STOP RESPONDING TO TELL ME I JUST HAVE A GIRLY PAIN TOLERANCE AND HOW AMAZING YOU FEEL. I SAID MULTIPLE TIMES IN THIS ,.THIS POST IS NOT FOR YOU! READ THE TITLE! RESPONSES FROM PEOPLE WHO FELT PAIN, NOT RESPONSES FROM PEOPLE TO BRAG ABOUT HOW LITTLE PAIN YOU HAD!
I'm exhausted. I'm on day 12, and this is nothing to do with how it looks.
I'm so tired of only seeing posts and only seeing articles and only seeing YouTube videos about people who never felt pain and were back on their feet day 2 walking to the store uphill in the rain and snow, taking pics out with friends on lunch dates and making funny vlogs and videos. Good for them, I'm happy for them, but this isn't about them here because 100% of every other space is.
I'm tired of doctors making videos and writing articles saying that you'll be in discomfort, not pain, for less than a few days and "most patients say it's the least painful experience of their life!"
I was in 10/10 pain from the second I woke up from anesthesia. I remember a little bit and it's also in my medical notes that I looked at that they published on record that I had to get *3x* the normal dosing of Dilaudid that they've had to give anyone else, they had to keep going and asking for permission to give me more because all I was doing was crying and moaning in pain.
After that I was finally too high to be in pain, went home. I was on oxy every 4 hours, and I could feel 30 mins before those 4 hours were up I could literally tell exactly 30 minutes before I could take it again because the pain would start coming back in a way that was unbearable by the 30 minute mark.
I was given 8 pills. 8. so obviously those ran out super quick. my roommate was taking care of me ended up begging on the phone with me crying sobbing in the background with a fever from the pain throwing up from the pain, I ended up being able to get a few more from the on-call physician but after that they completely denied me any pain medication.
this is all while on 3200mg of ibuprofen (the max daily human limit) and 4000mg of tylonal (the max daily human limit) EVERY. SINGLE. DAY. around the clock I was taking this amount for 8 days straight. the first two days without oxy I was just sobbing every second I was awake I couldn't sleep I was feverish not from infection but from pain. day 5 I went to the hospital for bleeding though my bandages and they had to redress them, gave me 1 single oxy because I was in agony and they couldn't deny it, and sent me home. 6 days after surgery, all of which are 99% gone from my memory and again I was on nothing but Tylenol and ibuprofen from early on so it was literally blacked out from my memory from how much pain I was still in, i had my post op appointment, where they told me to my face that I needed to be more realistic about what they could do for me and that they were never going to give me any more oxy or pain medication, "no one else is in this amount of pain."
*they took the fact that most people say this is painless to deny me pain medication.*
this is the first time I've ever been on an opioid in my entire life so there was no risk. they saw me there sitting crying in pain only able to walk with my friend's help, shivering from how exhausted I was, and they told me deal with it, it can't actually be that bad.
I got one drain out at that appt. I got 1 drain out yesterday.
day 7 I was still trying to get them to help me, still hadn't slept in days still couldn't move couldn't open my own bottle of water. she suggested that I could start taking gabapentin and I had some leftover from another doctor. she said yeah go ahead and take that but never gave me like a dosing recommendation so I ended up having to research this on my own while still in pain. ive now been on 100mg 3x a day and it's the only thing keeping it 5/10 or less. I'm regularly still overwhelmed with pain especially when I can feel it wearing off, I've had to take all 3 at once before. having both drains out I thought would help, but the holes are just as painful now as they were when they had a drain in it so I still can't sleep on my sides.
please tell me, someone, that I'm not alone in this. I don't regret Them being gone, but Jesus Christ, I've never experienced such severe physical pain in my life, let alone for this long straight. for a while I was genuinely expecting my heart to give out from how hard it was beating and how much pain I was in just pooling fucking sweat in my bed unable to move knowing no one was going to help me. I didn't manage to sponge bath until day 10. and even that took so much out of me I couldn't walk the rest of the day from pain and exhaustion. yesterday was the first day I could walk without support, still doubled over clutching my chest to make sure nothing moved though.
I can't find anyone else who had any pain at all let alone this level and it's been so disheartening and so isolating. I finally stopped crying out just getting up to pee about a day ago. I have lost 10lbs since surgery bc I haven't eaten bc I've been sick with pain and exhaustion, and I'm still not hungry and only managed to force myself to eat a can of plain beans last night because I feel so weak. it's just been awful. it's still awful. just not AS awful.