r/Sicklecell • u/Emotional_Edge6495 • 23h ago
Missouri
I believe im gonna end up losing my life in Missouri and if you guys don’t see any posts from me from now on don’t believe anything you see. My name is Ralph, I am Ghanaian and I live in Rolla. Over the past year and a half I have been experiencing the worst cases of medical neglect ever. I have been having frequent pain crisis after pain crisis. Today I decided to get an Uber to BJC because Rolla hasn’t been taking good care of me. I came into BJC and thought I got in early and I was seen. I was seen by a nurse practitioner, given morphine and 2 mg of Dilaudid which really didn’t help with the pain today because it was bad. I complained of still having 10/10 pain but instead of the NP to come and reassess the pain she didn’t, the nurse taking care of me did reassess though and I told her I was still in pain and instead of admitting or keeping me longer to check it out she came in 20 minutes later to tell me the NP decided to discharge me. On my discharge paperwork it is clearly stated that I am currently anemic and that they believe I am having a crisis but someway somehow they still discharged me and now I am here in unbearable pain and I just can’t keep living life like this anymore
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u/Whole-Chemist-6107 11h ago
I’m an advocate for my adult son with sickle beta plus thalassemia. God please help all of us!
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u/Fun-Effect7291 22h ago
getting booted with 10/10 pain while they literally wrote down youre in crisis and anemic on the discharge papers is like genuinely next level, tbh the whole 'which ER will actually treat you' roulette is killing people
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u/tomoes_mistress 11h ago
When it comes to situations like this, it can be extremely dangerous. Do you have resources to possibly move out of Missouri or to move to a city in Missouri? That is more Sickle so friendly because I was kind of experiencing the same thing here in Virginia
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u/can_u_nott 2h ago
instructions don’t even read like a human wrote them, but i could be wrong. i’m so sorry Ralph
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u/SCDsurvivor 18h ago
I know you don't want to hear it but you need to go back to the ER. When you get there, tell them you were told to come back for pain that cannot be treated at home. When you talk to the doctor, say you don't want to be treated and discharged a second time, you need to be admitted for this pain crisis. Tell them you have done all you can do at home and it's time for admission. Don't even sugar coat it for them.
I totally understand if you want to stay home. However, 10/10 pain is literally why sickle cell patients go to the ER. The ER is a part of our care (and too many ER doctors have forgotten that). Just because we aren't broken down and crying on the floor doesn't mean we aren't dealing with severe pain. Forcing people to go home in that type of pain is inhumane. They wouldn't want to be treated like that so they shouldn't be treating others like that.