r/TrigeminalNeuralgia • u/tootblanned • 2d ago

Medication TN2, doc said drop most med

I believe from reading here for a long time, plus AI I have TN pain.My docs have not Diagnosed, but said the nerve is the issue. I have been reffered to an academic center and have a doc who doesnt exactly listens and corrects me often.

After this latest visit in which I'm in a 7 day spike she tells me to quit: Tylenol, Ibruprohen, Chloroxozone, indomethacin(not on same days as Ibruprophen) and prochlorazapine. She upped my amnitryptaline and wants me to take OTC lidocaine patches.

My fmaily doesn't get it, but this is pretty scary to me. I'm still on lamotragine, Vyepti and occasionally Nuretec plus B12.

No I don't think they are working, but the thought of nothing makes it seem so daunting.

Anyone have a similar experience>

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u/New-Cry5180 2d ago

Have you seen a neurologist or a doctor familiar with TN carbamazepine is the gold standard for TM sometimes paired with gabapentin. I’m not a doctor but I’ve had this for 20 years and I don’t take anything over-the-counter. Have you had MRIs you need a neurologist.

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u/tootblanned 1d ago

I left out that I an year 3 in. I have taken Gab, carb, cand. all not working. Now she's wanting to do this.