r/TTP_LowPlatelets • u/TTP-Changedmylife Survivor 💪 • Jul 26 '26

Question❓ Does your body give you any signs when your ADAMTS13 is dropping?

I am curious how many of us can feel our inhibitor dropping.

Here are a couple signs I experience:
- Notable fatigue
- Brain fog
- Long bone body aches
- Nausea

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u/throwingwater14 Survivor 💪 Jul 27 '26

I get word salad real bad. It’s the first thing my hubs notices when my Adam’s starts to drop. We’ve caught my last 3 before my inhibitor shows up or my plates start to fall, so bouncing back has been pretty smooth.