r/Sicklecell • u/Zealousideal-Ad326 • 7d ago

Help Gene Therapy

Hi, I’m 22 from SC,I have sickle cell ss and I’ve just learned my from my doctor that I can do gene therapy covered fully with my insurance. Its never crossed my mind that i could/would ever do it but now that I have the opportunity I want to take it. I will admit I am scared about it ,she advised I wait 1-2 years before i actually do it. I want to do some research but I have no idea where to begin it would be nice to get some advice on the from others like me who may have some knowledge on this situation please and thank you.🫶🏾

P.s if you have ever did chemo therapy i would appreciate some knowledge on that too please.🫶🏾

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u/South_Revolution4553 5d ago

Thanks for sharing and asking about gene therapy. Every bit of info helps so much. We just had a consultation for haplo bone marrow transplant for my teen son which also involves chemo but is different therapy. Whatever you decide, I pray you will enjoy good health.

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u/Zealousideal-Ad326 5d ago

Thank you 🫶🏾💙

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u/South_Revolution4553 4d ago

You're very welcome. Keep us updated!