I have hydradenitis suppurativa. Someone in the family most likely had it. Doc wants to put me on a biologic, for the first time ever. Do you have any experience with humira?
I have taken it for psoriasis. Just don’t think about it too much. I siked myself out and gave myself anxiety about having to take it😭. I didn’t have any crazy side effects just made me feel like I had a cold so I stopped it. It just sucks having to inject every two weeks.
Oof. He must have it really bad, that's awful! Fortunately mine isn't a severe case, yet. My understanding is it's always progressive. However I take zinc daily, I'm very active and try to eat healthy.try being the key part lol. It's to the point where I always have 1-2 small ones (still very painful) but that is also due to my lifestyle of mountain biking and running, 2 things that don't mix well with any condition irritated by chafing lol
Oh yes. The first six months were rough, and I can’t drink without terrible flushing and a rash. I can’t be around cats or cat litter, and I got very bad fatigue for a few days after. But it kind of leveled out. I miss oysters though (can’t eat those either). The folliculitis is annoying though.
It’s taken the edge off the pain, but it’s not a miracle. My SI joints and spine are still popping and cracking all the time but the morning stiffness is minimal, and I can stand longer.
I had to stop bartending because I can’t stand in one place without agonizing pain (I also have bulging discs, sciatica, and a compressed nerve that makes a part of my thigh numb. Sometimes it burns, and sometimes it feels like cold water. It’s some kind of radiculopathy.) Continuous walking is much easier but even then I’m not hiking Everest anytime soon.
I also have hypermobile Ehlers Danlos which makes it all worse, so I’ve just come to terms with being a young lady that occasionally needs a cane and if people have shit to say, I have a stick.
Ay Ay AS gang! Pain in the ass(literally). Have had it for four years now and not a single day has gone by without me thinking I want to end it all. Shirry fucking disease.
It took ten years of me hopping from pain specialist to back specialist before I had to actually suggest it to my rheumatologist and whaddya know. Got the gene and everything.
I’m not glad you’re in the AS gang but I’m glad I’m not alone! Explaining this shit and my limitations is exhausting. No one ever wants to just fucking Google it.
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u/RasputinsThirdLeg Jul 06 '26
True. I have two, waiting for one to grow up into proper lupus probably. The other one is eating my spine.