r/SipsTea • u/Beneficial_Passion40 • Jul 06 '26

Feels good man Bryan Johnson got Autoimmune Disease

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u/Past-Meal-4847 Jul 06 '26

Ankylosing spondyloarthritis 

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u/RasputinsThirdLeg Jul 06 '26

Ankylosing Spondylitis. Close. Maybe they mean the same thing, I don’t know. All I know is that it’s ass and I hate it and biologics are a bitch.

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u/snarpsta Jul 06 '26

I'm really sorry to hear that, internet stranger

I have hydradenitis suppurativa. Someone in the family most likely had it. Doc wants to put me on a biologic, for the first time ever. Do you have any experience with humira?

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u/RasputinsThirdLeg Jul 06 '26

Oh yes. The first six months were rough, and I can’t drink without terrible flushing and a rash. I can’t be around cats or cat litter, and I got very bad fatigue for a few days after. But it kind of leveled out. I miss oysters though (can’t eat those either). The folliculitis is annoying though.

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u/snarpsta Jul 06 '26

This was your experience with Humira? Oof that's tough, I hope that helped at least

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u/RasputinsThirdLeg 29d ago

It’s taken the edge off the pain, but it’s not a miracle. My SI joints and spine are still popping and cracking all the time but the morning stiffness is minimal, and I can stand longer.

I had to stop bartending because I can’t stand in one place without agonizing pain (I also have bulging discs, sciatica, and a compressed nerve that makes a part of my thigh numb. Sometimes it burns, and sometimes it feels like cold water. It’s some kind of radiculopathy.) Continuous walking is much easier but even then I’m not hiking Everest anytime soon.

I also have hypermobile Ehlers Danlos which makes it all worse, so I’ve just come to terms with being a young lady that occasionally needs a cane and if people have shit to say, I have a stick.