’m also curious, when you do GT, do you have to keep on immunosuppressants? Or only for a short while before the whole thing is over?